Category Archives: spiritual growth

The Variety of Grief

I once heard a very kind priest friend say of a well-known priest author, “That man has never had a thought he didn’t feel he had to express.” I was a momentarily taken aback, because my friend was a very kind man who never said anything negative about anyone. I realized then that he was expressing the same mystification most introverts must feel about extroverts. Of course, extroverts frequently misinterpret introverts’ silence and need for privacy as dislike or disinterest or even distrust.
After years of studying and working with the Myers/Briggs Type Indicator, I have admitted that I don’t really know what I think about something until I manage to express it in words. And verbal dialogue is also intrinsic to my sense of relationship. I’ve learned that this is not only problematic for introverts that live or work with me, but often downright irritating.
Luckily, I have lived long enough to experience the wonderful outlet of the internet. I can express and hear myself in print at any hour of the day or night. And no one has to listen unless they want to and only when it’s convenient for them and only as long as they wish. And the introverts don ‘t have to say anything unless they feel like it and even then, all they have to do is hit one key to make a response.
Recently, I’ve been experiencing life changing challenges and I really do need to explore my feelings and insights by expressing them. Also, I think it’s possible that my describing what I’m feeling and learning may be some help to someone else out there. And happily, if not, they don’t need to waste their time reading what I write.
One of the challenges I am still facing is that we really do differ in our ways of dealing with grief. No matter how many stages are described as general, we don’t experience or work through them all the same. Partly because of differences in personality, but also because of many different factors about the way a loved one died, the timing for them and us, and past experiences with our own grief and others’ ways of grieving.
My husband was like a cat with nine lives. When I read back over his medical history, he came through so many close calls with death, I lose count. And in the last few years he fought valiantly with cardiac issues with stents and a pacemaker, AFIB, Idiopathic Pulmonary Fibrosis, successful surgery for a malignant tumor in his lung, a return of lung cancer that was inoperable and that spread beyond the lungs as stage 4 cancer, stage 3 Kidney disease…..all of which weakened him too much to risk chemo therapy. He was in and out of ER’s, hospitalizations of various lengths up to two weeks several times, and finally five months in a nursing home, first attempting through therapy to get strong enough for chemo, then failing that, for nursing care and hospice.
We have five grown children who have been simply awesome in their active care giving and support through all of this. And each of them is grieving in their own way now. And I have realized that not all of them are finding my way easy to understand.
To begin with, I generally live in the future of possibilities, both negative and positive ones. In other words, I worry way ahead of things, but I also like to explore new ways of being happy or productive or creative or loving.
When my husband was diagnosed with IPF over two years ago and I learned it was incurable, fatal, and a horrible way to die, I began to worry and pray that he would be spared that death. Of course, heart failure seemed a much better way to die, but with a pacemaker, less likely. My husband’s strongest trait was perseverance. When he grew weaker and no longer able to work effectively at what he loved, he became stressed and began to have some memory issues.
Finally he had to admit that he could no longer continue working. Now he was suffering anxiety attacks, frequent pneumonia and bronchial infections, then surgery to remove a tumor in his right lung, and then cellulitis contracted during a hospitalization, and finally kidney issues and depression. The physical and emotional stress affected him in many ways and by the time he entered the nursing home with stage 4 cancer, he simply wasn’t the strong silent gentle man that I had lived with for almost sixty years.
I did not love him less. I loved him more. And I gladly learned how to take care of many of his medical needs. But long before he could accept that he was dying, I began to work through my fears, experience loneliness, take over unfamiliar tasks, and try in many ways to prepare for having to survive on my own.
The wonderful physical, financial, and emotional support our five children gave us helped me to do this. And my faith and the amazing love and faith of caregivers at the nursing home lifted me out of my darkest moments. And the nurses and support staff of Hospice were able to help me anticipate and understand the rapid changes that were happening toward the end. The dying need very different things than those who are able to try to get well.
Some of the influences on my way of dealing with the loss of my husband were my tendency to anticipate and plan ahead, my deepest fear of his having to suffer terribly fighting to breathe, my having seen my very strong mother simply close down when my father died totally unexpectedly at fifty-two, watching her die by inches with Alzheimer’s for fourteen years, but particularly my many experiences of grace and glimpses of meaning in my own and sometimes others’ suffering over my eighty-one years.
I have usually dealt with short crises fairly well. It’s been the long haul attrition kind of things that could defeat me. So, over the two and a half years of constant crises, I have learned to watch for beauty, kindness, love, tiny joys like sunshine and flowers and birds and small kindnesses and laughter. I see these as grace, as the gentle touches of God. They are all around us every day if we watch for them. They seem small in the face of death of one we love, but they are myriad.
I am a weak person, easily overwhelmed by too many practical details and emotionally vulnerable to the unexpected blow. Having a large caring family help me deal with details has been an incredible blessing. Having time and medical personnel who have been down this road before me to help me understand each phase softened each blow. The blessing of the final gentle pain free death from his heart stopping before his having to fight to breathe has kept me from despair.
At times the reality that he will never be with me again in this life feels heart breaking and overwhelms me. But so far, at least, it has not robbed me of gratitude for my caring family, of healing laughter, hope for creativity in my life, the energy to try to keep reasonably functional, or my many memories of the love and joy my husband gave me.

