Category Archives: Personality Differences
Focus on mainly one aspect of Christianity: Unbalanced Scriptural Interpretation, A Hierarchy that comes between God and humanity, Over emphasis on either this life or the next, ALL lead to idol worship.
Fundamentalist Christians have to struggle not to make an idol of scripture. Jesus is the Word of God. Scripture is vitally important, because scripture introduces us to Jesus. Jesus speaks to where individuals are and calls each to growth now, just as He did the people in the scriptures. He wasn’t adding more rules. The Jews had plenty of them. Our call is to an ongoing, deepening relationship with a living Savior who continues to show us the way of love that changes us. Though scriptures may be like letters from God about Jesus, they are not God, and He is not limited to them. And Jesus himself, was sent to awaken us to God’s Spirit within us and all around us.
Catholics have to struggle to not make an idol of the hierarchy of the church. Again, Jesus is the Word of God to each of us. The spirit of God grows in us through a personal relationship with Jesus. The church can be a rich place of nurture with its tradition of spirituality, but ultimately we are personally accountable for growing in our relationship to God through Jesus, the Way of love. The Church may be our mother, but it is not God, and God is not limited to it.
Liberal Protestants tend to idolize ideals for our physical world and this life. Which once again, are good things, and part of our call to stewardship and love, but are not God or our ultimate reason for being, because physical life is not all there is, either now or forever. That’s what the resurrection was about. Humbling though it may be, it is not just about our intellectual ideals for this life. It’s about recognizing our incompleteness and accepting the call to a growing relationship with God through the human expression of both His love and the spirituality that He is calling us to, Jesus.
The Scriptures and the commandments; the church and its traditions of spirituality; caring for the physical well being of others and our world, are all good and absolutely vital parts of Christianity, but none of them is God. None of them are a substitute for a personal relationship with God, which for Christians is given life and nurtured by our relationship with Jesus who is the love of God fleshed out for all.
Out of that relationship can flow a love for scripture, a love for the spirituality and community of the church, a love for all creation and all humanity and a valuing of all of these and appreciation for those whom God has given gifts in each area. It is not any one or two of these. It is the balance found when we value all equally. There is one God, expressing Love in Jesus, and empowering us to grow and minister to others by the gifts of the Spirit within each of us.
We are all children of God, but we are born with different personalities that have different gifts and ways of both seeing and being, so we need each other. When we only value one aspect of the kingdom of God, the one that is easiest for us, we have turned a good thing into an idol. Our inability to value and incorporate others’ focus and understanding, has led us to a church on every corner claiming to have a monopoly on truth, all of the truth and nothing but the truth, which pretty much is a claim to being equal to God.
Jesus, Himself, was sent to lead us to God, not just to Himself. His love, laying down his life for us, is the Way to God. He was taken away, so that we too would be filled with and led by God’s Spirit. And God’s Spirit is love, love for all His creation and all His creatures. And the world will know that we are His by our growth in love, love that will free us to lay down our life with its hubris of believing we have a monopoly on truth.
Anything else is an idol.
I think one very basic human trait is wanting more of whatever we need or value most. The “what” varies greatly from person to person, but we always want more of it.
Some people want things you can see and touch. Whether it’s collecting unusual or expensive things, or something as simple as recipes, or tools, or books, or even as someone once said to me, ” I just want the land I own and all the land that touches it.”
Other’s collect people: friends, lovers, fans, followers, students, or people to help in some way.
Quite a few collect power whether it’s over family, fellow citizens, employees, soldiers, clients, or even animals.
Many want visible accomplishments, whether on a grand scale like city planing, building sky scrapers, or simply working with our hands at a craft or garden. It’s the being visibly productive that appeals.
Others seek experiences, like travel, extreme sports, or the arts, nature’s beauty, even food.
Then, there are the challenges of developing skill in things as varied as golf, or dance, or photography, or writing poetry. Then it’s the always trying to become more proficient.
And the lucky ones are focused on collecting knowledge, which is something in abundance and variety all around us.
And of course,there’s collecting wealth for its own sake, like the story of King Midas.
I guess failing to achieve in any of these, there’s always indiscriminate hoarding.
But what we all have in common is that we always want more.
And maybe that is what old age, even illness, is about. It can free us to stop and let go. Then we can be still enough to open our hearts and minds to the greatest treasure, the glory of God,. And that is what all these things have in common. They are tiny tastes of the glory of God.
The first thing you should know about me is that I am not you. A lot more will make sense after that. (Melissa Skidmore)
A scripture that has echoed through my mind over the years is the one about getting the log out of our own eyes, instead of judging others. The problem with that is that the log in our eyes keeps us from seeing ourselves. We ALL have blind spots when it comes to seeing our whole selves.
