Category Archives: Prayer
One of my favorite stories is about psychologists doing a study of pessimists and optimists. They put a young pessimist in a room with every imaginable toy. At first he happily tried out each toy, but soon he sat down crying. When they asked him, didn’t he like the toys, he sniffled “Yes.” But when asked why he was crying, he said, “They are very nice, but I know they will break. Toys usually do. I don’t want to enjoy them and then lose them.”
In the meantime the young optimist was in a room with just horse manure. To their surprise he was happily digging through the pile of manure. When asked why he was so happy, he answered enthusiastically, “With this much manure, there’s got to be a pony in here somewhere!”
I started 2017 with Lumbar Fusion Surgery followed by months of physical therapy, but still ending up in pain when bending and getting in and out of bed. All the bottom cabinets in our apartment are now pretty much unreachable for me. Since I’m short, the upper cabinets have always been out of reach, but now anything unbreakable is accessible with my new reacher. Though I’ve gotten fairly good at tilting things out with the reacher and catching them with my left hand, sometimes I start a chain reaction and all sorts of containers rain down on my head, the counter and the floor. As long as none break open, I just laugh and start over. However, the grits opening mid-air, provoked a different reaction. I’ll just leave it at that.
Shortly after surgery I awoke in the night unable to move my arms. I panicked thinking my arms were paralyzed, until I realized that the Velcro on my wrist braces for my carpal tunnel problem had locked onto the Velcro on my back brace. For a few minutes I thought I was going to have to wake Julian to help me, but I finally managed to get free. I think I did wake him with my laughter. Major blessings in the first several weeks of limited mobility and pain were Julian’s and all our family’s support and help and friends also brightening those days with tasty gifts of food. I felt very loved. And gained five pounds.
Some good news in April was that our Pulmonologist announced that my husband Julian’s Idiopathic Pulmonary Fibrosis had not progressed. But then, he informed us that the scans had shown a tumor in his right lung. The biopsy showed cancer cells, so surgery was scheduled. It was a very scary time. Thankfully, it only took minimally invasive surgery to get all the cancer. So far, in each three month checkup, he is still cancer free. Another blessing in this was his surgeon, who is one of the most intelligent, funny, honest, humble, caring people we have ever met. I told her once that we admired her greatly, particularly because she didn’t think she was God. She laughed and said that she had figured that out pretty early in her life.
However, at the age of eighty-one Julian was now terribly frustrated by how slow his recovery was. Just fourteen years ago he had bounced back pretty quickly from heart surgery. And just as he was finally getting back to work on several architectural jobs, his heart went out of rhythm. So, back to the hospital we went for a Cardiac Ablation. Unfortunately, though the ablation seemed successful, for unknown reasons he began to hemorrhage profusely. The two nurses with him began to take emergency measures to staunch the bleeding, but he was losing consciousness. So, while one lowered the head of the bed to get oxygen to his brain, the other nurse (a tall good looking blonde named Amy) climbed up on the bed to be able to put enough pressure on the incision in his groin to stop the bleeding until the emergency equipment got there. About that time Julian regained consciousness and asked in surprise, “Amy, are you getting in bed with me?” (Hope springs eternal…)
The pressure equipment slowed the bleeding, but a vascular surgeon was called in to do exploratory surgery to see if an artery had been perforated. None could be found even with extensive exploration. So, though the original ablation incision was small, the exploratory one was quite long. Julian now continued to bleed from both surgical sites in the groin area, with the bleeding only very slowly becoming less profuse. A one day stay in the hospital turned into eleven days and he was still leaking fluid with some blood from both sites when they sent us home. I, an eighty year old klutz, who had just had two cataract surgeries in the ten days before this, and had numb fingers and no grip because of carpal tunnel syndrome, would now be bandaging and cutting off bandages on the two adjoining surgical sites about three times a day. Purely through the grace of God, I managed not to do him any further damage and after about another ten days the two sites no longer needed bandages. Julian never admitted to trepidation, but his sigh of relief was quite audible when we finally got to stop playing doctor.
This was now late October. Once again age took its toll and recovery was even slower. Julian lost all appetite, began sleeping excessively, and being untypically sad and even somewhat surly. So, the doctor gave him “cheer up” meds. Lo and behold, he became amazingly energetic, funny and now smiling with a wonderful sparkle in his eyes. We were both delighted. (I considered asking for a prescription for myself.) Unfortunately, he then didn’t shut his eyes for five days and five nights, so the doctor had to switch the meds. With physical therapy he slowly regained some strength once more and began to work again on his much overdue architecture projects.