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Deaths and Resurrections

This from a favorite author resonates beautifully with my inner journey right now after the death of my husband of almost sixty years.

 

Richard Rohr’s Daily Meditation
From the Center for Action and Contemplation

Death and Resurrection
All Things New
Sunday, November 18, 2018

Behold, I make all things new. —Revelation 21:5
As I’ve recently faced my own mortality through cancer once again, I’ve been comforted by others who have experienced loss and aging with fearless grace. Over the next few days I’ll share some of their thoughts. Today, join me in reflecting on this passage from Quaker teacher and author Parker Palmer’s new book, On the Brink of Everything: Grace, Gravity and Getting Old.
I’m a professional melancholic, and for years my delight in the autumn color show quickly morphed into sadness as I watched the beauty die. Focused on the browning of summer’s green growth, I allowed the prospect of death to eclipse all that’s life-giving about the fall and its sensuous delights.
Then I began to understand a simple fact: all the “falling” that’s going on out there is full of promise. Seeds are being planted and leaves are being composted as earth prepares for yet another uprising of green.
Today, as I weather the late autumn of my own life, I find nature a trustworthy guide. It’s easy to fixate on everything that goes to the ground as time goes by: the disintegration of a relationship, the disappearance of good work well done, the diminishment of a sense of purpose and meaning. But as I’ve come to understand that life “composts” and “seeds” us as autumn does the earth, I’ve seen how possibility gets planted in us even in the hardest of times.
Looking back, I see how the job I lost pushed me to find work that was mine to do, how the “Road Closed” sign turned me toward terrain that I’m glad I traveled, how losses that felt irredeemable forced me to find new sources of meaning. In each of these experiences, it felt as though something was dying, and so it was. Yet deep down, amid all the falling, the seeds of new life were always being silently and lavishly sown. . . .
Perhaps death possesses a grace that we who fear dying, who find it ugly and even obscene, cannot see. How shall we understand nature’s testimony that dying itself—as devastating as we know it can be—contains the hope of a certain beauty?
The closest I’ve ever come to answering that question begins with these words from Thomas Merton, . . . “There is in all visible things . . . a hidden wholeness.” [1]
In the visible world of nature, a great truth is concealed in plain sight. Diminishment and beauty, darkness and light, death and life are not opposites: they are held together in the paradox of the “hidden wholeness.” In a paradox, opposites do not negate each other—they cohabit and cocreate in mysterious unity at the heart of reality. Deeper still, they need each other for health, just as our well-being depends on breathing in and breathing out. . . .
When I give myself over to organic reality—to the endless interplay of darkness and light, falling and rising—the life I am given is as real and colorful, fruitful and whole as this graced and graceful world and the seasonal cycles that make it so. Though I still grieve as beauty goes to ground, autumn reminds me to celebrate the primal power that is forever making all things new in me, in us, and in the natural world.

Wrestling with Reality

It’s a monster size time of change and challenge with my husband Julian now in the nursing home on Hospice. Our almost sixty years together have been a normal human mix of happy and sad, easy and hard, comfortable and scary, tender and frustrating, but we have persevered and now it’s like we are both part of one imperfect, but whole person. He panics now, if I leave him alone. But bless our five children and grown granddaughter Carmen, who are so thoughtful and willing to give up their free time so I can have some down time. This weekend, I finally admitted that I need the down time, not just to go home to sort and clean there,. Writing and connecting with friends to sort out my feelings is much needed therapy. I think most extroverts need to express what is going on within to get in touch with it themselves.
Today, I realized that I am reacting emotionally to trying to make The Meadows a home and then coming back to our apartment where much of it is now in the unfinished process of drastic change. The garden outside the window at the Meadows is lovely and is kept up beautifully by a team of people. And yesterday, our family, with Julian making decisions, turned the room into a tiny apartment with everything but a stove. (I have my choice of three microwaves in all directions from our room anyway.) It has a wonderful homelike feeling.
Though it isn’t permanent and isn’t really ours, going there has been the right choice, because most days I am busy helping Julian and couldn’t manage to clean and cook like I would need to at home. Also, as he becomes weaker, I would not be able to take as good care of him alone. In an imperfect world, it is an amazing luxury, one that most people do not have. I am humbled by our good fortune and sad that all cannot share it. Though with our life in such a period of change, I do sometimes feel “homeless.” But at this moment, I am looking out at the pretty flagstones Steve put around our bird feeders, at the now healthy holly tree that I feared was dying, and a familiar bright cardinal in the lush greenery outside our windows. My small comfortable bedroom/office with walls covered with photos of all our family at different ages and stages feels so familiar, safe. and comforting. But even though family offered to take turns to let me stay home several days, after two days, I miss Julian so much, even in his grouchy or fearful moments, that I feel lost. And I realize that home is where he is.
Handling all the maddening business challenges of our situation sometimes gives me an almost overwhelming desire to curl up in a fetal position in my very own bed and suck my thumb and not answer the phone, the door, or open any mail ever again! But like now, a tiny wren sitting outside the window looking at me makes me smile and I rally.
The helpless feeling,when Julian wakes in the night and talks about how lost, confused and frightened he feels, leaves me speechless from feeling unable to console him. But sitting close and holding him until he calms some, I blow lightly in the wispy hair left on the top of his head. It’s something that makes him smile, bringing memories and a tiny moment of joy that heals us for a while.
And after a sleepless night alone in our apartment, when the first colors of the sunrise finally warm the world and my heart, I think of the words of the song, “And then comes the morning, yesterday’s sorrows behind.” And I remember that both the dark and the light come and go. And thanks to grace all around me, I can let go and start again.