Years ago I began to work with a personality indicator called the Myers/Briggs Type Indicator ( MBTI.) It was spooky to take it and then read the description of my way of being in the world. How could anyone know those things!!
The MBTI helped me become more aware not only that we come into the world with very different ways of being, seeing, understanding, valuing and responding, but that the world needs all of these diverse ways of being. It also needs us to become aware not only of our gifts, but of our blind spots. That’s the only way every ones’ gifts can be valued and work together for good.
The MBTI years ago when I studied and taught it, focused on affirming our gifts. So kind of naturally many of us just focused with relief on our own gifts, not realizing the importance of “gifts differing.” And not using the knowledge to rid ourselves of our blind spots. Belatedly, I recognized that there’s a built in pattern of growth in us where we become more receptive to the gifts we did not have and usually did not value equally to our own natural ones.
There’s a catch to this. To develop in the area opposite to our strongest gift or way of being in the world requires dying temporarily to our own way of being and seeing. It’s a dying to self. Technically, the MBTI doesn’t make any religious claims or statements. But believe me, this dying to our most valued gift is a real part of becoming whole, of becoming the best person we have the potential to be.
Unfortunately, dying to our “selves” is never easy or comfortable. By my age, I have seen creative people bog down in misery when their gifts seem to have dried up. I have myself panicked during a time when the Scriptures no longer spoke to me. I have heard others panic when ritual or their life long way of praying no longer works for them. But, I have also seen accountants become “creative” in good ways, artists learn to keep accounts, and engineers open their eyes and hearts to the mystical.
What I have witnessed and experienced convinces me that the universe is designed for opportunities and challenges to come our way at a time in our life when we are called to die to our strongest gift and become not only more balanced and whole, but more humble, and thus more understanding of those “others” that we have judged harshly most of our life.
What I found through sixty years of living with a man who was totally different in every area of being from me, is that only by becoming free to understand and value opposite ways of seeing and being in the world do we become free to truly and humbly love.
Recently I discovered that in the twenty years since I worked with it, the MBTI has been further developed in ways that help this process. It begins by helping us become aware of and accepting of our way of being in the world. Then, it can also help us accept not only that our way is a gift to the world, but that it isn’t enough. We then can begin to see how this dying to self can free us to become whole or “holy” and better able to understand and truly value both ourselves and those who are very different from us. It isn’t either/or. And no way is better, because no way is whole without the others.
Many years ago I was taking a turn preaching to a sizable group of Directors of Religious Education from very diverse denominations at a training week for DRE’s. I was going to use Paul’s scriptures on the Body of Christ and how all of the parts were equally important. As I was reflecting on this scripture, suddenly in my mind’s eye I saw a figure coming toward me. It was coming very slowly and jerkily, because the legs were clumsily, tripping over each other and the arms were flying in different directions and the head twisting back and forth. My immediate response was horror. “This is what we have done to the Body of Christ!” And I cried out, “Lord, what can I do?” And into my mind, clear as a warning bell I heard, “Admit what you can’t do.” As I have grappled with many aspects of this challenge over the years, two things have become clear to me, One: The world needs all of us, different political thinking, different religious understandings, different cultures’ values, gender traits, racial strengths, talents, skills, on and on and on. And Two: Only the grace of each of us truly knowing ourselves and knowing with heart and mind that we are loved as we are by God, can we become humble enough to love those very different others, just as we are loved. And that is the only way we can ever live in peace. We need all of us.
The MBTI isn’t gospel. But it can be an amazingly helpful tool for knowing ourselves better, and coming to value ourselves in a way that allows us to equally value others who seem completely different from us.
There’s a site on line called “16personalities.com” that offers greater understanding of the going with the flow of letting go and developing in new areas until the day we die. I am finding it both challenging and helpful in learning to let scary changes open my eyes to opportunities in my new life at eighty-two as a widow.
There are four ways of being: thinking, feeling, doing, and creating.
Thinking usually involves questioning and problem solving.
Feeling, whether positive or negative, is usually in relationship to someone.
Doing often involves care taking of things or care giving of people.
Creating is about new possibilities and may involve any or all of the other three.
Life involves all of these and though none of us does all of them equally well, I’ve noticed that through the stages of our lives we seem to eventually be challenged by life to develop in the areas where we don’t have natural gifts. This applies to our spiritual lives also.