Suddenly, his legs and feet began to swell and turn bright red. The diagnosis was cellulitis, so now he was again on antibiotics, steroids and having to try to work on his computer with his feet propped up above his heart. I took a photo of this rather hazardous acrobatic endeavor, but wasn’t quite mean enough to post it on face book or my blog. Well….not yet.
The next day he had a meeting to attend on one of his projects. By now, he couldn’t even get his well worn moccasin house shoes on, so I drove him to Walmart to buy some larger backless black house shoes. Since it was raining, he wore socks with plastic grocery bags over them. He put the new shoes on at the checkout counter, but since one foot was swollen less than the other, to keep that shoe on when he walked, he had to sort of shuffle his way out to the car. Well, at least they matched the color of his suit.
Then just as he was beginning to get back to a somewhat diminished “normal,” he developed a horrendous cough and began to have to fight to breathe. We feared the fibrosis had flared up, but it appeared to be an inflammation, possibly because of drastic weather changes and a cold. Back on steroids and antibiotics again. Exhausted by fighting to breathe, he ended up bedridden for several weeks and once more with swollen feet. An unexpected blessing was a recently bought new sofa that was perfect for sleeping with elevated feet on wedges our Steve ordered. He slept there day and night with the remote to control the TV and a view of a flock of cardinals that hang out at the birdfeeders outside the French doors.
Slowly he began once more getting some strength back. But, suddenly while working quietly in his office in our apartment, he was almost paralyzed by extreme pain in his chest that radiated up into his jaw. I got him to the hospital in four minutes. It would have taken the ambulance that long to get to us. Eventually, as they were running tests, the pain subsided and the tests looked okay, but they kept him over night for an echo cardiogram. While waiting for a room, we did our usual survival by humor routine and one of the nurses asked, “You do realize this is an emergency?” We just laughed and said, “We’ve had so many medical emergencies in the last couple of years, we’ve decided that humor is the best survival medicine.”
His heart didn’t show any damage, so he got to go home the next day, but barely in time to change clothes to attend the Developmental Services Banquet. This is our community organization for those with mental handicaps. Julian designed several of their group homes and was a very active member on their board for seven years. For about twenty years he also gave them the monthly stipend he got for being on the City Zoning Appeals Board. Last year we were invited, but he ended up in the hospital so we didn’t make it. This year they gave me a heads up that he was supposed to be given the award he’d missed last year. I think we got there two minutes before it started. So in his suit and tie, wearing his very dilapidated, but fortuitously stretched from wear, moccasin house shoes, he received an award and a lot of affirmation. Many of the award winners were clients with disabilities who work as helpers in the group homes. I was touched by the wholehearted applause and cheering of the other clients. The award presentations were interspersed with Christmas music like, O Holy Night, and the elderly client sitting behind me knew the words to all of them perfectly, but not the tunes. But the sheer joy in her voice brought tears to my eyes as I realized that this too was an answer to my Advent Prayer, “Come, Lord Jesus.” I think Jesus is more visible in the handicapped than in the rest of us.
Our primary care doctor now scheduled Julian for an endoscopy to check for other possible causes for the pain that took us to the ER.
Meanwhile, our son Steve came from Atlanta to spend the weekend creating a wonderland with our collection of Dickens Village buildings, people in many different vignettes, animals, and trees and landmarks of London.
Julian directed this from the couch and it ended up with five levels of hills and valleys with bridges over chasms, a cave, and even a crime scene complete with crime scene tape that our son Tommy made and sneaked into the village a couple of years ago! Well after all, they had a lot of crime in Dickens day too. All the houses, churches, pubs and businesses have lights inside and the sheets of cotton snow cover the few empty patches outside. I think some zoning issues entered into the city planning also.
It really is both beautiful and interesting. And since it has grown to cover the whole end of the living room and now even continues around one corner, there’s no room inside for a Christmas tree. But outside one of the French doors, we have a small lighted one that looms large over the village. If you have to be sick, this is a lot better view than in the hospital. (Well, other than Amy the blonde nurse anyway.)
The next weekend our son Tommy and delightful Whitney with the awesomely beautiful voice brought our four granddaughters and they helped decorate the rest of the house. Then it was fun watching our talented artist granddaughters draw and getting to enjoy Whitney singing with Tommy accompanying her on the guitar. Another truly lovely Christmas experience.
Finally, Julian got to have his endoscopy which showed a pill had become lodged in his esophagus and caused an ulcer. A biopsy done to check for infection was negative. But now the challenge was to avoid the many delicious foods that irritate an ulcer.