Unfinished

I’ve never freely chosen to hang out with people who felt compelled to tell me unpleasant realities about myself. In the last twenty years or so I’ve finally come to grips with the fact (i.e. unpleasant reality) that it’s my problem. Reality just is. And my need to remain delusional is not other people’s problem.
I remember when taking a battery of psychological tests as preparation for ministry, they pointed out that one of my main traits that might limit my effectiveness was that I was over sensitive. My gut level, completely serious response was, “Well if you know I’m oversensitive, why would you hurt my feelings by telling me that?”
It’s like I expected the whole world to protect me from reality, even when facing it and changing might make me a much more effective person.
It has been a great relief to become able to accept that we all have flaws and even limits; physical, mental, emotional, and spiritual. And when I recognize one of them in my self (on my own or with “help”), sometimes I decide that it’s something I can’t change right now and that I and the rest of world will just have to live with that for the time being, but other times I recognize that it’s something that I want to change and now can, because of where I am in my journey.
So, the next time you get your feelings hurt, it might be interesting and even life changing to take responsibility for them and explore your choices in responding to the challenge of a possible, though uncomfortable, reality.

Authority without the Balance of Accountability Becomes Demonic

As an eighty-one year old who was an active Catholic involved in lay leadership roles for sixty years, I see the basis of the problem of abuse of authority as the irresponsibility of the people in the pews.  This is rampant in, but not  limited to, the very authoritarian Catholic Church. The same problems exist in all denominations and organizations where we idealize and thus idolize those in authority. Without accountability, those with all the power begin to value the structure more than the human beings it was created to serve.

The underlying dynamic in structures where authority is not balanced by responsibility and accountability is our human inclination to want father figures who will take on the work and discomfort of seeking truth and finding God for us. This is what creates the vacuum that allows these abuses to continue.

Blind faith is not faith, it is intellectual cowardice and spiritual irresponsibility. The spiritual writers of the Catholic tradition and the lives of persons considered saints, who have risked the insecurity of questioning and seeking and thus finding God, remain a rich spiritual resource for all of us. But blind faith in a structure such as the hierarchy of the Catholic Church, which declared itself infallible and above human question, is demonic, We who seek such childish comfort and allow it to rule unchallenged are responsible for its abuses.

Jesus is Lord, not the church or it’s hierarchy.  The heart of Christianity is an ongoing personal relationship with Jesus Christ as not only our Savior, but as our Lord. The accepting Jesus as Savior is the easy part. That’s accepting the visible physical expression of the unconditional Love of God.  Learning how to let him be Lord is a life time challenge. It is a relationship that only grows by our constantly seeking grace.  It can be encouraged and helped, but it is not controlled or accomplished by anything or anyone outside of us.

The church and its hierarchy are a human institution and as such are vulnerable to human frailties.  The church can be cleansed and renewed, but not from the top.  It has to start with the people in the pews first taking responsibility for their own relationship with God and then with God’s grace taking responsibility for the church. And just as our own personal spirituality has to be renewed over and over, so does that of the church.