At different times in my life I have found grace through very different sources. In my twenties I began to question my religious upbringing and for a few years I made the world and its pleasures my focus, but my questions finally took me on a journey of studying various religions in a search for meaning. Then in my thirties, a friend helped me begin to relate to Jesus, not only as a Savior and Lord, but as a best friend, and prayer became a conversation with him. Starting to read the scriptures to get to know him better brought them alive for me and I began to see their connections to even small things in my daily life. Gradually, they opened my eyes to the struggles of people around me and I began to recognize things I could do to help them. Then to my consternation, the Scriptures ceased to speak to me and health issues put me in a wheel chair, dependent on the kindness of others. Then accepting love from the kindness of others became a source of grace instead of frustration. And worship and rote prayer became my way to inner peace and a sense of the presence of God. Taking up art as a hobby began to bring me the freedom to live in the present moment creatively and even opened my eyes to blessings of God in the beauty all around me. Somehow, all of these ways of being came together and I felt a hunger to share my sense of the love of God expressed in Jesus, the presence of God in all things, and our oneness with God and each other. That led me to worship where I could give what I call my sermons from the molehill at Sunday worship services. We are all on a Spiritual journey whether we know it of not. But it does not go in the same order or timing or tidy little stages for all of us. We are all different, so our journeys will be different. And the places best for us to grow and learn spiritually will be different. But I’ve become convinced that over our lives we will have challenges with opportunities to experience growth in all of these ways of being. When we recognize these, we can accept them, instead of being threatened by change and resisting. Then eventually we become able to recognize God in everything and each other. This is very oversimplified, but is the essence of what I’ve experienced in my spiritual journey. The key to our personal spiritual journey is recognizing that the only thing in life that is not only inescapable, but when accepted, is a source of grace, is change.
Sarah Smarsh on That Moment When, a new show by PBS News Hour on Facebook Watch says a lot of what I have experienced about the differences and the similarities between people. Many people simply don’t question the strongest influences in their childhood, particularly those that gave them some sense of security in a frequently confusing and frightening world. Their minds don’t work that way., They learn differently, not by extrapolating or questioning their experience, but by building block by block on what they experienced and were taught. For many, the two influences that gave them some sense of security were parents and church. And their personalities and mental processes did not incline them to question the only security they had. Why would they? But some of us are born asking questions and challenging authority. Instead of security, we experience the status quo as a jail. We were what were called “strong willed children” by traditionalists and as ” children who color outside the lines” by creative people. As such, the more an authority figure, whether parent or teacher or preacher tried to control us, the stronger we pushed back. Not because we had our own world view, but because we wanted the freedom to explore, the joy of finding new ideas. BOTH are necessary. Creative personalities often throw the “baby out with the bathwater” and seldom consider the practical limitations of ideas. The need is for dialogue and balance, not assuming stupidity or evil on the part of those who approach life differently. I was once told that a high IQ had a downside because no matter if you are a genius, NO ONE is always right. And the Bible is full of chosen people who were used by God, but had blind spots and weaknesses that got them totally off track, such as David and even Peter in his conflicts with Paul. The call now is to not push each other into ridiculous and dangerous extremes, but to listen through the jargon to the important values of each side of issues . How many innocent people do we justify killing as collateral damage when we become involved in cultural conflicts on the other side of our shrinking planet? The question isn’t really do we kill or not, but whom and why. How many killers do we kill in hope of it being a deterrent to other killers and who decides when someone is beyond redemption? How many killers get out of jail and kill again? How do we choose between an unborn baby and its eleven year old mother’s mental and physical well being after she was raped or the victim of incest? How many unborn babies do we kill because we want to drink and sleep around? We have to recognize that one law or political slogan doesn’t fit all situations and together find the flexibility to attempt to decide different choices in the light of human spiritual values, not just blanket laws or knee jerk reactions to situations that have not affected our own life. And to do that, we ALL have to admit that we see through the glass (and in the mirror) darkly. Pride blinds us. We need each other.
Repentance is now considered a negative word. It implies sin, guilt and shame to the modern mind. Yet, the truth of the biblical quote, “All fall short of the glory of God” (which is perfect love) is pretty obvious.
The problem seems to me that somewhere along the way, we decided that seven was old enough to recognize right from wrong and twenty-one was old enough to take responsibility for our choices. End of story. The reality that we not only can grow in our understanding of and capability to love ( of morality), but were designed to do this at least to the day we die, got lost in the shuffle between Adam and Eve and their apple of damnation and Jesus Christ and the cross of salvation.
What if we use the word “unfinished” to describe our falling short? What if we use the word “growth” for the change implied by the word “repentance.” And then recognize that grace is simply “unconditional love ” in many different guises. And that is the fertilizer, the good soil, that enables growth and change.