A week before Christmas, nineteen of our family arrived for our annual Christmas gathering in a cabin at near-by Montgomery Bell State Park. Our grown children and grandchildren did most of the preparations and helped us organize and pack up our now downsized contributions. The cabin with its large stone fireplace and its wooded setting on a lake is a perfect place for a holiday gathering. The first day, Julian mostly rested, wrapped warmly in a comfortable recliner with everyone taking turns spending time with him and getting him things.
By the second day he felt well enough to be beaten at poker by both the grandchildren and great-grandchildren! It was a very happy day with even our grandson who teaches in Bolivia making it back in time. And we got to face-time our son Michael and his spouse Patrick in Cambodia, where they teach at an orphanage for children born HIV positive. I love that I have lived long enough to experience talking with and seeing our loved ones all the way across the world. In spite of all our challenges, it was a wonderful family Christmas celebration.
Christmas week, Julian’s blood pressure started vacillating wildly and he began to have severe chest pain from the ulcer in spite of taking nineteen different medicines each day! Unfortunately, all our doctors were out for a week of Christmas vacation. Adding to his misery, one of his new medicines made Julian very dizzy. He was walking to the bedroom and started to fall as he was almost to the king size bed. I was behind him and began to try to help him get to the bed. He started shouting, “Where’s the bed? Where’s the bed?” Because a week before he had had a sudden drastic loss of hearing, I thought he’d now gone blind! I managed to get him safely onto the bed and asked him if he could see it now and he snapped back, “Of course!” When I asked him why he couldn’t see it a moment before, he replied, “Because I had my eyes closed.” I had a sudden strong desire to strangle him, but fortunately my hands aren’t strong enough.
Now the sparkling lights of the village and the twinkling little tree outside and the bright red cardinals flaming around the feeders were still cheerfully visible over the rather large air purifier, the humidifier, and the walker. They could even be seen between the CPAP and Blood Pressure machine and various breathing aids on the rolling cart that we pulled next to the couch with its pyramid of wedges for elevating feet above the heart. The Christmas angels and burgundy candles around the tray with Julian’s nineteen medicines looked festive on the dining room table. I tried to convince Julian that a wreath of holly would keep his head warmer and add to the Christmassy atmosphere, but he wasn’t in the mood. I was tempted to dig out the left over “happy” pills and slip just a half of one in his milk, but it being the Holy Days, for once I resisted evil.
Julian now needed to not lie flat because of the ulcer and he still needed to keep his feet above the level of his heart. I suggested getting a hammock since our middles are our heaviest body area, both head and feet would then be high. But it’s already getting difficult to walk around the apartment, so Julian solved the problem by varying which end he raises with the wedges over the day and night. The other challenge is a diet healthy for his heart, esophagus, and feet. Low salt, low fat, low fiber, no spices, no tomato products, no dairy for two hours before and after a pill he takes twice a day, no caffeine, carbonation, citrus or anything acidic or alcoholic. And the steroids are making his sugar count so high that the frequent tears in his very thin skin won’t heal. So, low sugar also. I spent about three hours grocery shopping during the busiest shopping season of the year reading the contents of everything. But it’s a saving grace to have our son Chris living nearby and willing to come stay while I have to be gone. He and Julian share many interests and it seems to not only be a bright spot in those days for Julian, but to be bringing them much closer to one another. And the many kindnesses of our family and friends have touched Julian’s heart, helping him see how loved he is.
Our newest great-grandson, Raphael, who had a difficult birth on November 15th, didn’t breathe until they resuscitated him. He stayed in the hospital for ten days on a ventilator and needing medicines for seizures. But the neurologist said he could not believe the second brain scans taken at five days old were of the same child as the ones they took the first day. The neurologist actually called it a miracle. Raphael is a beautiful baby and now at two months has a marvelous wide smile. Though we may not know the extent of possible damage for some time, he has many many people praying for him even on the other side of the world. And he is already tenderly loved by all of us. They live in North Carolina, but we get to see photos and videos of him almost daily on face book. And they drove from North Carolina to Tennessee just for four days so his grands and great- grands could get to meet him. So, as 2018 began, I got to hold him and kiss his tiny feet and see him smile and hear his laughter. What a wonderful beginning for a new year.
A beneficial side effect for me of helping Julian through all this has been my regaining stamina and managing a lot of physical activity with very little pain. And in spite of relieving some of the stress by standing at the kitchen counter in the middle of the night eating half a peach pie and another time six jelly doughnuts mysteriously disappearing in two days, I haven’t gained weight.