 

The Dark at the End of the Tunnel

Once upon a time  almost a half century ago,  my brother and I were driving back from a Charismatic  Spirituality Conference at Notre Dame University to my home in Tennessee. My wonderful loving husband was taking care of our five children and needed to catch a plane to an out of state job site that evening. Suddenly, we were totally blinded by a deluge like rain storm and had to pull over. As time raced by, I grew very worried about getting home on time, so we prayed for help with the problem. Almost immediately, the rain stopped and the sun came out. Thanking God, we continued on our way home. A little while later it clouded over and began to pour making it very difficult to see clearly enough to drive again. We began to pray once more and as we did, a pathway opened up in the clouds over us and in a strip down the highway ahead of us. Beginning to both laugh and sniffle a bit from amazement and joy, we continued on our way, now singing praise to God. After about fifteen minutes the torrential rains began again with the sky almost dark as night. We looked at the clock and then each other and began to pray for help again. This time the clouds did not go away, but a hole in them that let the sun shine through over our car and about one car length around our car. By this time we were laughing,crying, and praising and both of us literally experienced a vision of ourselves as part of a crowd of people standing around Jesus on a throne, all singing, “Holy, holy holy, is the lamb of God.”. Our joy was so great that both of us felt we might simply explode if we had any more joy. So we prayed for the Lord to not give us anymore joy. As the joy simply settled into peace, once again the rains came. We were on the outskirts of our home town in traffic, but we both felt we were now to trust that God would protect and guide us each small step of the way home even in the darkness. We also realized that we had no way of adequately measuring or comparing the joy each of us had experienced, but that it didn’t matter. If one of us had been stretched to the size of a thimble and the other to the size of a lake, we had both experienced being joy filled to our utmost capacity for joy.
I’m convinced this was a metaphor for the faith journey. And that the closer we get to “home,” the more we have to trust while gong forward in the darkness.
PS. We made it home in time for my husband to catch his plane.

Ann Lamott: I Am That Frog

June 24 at 11:04 AM •
The world can feel like an alcoholic father sitting in the living room in his vile underwear, tranced out or abusive; and the world can feel like your favorite auntie who thinks you are just great, still likes to hike, always brings trail mix, and knows her wildflowers.
These are excruciating times, and this is the kingdom. It’s two, two, two mints in one.
So yeah, some of us are a little tense.
But we are not flattened. Nor do we look away from the suffering of others. And no matter how bad things look and how long change is taking, we don’t give up on goodness. Here is proof: we still take care of each other in ways that are profound, loving and sacrificial, by the bedside of our most beloved, and in the streets. We show up: the secret of life.
We gather in cities to rise up, and at local parks for live music in the sun, where we and our cranky neighbor end up doing the old tribal hippie two-step in the same shaft of light.
We are still laughing—some of us perhaps a bit maniacally—and people are creating the greatest, most live-giving routines and cartoons and responses. This is what saved me during the Cheney years. It was chemo.
So, great laughter, community, joyous and/or sacrificial love. We can work with this!
It is more than enough.
Here’s the one fly in the ointment: we have to do this in dim lighting, what with a political fever dream, and our own failing memories and overwhelm. Life is always like E.L. Doctorow’s great line about writing, that it is like driving at night with the headlights on—you can only see a little ways in front of you, but you can make the whole journey that way.
You still have to buckle up, no matter how slowly the car is moving. Put on the radio and sing along, loudly and off key. You just have to trust that, as John Lennon said, “Everything will be okay. If it’s not okay, it’s not the end.”
I heard a story last week from a sober friend that almost completely captures my understand of goodness and life, a story that has been medicine for my worried, worried soul:
Caroline stopped drinking 30 years ago, at the age of 40, with zero interest or belief in any kind of higher power to whom she might be able to turn when cravings overcame her. But after a year of white-knuckle sobriety, contemptuous of a higher power, hanging on through will power, she one day heard and then found a frog in her shower.
She lifted it and gently carried it in her cupped hands through the house. She could feel and, of course, imagine its terror. She took it out to the garden, where there was a moist patch of earth over near the blackberries, and set it down. It sat stock still for a bit, and then hopped away into the bushes.
She said, “My name is Caroline. I’m that frog.”
I am, too, and I am also a big helper. When I have felt most isolated and lost, I have always ended up being carried back to the garden in people’s good hands, to where I need to be, afraid and not breathing. for much of the way. And I have helped carry scared people, the best I could. You have, too.
Isn’t that what grace is, when some force of kindness, against all odds, with unknown hands, brings us from fear and hard tiles to a moist patch earth, and sets us down?
If I were God’s west coast representative, I would speed up the process a bit, and hand out klieg lights but I can’t. All I can do is to try and help you get back to where there is moist soil and fresh air, and let you help me. And those happen to be the two things I most want in life.