Important note: Love does not protect us from the pain of natural consequences from our imperfect human choices. But love/grace stays with us through the whole learning process and has the power to free us to change when we recognize our need for it.
What percentage of the world’s population experiences perfect love from birth to seven? More, probably, than between seven and twenty-one. But where in the world do children experience only that kind of love? In an imperfect world of disease, hunger, greed, war, and TV is it even possible to protect children from knowledge of the fear, pain, and hunger in the world?
Even in a loving family, in affluent circumstances, traumas can still happen at critical stages of a child’s development. I knew a family who had several children and when the youngest was a toddler, the mother stayed with the oldest who had to be in the hospital for a week. After they returned, the youngest would have a panic attack if the mother even went out the front door and could no longer go to sleep except in bed with the parents. Up until a certain age, a child experiences “out of sight” as “gone forever.” By school age, the child seemed to outgrow the fears, but years later, in retrospect, the mother recognized that a profound fear of abandonment has been a strong influence even into adulthood.
We probably all experience the crippling effects of forgotten, even innocently caused traumas, unaware of how they influence our responses and choices in adulthood. The key to freedom is recognizing them, feeling sorrow for how they have wounded us and caused us to misuse others, and then by taking responsibility for seeking healing. Recognition is the beginning of the process. Sometimes awareness alone can free us to break a pattern of response. Other times, it takes time and we can only replace the destructive response with a less harmful one, during the process.
We are terribly vulnerable human beings in a scary and confusing world in a humongous unknown universe. Both, addictions to pleasures and to behaviors that give us the delusion that we are in control, dull the pain of awareness of our human vulnerability. I personally am not into housekeeping. Dust reappears the next day; no feeling of control there. But sorting and organizing lasts a lot longer and is much more satisfying. But sorry you will be, if you come along and disturb my order. And when dealing with painful realities in the middle of the night, but too tired to organize anything, I’ve been known to stand at the kitchen counter and eat half of a peach pie. These are not terribly destructive painkillers, unless I use them to indefinitely avoid looking at what is the root of my particular pain at that time.
I’ve never known anyone that thought this life is heaven. Though there have been times I thought it might be hell. I am definitely no longer a Pollyanna, who saw only the good, because I felt too fragile to deal with the pain of life. Nor am I my midlife self that became a cynic, who expected and tried to prepare for the worst. With grace, I’ve become able to see both in each day; to experience the deep sorrow of loss and the joy of beauty all around me at almost anytime.
When we believe we are loved at our worst and still unfinished at our best, most days we are able to try to be open to how our lives are challenging us to grow. Sometimes, like Peter Pan, my theme song is “I Won’t Grow Up!” But then I remember that life does not give up challenging us, which means I’m just dragging out the process.
We are all a work in progress. Awareness is the key to progress. And that comes in different ways: discomfort within, overloaded responses to people and events, even just something we seem to suddenly read or hear all around us. We will be able to perceive the cues in different ways through different stages of our own life. When I got brave enough to make the leap from agnosticism to faith in grace, I could suddenly make sense of the scripture in spite of all its anomalies. But I met many life long Christians that admitted sadly that they did not really find meaning there. Then later in life, they suddenly found great joy in it. I had loved the Scripture from my early thirties, but during my fifties and sixties it simply became like reading the back of cereal boxes. We all go through stages, but they differ in timing because of our various personalities. So, don’t assume because you have never enjoyed or understood something, that you never will. Like it or not, we grow and change with both losses and gains during the process.
All of this can be seen as psychological or spiritual or both. Mostly, it’s just the way life is, but how we perceive it can make a huge difference in becoming the people in process that we were created to be.
“You can’t fill a cup that is already full. That means you can’t approach a new situation, relationship, or job with what you think you know will happen. When you do that, you’re not leaving room for the unexpected, the delightful, and even the miraculous. Try starting from a place of ‘Maybe I don’t know.’ It allows you to be open to something or someone being different from what you experienced in the past. When you approach life in this open way, you also allow the universe to conspire on your behalf. So be empty of expectations. The universe will always dream bigger than you will. Abundance comes when you realize that you can receive what you need-every day.” by Eden-Clark and John Germain Leto
This quote so speaks to my condition right now. One of the hardest things for me is to allow those I care about to hurt. I want to help them find joy even in times of suffering, both for themselves and partly for myself. But suffering is part of the fabric of life and brings opportunities for grace and each of us has our own way and timing for experiencing it and learning from it. And part of loving another person is allowing them to be themselves, even if we are totally convinced we know “better” ways to be. Not being able to help my husband accept the losses that come with his illness or to help him trust that death is only a doorway, not the end, is very painful. And feelings of inadequacy and failure easily become less painful when disguised as frustration and impatience. The quote at the beginning of this showed up as a memory on my face book page today reminding me that my way may not be the best way for someone else and to trust God who loves my husband more than I ever could.