Freedom Comes from Realizing That We Are Blind

“You can’t fill a cup that is already full. That means you can’t approach a new situation, relationship, or job with what you think you know will happen. When you do that, you’re not leaving room for the unexpected, the delightful, and even the miraculous. Try starting from a place of ‘Maybe I don’t know.’ It allows you to be open to something or someone being different from what you experienced in the past. When you approach life in this open way, you also allow the universe to conspire on your behalf. So be empty of expectations. The universe will always dream bigger than you will. Abundance comes when you realize that you can receive what you need-every day.”  by Eden-Clark and John Germain Leto
This quote so speaks to my condition right now. One of the hardest things for me is to allow those I care about to hurt. I want to help them find joy even in times of suffering, both for themselves and partly for myself. But suffering is part of the fabric of life and brings opportunities for grace and each of us has our own way and timing for experiencing it and learning from it. And part of  loving another person is allowing them to be themselves, even if we are totally convinced we know “better” ways to be. Not being able to help my husband accept the losses that come with his illness or to help him trust that death is only a doorway, not the end, is very painful. And feelings of inadequacy and failure easily become less painful when disguised as frustration and impatience.  The quote at the beginning of this showed up as a memory on my face book page today reminding me that my way may not be the best way for someone else and to trust God who loves my husband more than I ever could.
I do relate this experience to Mary’s vigil at the foot of her son’s cross. She had tried to convince him to come home when she realized he was putting himself in danger. She must have struggled with anger when he wouldn’t listen, also with guilt that she had somehow failed him, and with unimaginable heartbreak as she watched him suffer.
In the quote at the beginning of this, I translate “Universe” as God. And however anyone understands salvation, I truly believe that Jesus showed us that this life is not all there is and that suffering has the potential to be redeeming.
And the most counter-intuitive truth he showed us about life was when he prayed from the cross, “Father, forgive them. They know not what they do.” He showed us that forgiveness is the ultimate requirement for love, so that we too can experience forgiveness. Because forgiving others and accepting and experiencing forgiveness are inseparable.
Forgiving others frees us to forgive ourselves, particularly when we have not been able to consciously admit we need forgiveness. We all have the self-righteous belief that our way is the totally right way. And that blinds us to the harm we do. Forgiving others for their blindness both frees and heals us.
Forgiving others is at the core of the command Jesus gave us, “Love one another as I have loved you,”  because forgiveness is the very essence of Good Friday.
My prayer for all of us this Holy Week is that we will find the grace to admit the limits of both our own understanding and of everyone’s human blindness, freeing us to both forgive and accept forgiveness. So then, on Easter, we can celebrate the love of God expressed in Jesus and truly rejoice and be glad in it.

“It’s hard to be green!”

Sometimes I get a glimpse of a tiny pattern that reinforces my belief that life has a pattern of purpose.

As an extrovert I don’t necessarily think well, but I think fast. And I used to walk fast, talk fast, and respond quickly to stimuli that I was interested in. My husband Julian as an introvert drove me crazy by having to mull over the smallest decisions and by being so fastidious and careful with what I thought of as unimportant detail, so causing me to always be waiting impatiently on him.

Well, I’ve never focused on physical details. How my babies survived is a witness to the reality of guardian angels. Now, here I am.  Me, as Julian’s caregiver, bandaging very painful wounds with complicated modern layers of bandages that do different things. Cutting off bandages near wounds. Wrapping tape around gauze to keep bandages on without putting tape directly on very fragile skin.  Getting it tight enough to stay on without putting pressure on the tender places. Not always remembering to place layers and tools strategically so when holding something in place on the wound, I can reach them. Then realizing from the deep sighs that my klutzy slowness is driving him crazy!

Everything I am needing to do right now from filling out government forms with dates and numbers and long forgotten details about health issues is something Julian has always done, because I am so bad at them. And even when he doesn’t sigh or visibly shake his head, I can tell watching him try to explain something some hospital or government agency thinks is important, but makes no sense to me, makes him want to scream.

Now, I’m convinced that part of life really is having to walk in the other guy’s shoes, particularly the one completely different from you, that you mentally judged over and over.

There have certainly been times where I have felt or been inadequate, but I was always pretty good at avoiding situations where it was hard being me. The easiest way was to simply not value those things in life.

Lot’s of luck, guys. Life catches up with you!

2017: Armageddon or There’s Got to be a Pony in it Somewhere?

One of my favorite stories is about psychologists doing a study of pessimists and optimists. They put a young pessimist in a room with every imaginable toy. At first he happily tried out each toy, but soon he sat down crying. When they asked him, didn’t he like the toys, he sniffled “Yes.” But when asked why he was crying, he said, “They are very nice, but I know they will break. Toys usually do. I don’t want to enjoy them and then lose them.”
In the meantime the young optimist was in a room with just horse manure. To their surprise he was happily digging through the pile of manure. When asked why he was so happy, he answered enthusiastically, “With this much manure, there’s got to be a pony in here somewhere!”

I started 2017 with Lumbar Fusion Surgery followed by months of physical therapy, but still ending up in pain when bending and getting in and out of bed. All the bottom cabinets in our apartment are now pretty much unreachable for me. Since I’m short, the upper cabinets have always been out of reach, but now anything unbreakable is accessible with my new reacher. Though I’ve gotten fairly good at tilting things out with the reacher and catching them with my left hand, sometimes I start a chain reaction and all sorts of containers rain down on my head, the counter and the floor. As long as none break open, I just laugh and start over. However, the grits opening mid-air, provoked a different reaction. I’ll just leave it at that.

Shortly after surgery I awoke in the night unable to move my arms. I panicked thinking my arms were paralyzed, until I realized that the Velcro on my wrist braces for my carpal tunnel problem had locked onto the Velcro on my back brace. For a few minutes I thought I was going to have to wake Julian to help me, but I finally managed to get free. I think I did wake him with my laughter. Major blessings in the first several weeks of limited mobility and pain were Julian’s and all our family’s support and help and friends also brightening those days with tasty gifts of food. I felt very loved. And gained five pounds.

Some good news in April was that our Pulmonologist announced that my husband Julian’s Idiopathic Pulmonary Fibrosis had not progressed. But then, he informed us that the scans had shown a tumor in his right lung. The biopsy showed cancer cells, so surgery was scheduled. It was a very scary time. Thankfully, it only took minimally invasive surgery to get all the cancer. So far, in each three month checkup, he is still cancer free. Another blessing in this was his surgeon, who is one of the most intelligent, funny, honest, humble, caring people we have ever met. I told her once that we admired her greatly, particularly because she didn’t think she was God. She laughed and said that she had figured that out pretty early in her life.

However, at the age of eighty-one Julian was now terribly frustrated by how slow his recovery was. Just fourteen years ago he had bounced back pretty quickly from heart surgery. And just as he was finally getting back to work on several architectural jobs, his heart went out of rhythm. So, back to the hospital we went for a Cardiac Ablation. Unfortunately, though the ablation seemed successful, for unknown reasons he began to hemorrhage profusely. The two nurses with him began to take emergency measures to staunch the bleeding, but he was losing consciousness. So, while one lowered the head of the bed to get oxygen to his brain, the other nurse (a tall good looking blonde named Amy) climbed up on the bed to be able to put enough pressure on the incision in his groin to stop the bleeding until the emergency equipment got there. About that time Julian regained consciousness and asked in surprise, “Amy, are you getting in bed with me?” (Hope springs eternal…)

The pressure equipment slowed the bleeding, but a vascular surgeon was called in to do exploratory surgery to see if an artery had been perforated. None could be found even with extensive exploration. So, though the original ablation incision was small, the exploratory one was quite long. Julian now continued to bleed from both surgical sites in the groin area, with the bleeding only very slowly becoming less profuse. A one day stay in the hospital turned into eleven days and he was still leaking fluid with some blood from both sites when they sent us home. I, an eighty year old klutz, who had just had two cataract surgeries in the ten days before this, and had numb fingers and no grip because of carpal tunnel syndrome, would now be bandaging and cutting off bandages on the two adjoining surgical sites about three times a day. Purely through the grace of God, I managed not to do him any further damage and after about another ten days the two sites no longer needed bandages. Julian never admitted to trepidation, but his sigh of relief was quite audible when we finally got to stop playing doctor.

This was now late October. Once again age took its toll and recovery was even slower. Julian lost all appetite, began sleeping excessively, and being untypically sad and even somewhat surly. So, the doctor gave him “cheer up” meds. Lo and behold, he became amazingly energetic, funny and now smiling with a wonderful sparkle in his eyes. We were both delighted. (I considered asking for a prescription for myself.) Unfortunately, he then didn’t shut his eyes for five days and five nights, so the doctor had to switch the meds. With physical therapy he slowly regained some strength once more and began to work again on his much overdue architecture projects.

Suddenly, his legs and feet began to swell and turn bright red. The diagnosis was cellulitis, so now he was again on antibiotics, steroids and having to try to work on his computer with his feet propped up above his heart. I took a photo of this rather hazardous acrobatic endeavor, but wasn’t quite mean enough to post it on face book or my blog. Well….not yet.

The next day he had a meeting to attend on one of his projects. By now, he couldn’t even get his well worn moccasin house shoes on, so I drove him to Walmart to buy some larger backless black house shoes. Since it was raining, he wore socks with plastic grocery bags over them. He put the new shoes on at the checkout counter, but since one foot was swollen less than the other, to keep that shoe on when he walked, he had to sort of shuffle his way out to the car. Well, at least they matched the color of his suit.

Then just as he was beginning to get back to a somewhat diminished “normal,” he developed a horrendous cough and began to have to fight to breathe. We feared the fibrosis had flared up, but it appeared to be an inflammation, possibly because of drastic weather changes and a cold. Back on steroids and antibiotics again. Exhausted by fighting to breathe, he ended up bedridden for several weeks and once more with swollen feet. An unexpected blessing was a recently bought new sofa that was perfect for sleeping with elevated feet on wedges our Steve ordered. He slept there day and night with the remote to control the TV and a view of a flock of cardinals that hang out at the birdfeeders outside the French doors.