I do relate this experience to Mary’s vigil at the foot of her son’s cross. She had tried to convince him to come home when she realized he was putting himself in danger. She must have struggled with anger when he wouldn’t listen, also with guilt that she had somehow failed him, and with unimaginable heartbreak as she watched him suffer.
In the quote at the beginning of this, I translate “Universe” as God. And however anyone understands salvation, I truly believe that Jesus showed us that this life is not all there is and that suffering has the potential to be redeeming.
And the most counter-intuitive truth he showed us about life was when he prayed from the cross, “Father, forgive them. They know not what they do.” He showed us that forgiveness is the ultimate requirement for love, so that we too can experience forgiveness. Because forgiving others and accepting and experiencing forgiveness are inseparable.
Forgiving others frees us to forgive ourselves, particularly when we have not been able to consciously admit we need forgiveness. We all have the self-righteous belief that our way is the totally right way. And that blinds us to the harm we do. Forgiving others for their blindness both frees and heals us.
Forgiving others is at the core of the command Jesus gave us, “Love one another as I have loved you,” because forgiveness is the very essence of Good Friday.
My prayer for all of us this Holy Week is that we will find the grace to admit the limits of both our own understanding and of everyone’s human blindness, freeing us to both forgive and accept forgiveness. So then, on Easter, we can celebrate the love of God expressed in Jesus and truly rejoice and be glad in it.
Sometimes I get a glimpse of a tiny pattern that reinforces my belief that life has a pattern of purpose.
As an extrovert I don’t necessarily think well, but I think fast. And I used to walk fast, talk fast, and respond quickly to stimuli that I was interested in. My husband Julian as an introvert drove me crazy by having to mull over the smallest decisions and by being so fastidious and careful with what I thought of as unimportant detail, so causing me to always be waiting impatiently on him.
Well, I’ve never focused on physical details. How my babies survived is a witness to the reality of guardian angels. Now, here I am. Me, as Julian’s caregiver, bandaging very painful wounds with complicated modern layers of bandages that do different things. Cutting off bandages near wounds. Wrapping tape around gauze to keep bandages on without putting tape directly on very fragile skin. Getting it tight enough to stay on without putting pressure on the tender places. Not always remembering to place layers and tools strategically so when holding something in place on the wound, I can reach them. Then realizing from the deep sighs that my klutzy slowness is driving him crazy!
Everything I am needing to do right now from filling out government forms with dates and numbers and long forgotten details about health issues is something Julian has always done, because I am so bad at them. And even when he doesn’t sigh or visibly shake his head, I can tell watching him try to explain something some hospital or government agency thinks is important, but makes no sense to me, makes him want to scream.
Now, I’m convinced that part of life really is having to walk in the other guy’s shoes, particularly the one completely different from you, that you mentally judged over and over.
There have certainly been times where I have felt or been inadequate, but I was always pretty good at avoiding situations where it was hard being me. The easiest way was to simply not value those things in life.
Lot’s of luck, guys. Life catches up with you!
One of my favorite stories is about psychologists doing a study of pessimists and optimists. They put a young pessimist in a room with every imaginable toy. At first he happily tried out each toy, but soon he sat down crying. When they asked him, didn’t he like the toys, he sniffled “Yes.” But when asked why he was crying, he said, “They are very nice, but I know they will break. Toys usually do. I don’t want to enjoy them and then lose them.”
In the meantime the young optimist was in a room with just horse manure. To their surprise he was happily digging through the pile of manure. When asked why he was so happy, he answered enthusiastically, “With this much manure, there’s got to be a pony in here somewhere!”
I started 2017 with Lumbar Fusion Surgery followed by months of physical therapy, but still ending up in pain when bending and getting in and out of bed. All the bottom cabinets in our apartment are now pretty much unreachable for me. Since I’m short, the upper cabinets have always been out of reach, but now anything unbreakable is accessible with my new reacher. Though I’ve gotten fairly good at tilting things out with the reacher and catching them with my left hand, sometimes I start a chain reaction and all sorts of containers rain down on my head, the counter and the floor. As long as none break open, I just laugh and start over. However, the grits opening mid-air, provoked a different reaction. I’ll just leave it at that.
Shortly after surgery I awoke in the night unable to move my arms. I panicked thinking my arms were paralyzed, until I realized that the Velcro on my wrist braces for my carpal tunnel problem had locked onto the Velcro on my back brace. For a few minutes I thought I was going to have to wake Julian to help me, but I finally managed to get free. I think I did wake him with my laughter. Major blessings in the first several weeks of limited mobility and pain were Julian’s and all our family’s support and help and friends also brightening those days with tasty gifts of food. I felt very loved. And gained five pounds.
Some good news in April was that our Pulmonologist announced that my husband Julian’s Idiopathic Pulmonary Fibrosis had not progressed. But then, he informed us that the scans had shown a tumor in his right lung. The biopsy showed cancer cells, so surgery was scheduled. It was a very scary time. Thankfully, it only took minimally invasive surgery to get all the cancer. So far, in each three month checkup, he is still cancer free. Another blessing in this was his surgeon, who is one of the most intelligent, funny, honest, humble, caring people we have ever met. I told her once that we admired her greatly, particularly because she didn’t think she was God. She laughed and said that she had figured that out pretty early in her life.
However, at the age of eighty-one Julian was now terribly frustrated by how slow his recovery was. Just fourteen years ago he had bounced back pretty quickly from heart surgery. And just as he was finally getting back to work on several architectural jobs, his heart went out of rhythm. So, back to the hospital we went for a Cardiac Ablation. Unfortunately, though the ablation seemed successful, for unknown reasons he began to hemorrhage profusely. The two nurses with him began to take emergency measures to staunch the bleeding, but he was losing consciousness. So, while one lowered the head of the bed to get oxygen to his brain, the other nurse (a tall good looking blonde named Amy) climbed up on the bed to be able to put enough pressure on the incision in his groin to stop the bleeding until the emergency equipment got there. About that time Julian regained consciousness and asked in surprise, “Amy, are you getting in bed with me?” (Hope springs eternal…)
The pressure equipment slowed the bleeding, but a vascular surgeon was called in to do exploratory surgery to see if an artery had been perforated. None could be found even with extensive exploration. So, though the original ablation incision was small, the exploratory one was quite long. Julian now continued to bleed from both surgical sites in the groin area, with the bleeding only very slowly becoming less profuse. A one day stay in the hospital turned into eleven days and he was still leaking fluid with some blood from both sites when they sent us home. I, an eighty year old klutz, who had just had two cataract surgeries in the ten days before this, and had numb fingers and no grip because of carpal tunnel syndrome, would now be bandaging and cutting off bandages on the two adjoining surgical sites about three times a day. Purely through the grace of God, I managed not to do him any further damage and after about another ten days the two sites no longer needed bandages. Julian never admitted to trepidation, but his sigh of relief was quite audible when we finally got to stop playing doctor.
This was now late October. Once again age took its toll and recovery was even slower. Julian lost all appetite, began sleeping excessively, and being untypically sad and even somewhat surly. So, the doctor gave him “cheer up” meds. Lo and behold, he became amazingly energetic, funny and now smiling with a wonderful sparkle in his eyes. We were both delighted. (I considered asking for a prescription for myself.) Unfortunately, he then didn’t shut his eyes for five days and five nights, so the doctor had to switch the meds. With physical therapy he slowly regained some strength once more and began to work again on his much overdue architecture projects.
Suddenly, his legs and feet began to swell and turn bright red. The diagnosis was cellulitis, so now he was again on antibiotics, steroids and having to try to work on his computer with his feet propped up above his heart. I took a photo of this rather hazardous acrobatic endeavor, but wasn’t quite mean enough to post it on face book or my blog. Well….not yet.
The next day he had a meeting to attend on one of his projects. By now, he couldn’t even get his well worn moccasin house shoes on, so I drove him to Walmart to buy some larger backless black house shoes. Since it was raining, he wore socks with plastic grocery bags over them. He put the new shoes on at the checkout counter, but since one foot was swollen less than the other, to keep that shoe on when he walked, he had to sort of shuffle his way out to the car. Well, at least they matched the color of his suit.
Then just as he was beginning to get back to a somewhat diminished “normal,” he developed a horrendous cough and began to have to fight to breathe. We feared the fibrosis had flared up, but it appeared to be an inflammation, possibly because of drastic weather changes and a cold. Back on steroids and antibiotics again. Exhausted by fighting to breathe, he ended up bedridden for several weeks and once more with swollen feet. An unexpected blessing was a recently bought new sofa that was perfect for sleeping with elevated feet on wedges our Steve ordered. He slept there day and night with the remote to control the TV and a view of a flock of cardinals that hang out at the birdfeeders outside the French doors.