Slowly he began once more getting some strength back. But, suddenly while working quietly in his office in our apartment, he was almost paralyzed by extreme pain in his chest that radiated up into his jaw. I got him to the hospital in four minutes. It would have taken the ambulance that long to get to us. Eventually, as they were running tests, the pain subsided and the tests looked okay, but they kept him over night for an echo cardiogram. While waiting for a room, we did our usual survival by humor routine and one of the nurses asked, “You do realize this is an emergency?” We just laughed and said, “We’ve had so many medical emergencies in the last couple of years, we’ve decided that humor is the best survival medicine.”

His heart didn’t show any damage, so he got to go home the next day, but barely in time to change clothes to attend the Developmental Services Banquet. This is our community organization for those with mental handicaps. Julian designed several of their group homes and was a very active member on their board for seven years. For about twenty years he also gave them the monthly stipend he got for being on the City Zoning Appeals Board. Last year we were invited, but he ended up in the hospital so we didn’t make it. This year they gave me a heads up that he was supposed to be given the award he’d missed last year. I think we got there two minutes before it started. So in his suit and tie, wearing his very dilapidated, but fortuitously stretched from wear, moccasin house shoes, he received an award and a lot of affirmation. Many of the award winners were clients with disabilities who work as helpers in the group homes. I was touched by the wholehearted applause and cheering of the other clients. The award presentations were interspersed with Christmas music like, O Holy Night, and the elderly client sitting behind me knew the words to all of them perfectly, but not the tunes. But the sheer joy in her voice brought tears to my eyes as I realized that this too was an answer to my Advent Prayer, “Come, Lord Jesus.”  I think Jesus is more visible in the handicapped than in the rest of us.

Our primary care doctor now scheduled Julian for an endoscopy to check for other possible causes for the pain that took us to the ER.

Meanwhile, our son Steve came from Atlanta to spend the weekend creating a wonderland with our collection of Dickens Village buildings, people in many different vignettes, animals, and trees and landmarks of London.

 

Julian directed this from the couch and it ended up with five levels of hills and valleys with bridges over chasms, a cave, and even a crime scene complete with crime scene tape that our son Tommy made and sneaked into the village a couple of years ago! Well after all, they had a lot of crime in Dickens day too. All the houses, churches, pubs and businesses have lights inside and the sheets of cotton snow cover the few empty patches outside. I think some zoning issues entered into the city planning also.
It really is both beautiful and interesting. And since it has grown to cover the whole end of the living room and now even continues around one corner, there’s no room inside for a Christmas tree. But outside one of the French doors, we have a small lighted one that looms large over the village. If you have to be sick, this is a lot better view than in the hospital. (Well, other than Amy the blonde nurse anyway.)

The next weekend our son Tommy and delightful Whitney with the awesomely beautiful voice brought our four granddaughters and they helped decorate the rest of the house. Then it was fun watching our talented artist granddaughters draw and getting to enjoy Whitney singing with Tommy accompanying her on the guitar. Another truly lovely Christmas experience.

Finally, Julian got to have his endoscopy which showed a pill had become lodged in his esophagus and caused an ulcer. A biopsy done to check for infection was negative. But now the challenge was to avoid the many delicious foods that irritate an ulcer.

A week before Christmas, nineteen of our family arrived for our annual Christmas gathering in a cabin at near-by Montgomery Bell State Park. Our grown children and grandchildren did most of the preparations and helped us organize and pack up our now downsized contributions. The cabin with its large stone fireplace and its wooded setting on a lake is a perfect place for a holiday gathering. The first day, Julian mostly rested, wrapped warmly in a comfortable recliner with everyone taking turns spending time with him and getting him things.

Granddaughter Sophie sharing her hopes and dreams with Julian

By the second day he felt well enough to be beaten at poker by both the grandchildren and great-grandchildren! It was a very happy day with even our grandson who teaches in Bolivia making it back in time. And we got to face-time our son Michael and his spouse Patrick in Cambodia, where they teach at an orphanage for children born HIV positive. I love that I have lived long enough to experience talking with and seeing our loved ones all the way across the world. In spite of all our challenges, it was a wonderful family Christmas celebration.

Christmas week, Julian’s blood pressure started vacillating wildly and he began to have severe chest pain from the ulcer in spite of taking nineteen different medicines each day! Unfortunately, all our doctors were out for a week of Christmas vacation. Adding to his misery, one of his new medicines made Julian very dizzy. He was walking to the bedroom and started to fall as he was almost to the king size bed. I was behind him and began to try to help him get to the bed. He started shouting, “Where’s the bed? Where’s the bed?” Because a week before he had had a sudden drastic loss of hearing, I thought he’d now gone blind! I managed to get him safely onto the bed and asked him if he could see it now and he snapped back, “Of course!” When I asked him why he couldn’t see it a moment before, he replied, “Because I had my eyes closed.” I had a sudden strong desire to strangle him, but fortunately my hands aren’t strong enough.