Slowly he began once more getting some strength back. But, suddenly while working quietly in his office in our apartment, he was almost paralyzed by extreme pain in his chest that radiated up into his jaw. I got him to the hospital in four minutes. It would have taken the ambulance that long to get to us. Eventually, as they were running tests, the pain subsided and the tests looked okay, but they kept him over night for an echo cardiogram. While waiting for a room, we did our usual survival by humor routine and one of the nurses asked, “You do realize this is an emergency?” We just laughed and said, “We’ve had so many medical emergencies in the last couple of years, we’ve decided that humor is the best survival medicine.”
His heart didn’t show any damage, so he got to go home the next day, but barely in time to change clothes to attend the Developmental Services Banquet. This is our community organization for those with mental handicaps. Julian designed several of their group homes and was a very active member on their board for seven years. For about twenty years he also gave them the monthly stipend he got for being on the City Zoning Appeals Board. Last year we were invited, but he ended up in the hospital so we didn’t make it. This year they gave me a heads up that he was supposed to be given the award he’d missed last year. I think we got there two minutes before it started. So in his suit and tie, wearing his very dilapidated, but fortuitously stretched from wear, moccasin house shoes, he received an award and a lot of affirmation. Many of the award winners were clients with disabilities who work as helpers in the group homes. I was touched by the wholehearted applause and cheering of the other clients. The award presentations were interspersed with Christmas music like, O Holy Night, and the elderly client sitting behind me knew the words to all of them perfectly, but not the tunes. But the sheer joy in her voice brought tears to my eyes as I realized that this too was an answer to my Advent Prayer, “Come, Lord Jesus.” I think Jesus is more visible in the handicapped than in the rest of us.
Our primary care doctor now scheduled Julian for an endoscopy to check for other possible causes for the pain that took us to the ER.
Meanwhile, our son Steve came from Atlanta to spend the weekend creating a wonderland with our collection of Dickens Village buildings, people in many different vignettes, animals, and trees and landmarks of London.
Julian directed this from the couch and it ended up with five levels of hills and valleys with bridges over chasms, a cave, and even a crime scene complete with crime scene tape that our son Tommy made and sneaked into the village a couple of years ago! Well after all, they had a lot of crime in Dickens day too. All the houses, churches, pubs and businesses have lights inside and the sheets of cotton snow cover the few empty patches outside. I think some zoning issues entered into the city planning also.
It really is both beautiful and interesting. And since it has grown to cover the whole end of the living room and now even continues around one corner, there’s no room inside for a Christmas tree. But outside one of the French doors, we have a small lighted one that looms large over the village. If you have to be sick, this is a lot better view than in the hospital. (Well, other than Amy the blonde nurse anyway.)
The next weekend our son Tommy and delightful Whitney with the awesomely beautiful voice brought our four granddaughters and they helped decorate the rest of the house. Then it was fun watching our talented artist granddaughters draw and getting to enjoy Whitney singing with Tommy accompanying her on the guitar. Another truly lovely Christmas experience.
Finally, Julian got to have his endoscopy which showed a pill had become lodged in his esophagus and caused an ulcer. A biopsy done to check for infection was negative. But now the challenge was to avoid the many delicious foods that irritate an ulcer.
A week before Christmas, nineteen of our family arrived for our annual Christmas gathering in a cabin at near-by Montgomery Bell State Park. Our grown children and grandchildren did most of the preparations and helped us organize and pack up our now downsized contributions. The cabin with its large stone fireplace and its wooded setting on a lake is a perfect place for a holiday gathering. The first day, Julian mostly rested, wrapped warmly in a comfortable recliner with everyone taking turns spending time with him and getting him things.
By the second day he felt well enough to be beaten at poker by both the grandchildren and great-grandchildren! It was a very happy day with even our grandson who teaches in Bolivia making it back in time. And we got to face-time our son Michael and his spouse Patrick in Cambodia, where they teach at an orphanage for children born HIV positive. I love that I have lived long enough to experience talking with and seeing our loved ones all the way across the world. In spite of all our challenges, it was a wonderful family Christmas celebration.
Christmas week, Julian’s blood pressure started vacillating wildly and he began to have severe chest pain from the ulcer in spite of taking nineteen different medicines each day! Unfortunately, all our doctors were out for a week of Christmas vacation. Adding to his misery, one of his new medicines made Julian very dizzy. He was walking to the bedroom and started to fall as he was almost to the king size bed. I was behind him and began to try to help him get to the bed. He started shouting, “Where’s the bed? Where’s the bed?” Because a week before he had had a sudden drastic loss of hearing, I thought he’d now gone blind! I managed to get him safely onto the bed and asked him if he could see it now and he snapped back, “Of course!” When I asked him why he couldn’t see it a moment before, he replied, “Because I had my eyes closed.” I had a sudden strong desire to strangle him, but fortunately my hands aren’t strong enough.
Now the sparkling lights of the village and the twinkling little tree outside and the bright red cardinals flaming around the feeders were still cheerfully visible over the rather large air purifier, the humidifier, and the walker. They could even be seen between the CPAP and Blood Pressure machine and various breathing aids on the rolling cart that we pulled next to the couch with its pyramid of wedges for elevating feet above the heart. The Christmas angels and burgundy candles around the tray with Julian’s nineteen medicines looked festive on the dining room table. I tried to convince Julian that a wreath of holly would keep his head warmer and add to the Christmassy atmosphere, but he wasn’t in the mood. I was tempted to dig out the left over “happy” pills and slip just a half of one in his milk, but it being the Holy Days, for once I resisted evil.
Julian now needed to not lie flat because of the ulcer and he still needed to keep his feet above the level of his heart. I suggested getting a hammock since our middles are our heaviest body area, both head and feet would then be high. But it’s already getting difficult to walk around the apartment, so Julian solved the problem by varying which end he raises with the wedges over the day and night. The other challenge is a diet healthy for his heart, esophagus, and feet. Low salt, low fat, low fiber, no spices, no tomato products, no dairy for two hours before and after a pill he takes twice a day, no caffeine, carbonation, citrus or anything acidic or alcoholic. And the steroids are making his sugar count so high that the frequent tears in his very thin skin won’t heal. So, low sugar also. I spent about three hours grocery shopping during the busiest shopping season of the year reading the contents of everything. But it’s a saving grace to have our son Chris living nearby and willing to come stay while I have to be gone. He and Julian share many interests and it seems to not only be a bright spot in those days for Julian, but to be bringing them much closer to one another. And the many kindnesses of our family and friends have touched Julian’s heart, helping him see how loved he is.
Our newest great-grandson, Raphael, who had a difficult birth on November 15th, didn’t breathe until they resuscitated him. He stayed in the hospital for ten days on a ventilator and needing medicines for seizures. But the neurologist said he could not believe the second brain scans taken at five days old were of the same child as the ones they took the first day. The neurologist actually called it a miracle. Raphael is a beautiful baby and now at two months has a marvelous wide smile. Though we may not know the extent of possible damage for some time, he has many many people praying for him even on the other side of the world. And he is already tenderly loved by all of us. They live in North Carolina, but we get to see photos and videos of him almost daily on face book. And they drove from North Carolina to Tennessee just for four days so his grands and great- grands could get to meet him. So, as 2018 began, I got to hold him and kiss his tiny feet and see him smile and hear his laughter. What a wonderful beginning for a new year.
A beneficial side effect for me of helping Julian through all this has been my regaining stamina and managing a lot of physical activity with very little pain. And in spite of relieving some of the stress by standing at the kitchen counter in the middle of the night eating half a peach pie and another time six jelly doughnuts mysteriously disappearing in two days, I haven’t gained weight.
When someone is in pain, whether physical or emotional, they are focused on the pain, and the small things that keep relationships pleasant are no longer a priority. Through most of our marriage, I have been high maintenance and Julian has been very low maintenance. There have been rough moments for both of us in adjusting to such an extreme change in that now. He doesn’t like to need help and I have always wanted a lot of it. He’s never been comfortable expressing unpleasant feelings. And I don’t really know how to help him, because I worked hard over the years to learn how to deal with my emotions without garbage dumping them on him. So, in spite of being married over half a century, we are still awkward in areas of our relationship. Sometimes, I feel like at eighty years of age, I’m still an amateur person.
Humor has been our glue and in many ways it is still our saving grace. But in this stage of our life, the challenge is to learn how to love across our differences in ways that help us relate heart to heart.
Last week, the doctor explained that a lot of the ongoing illnesses are side effects of some of the medicines that so far are keeping him able to breathe. So Julian is beginning to deal with the reality that his life is not going to get better. In fact, it will be a constant challenge to keep it from getting worse.
It’s a scary and sad time for both of us. Sometimes when he is sleeping, I feel like my heart is breaking and when I let myself cry, I’m afraid I will never be able to stop. Our family and our friends at church have been incredibly loving and supportive. And I find grace by reliving joyful memories of our fifty-nine years together. Julian suddenly lost a lot more of his hearing around Christmas. His expensive hearing aids made his ears itch so he never wore them. But now communication is much more difficult. A friend with similar problems has found something that has helped him and he is bringing it for Julian to try, so I am hopeful that soon we will be able to enjoy reliving those memories together.
Eileen and Julian in the South West of France 2015
One of the blessings of old age is a treasury of wonderful memories.
A warped sense of humor is also a great help.