Now the sparkling lights of the village and the twinkling little tree outside and the bright red cardinals flaming around the feeders were still cheerfully visible over the rather large air purifier, the humidifier, and the walker. They could even be seen between the CPAP and Blood Pressure machine and various breathing aids on the rolling cart that we pulled next to the couch with its pyramid of wedges for elevating feet above the heart. The Christmas angels and burgundy candles around the tray with Julian’s nineteen medicines looked festive on the dining room table. I tried to convince Julian that a wreath of holly would keep his head warmer and add to the Christmassy atmosphere, but he wasn’t in the mood. I was tempted to dig out the left over “happy” pills and slip just a half of one in his milk, but it being the Holy Days, for once I resisted evil.

 

Village for a Hospital Room

Julian now needed to not lie flat because of the ulcer and he still needed to keep his feet above the level of his heart. I suggested getting a hammock since our middles are our heaviest body area, both head and feet would then be high. But it’s already getting difficult to walk around the apartment, so Julian solved the problem by varying which end he raises with the wedges over the day and night. The other challenge is a diet healthy for his heart, esophagus, and feet. Low salt, low fat, low fiber, no spices, no tomato products, no dairy for two hours before and after a pill he takes twice a day, no caffeine, carbonation, citrus or anything acidic or alcoholic. And the steroids are making his sugar count so high that the frequent tears in his very thin skin won’t heal. So, low sugar also. I spent about three hours grocery shopping during the busiest shopping season of the year reading the contents of everything. But it’s a saving grace to have our son Chris living nearby and willing to come stay while I have to be gone. He and Julian share many interests and it seems to not only be a bright spot in those days for Julian, but to be bringing them much closer to one another. And the many kindnesses of our family and friends have touched Julian’s heart, helping him see how loved he is.

Our newest great-grandson, Raphael, who had a difficult birth on November 15th, didn’t breathe until they resuscitated him. He stayed in the hospital for ten days on a ventilator and needing medicines for seizures. But the neurologist said he could not believe the second brain scans taken at five days old were of the same child as the ones they took the first day. The neurologist actually called it a miracle. Raphael is a beautiful baby and now at two months has a marvelous wide smile. Though we may not know the extent of possible damage for some time, he has many many people praying for him even on the other side of the world. And he is already tenderly loved by all of us. They live in North Carolina, but we get to see photos and videos of him almost daily on face book. And they drove from North Carolina to Tennessee just for four days so his grands and great- grands could get to meet him. So, as 2018 began, I got to hold him and kiss his tiny feet and see him smile and hear his laughter. What a wonderful beginning for a new year.

A beneficial side effect for me of helping Julian through all this has been my regaining stamina and managing a lot of physical activity with very little pain. And in spite of relieving some of the stress by standing at the kitchen counter in the middle of the night eating half a peach pie and another time six jelly doughnuts mysteriously disappearing in two days, I haven’t gained weight.

When someone is in pain, whether physical or emotional, they are focused on the pain, and the small things that keep relationships pleasant are no longer a priority. Through most of our marriage, I have been high maintenance and Julian has been very low maintenance. There have been rough moments for both of us in adjusting to such an extreme change in that now. He doesn’t like to need help and I have always wanted a lot of it. He’s never been comfortable expressing unpleasant feelings. And I don’t really know how to help him, because I worked hard over the years to learn how to deal with my emotions without garbage dumping them on him. So, in spite of being married over half a century, we are still awkward in areas of our relationship. Sometimes, I feel like at eighty years of age, I’m still an amateur person.

Humor has been our glue and in many ways it is still our saving grace. But in this stage of our life, the challenge is to learn how to love across our differences in ways that help us relate heart to heart.

Last week, the doctor explained that a lot of the ongoing illnesses are side effects of some of the medicines that so far are keeping him able to breathe. So Julian is beginning to deal with the reality that his life is not going to get better. In fact, it will be a constant challenge to keep it from getting worse.

It’s a scary and sad time for both of us. Sometimes when he is sleeping, I feel like my heart is breaking and when I let myself cry, I’m afraid I will never be able to stop. Our family and our friends at church have been incredibly loving and supportive. And I find grace by reliving joyful memories of our fifty-nine years together. Julian suddenly lost a lot more of his hearing around Christmas.  His expensive hearing aids made his ears itch so he never wore them.  But now communication is much more difficult. A friend with similar problems has found something that has helped him and he is bringing it for Julian to try, so I am hopeful that soon we will be able to enjoy reliving those memories together.

Some Memories

Mike Julian Eileen in Los Angeles

Eileen and Julian in the South West of France 2015

Julian at Tommy’s

Bella and Julian at Hospital

One of the blessings of old age is a treasury of wonderful memories.

A warped sense of humor is also a great help.