When someone is in pain, whether physical or emotional, they are focused on the pain, and the small things that keep relationships pleasant are no longer a priority. Through most of our marriage, I have been high maintenance and Julian has been very low maintenance. There have been rough moments for both of us in adjusting to such an extreme change in that now. He doesn’t like to need help and I have always wanted a lot of it. He’s never been comfortable expressing unpleasant feelings. And I don’t really know how to help him, because I worked hard over the years to learn how to deal with my emotions without garbage dumping them on him. So, in spite of being married over half a century, we are still awkward in areas of our relationship. Sometimes, I feel like at eighty years of age, I’m still an amateur person.
Humor has been our glue and in many ways it is still our saving grace. But in this stage of our life, the challenge is to learn how to love across our differences in ways that help us relate heart to heart.
Last week, the doctor explained that a lot of the ongoing illnesses are side effects of some of the medicines that so far are keeping him able to breathe. So Julian is beginning to deal with the reality that his life is not going to get better. In fact, it will be a constant challenge to keep it from getting worse.
It’s a scary and sad time for both of us. Sometimes when he is sleeping, I feel like my heart is breaking and when I let myself cry, I’m afraid I will never be able to stop. Our family and our friends at church have been incredibly loving and supportive. And I find grace by reliving joyful memories of our fifty-nine years together. Julian suddenly lost a lot more of his hearing around Christmas. His expensive hearing aids made his ears itch so he never wore them. But now communication is much more difficult. A friend with similar problems has found something that has helped him and he is bringing it for Julian to try, so I am hopeful that soon we will be able to enjoy reliving those memories together.
Eileen and Julian in the South West of France 2015
One of the blessings of old age is a treasury of wonderful memories.
A warped sense of humor is also a great help.
At two weeks Raphael is finally off all tubes. He’s breathing on his own and taking a bottle. His bodily functions are all working. He’s focusing his eyes.
He is still on medicine for seizures, but it is controlling them. His heart showed a flutter over the weekend, but I haven’t heard any more about that. But please keep the prayers going. About five days after he was born the neurologist called and told Raphael’s parents that he would not have known the second brain scan was of the same baby as the first, it was so much improved. When we care and pray for one another, miracles can happen. Thank you all for your caring prayers.
Today I am realizing that when our children or couples we love divorce, there’s a mourning period involved. Particularly with friends that we only knew when they were married. We have to mourn and let go of those we have loved in relationship. It has nothing to do with thinking they should or shouldn’t divorce. It just involves coming to grips with the differences.
With a child we knew and loved long before they married or divorced, we at least have something to look back to, but not with the spouse that we only knew as a unit with our child. They simply aren’t the same person now that we have only known. There really is a necessary time of mourning, particularly if we truly came to love them as part of that unit. And mourning involves the stages of grief…..denial, anger, bargaining, depression and acceptance.
I think recognizing this can help us not bog down hopelessly at any point in the process. I am also beginning to reflect on the possibility that we have to go through a similar process when either people we love or we ourselves change because of aging or illness.
I realize now that I need to cut myself some slack and take time to reflect on the effects of this recent period in my life that includes my own losses of abilities and joys through age and illness, my husband experiencing losses from these also, one of our adult children and a spouse that I loved deeply as a couple for many years now being divorced, and friends that I have loved and only known as a couple divorcing.
The last year and a half have simply been overwhelming and I have been bogged down in emotional denial of some of these things and in anger over others.
Hopefully, recognizing this and my need for grace will help me move through to the peace of acceptance.
For the fourth Sunday of each month, I prepare and give the welcoming and introduction part of our worship service. I study the Lectionary Scriptures for that Sunday and prepare a short reflection and prayers as the introduction to the service.
I always start preparing ahead of time and try to listen to the particular Lectionary scriptures for that Sunday as if God is speaking to my own heart and situation. My Sunday in May was a few days after my husband’s surgery for lung cancer.
The first reading was from Acts 1 after Jesus ascended into heaven leaving his disciples praying together as they wait anxiously for the coming of the promised power of the Holy Spirit.
These Scriptures describe Christianity being born. The disciples are trying to learn to trust God even when they can no longer see Jesus. But when things are going badly, they still become anxious. Jesus has asked God to protect not only them, but all of us that follow him. So we, just like our brothers and sisters from the very beginning, can bring our fears to God. The followers of Jesus, not just in church on Sundays, but even through our internet connections, gather through prayer.
The second reading, 1 Peter, tells us to rejoice when we are sharing Christ’s suffering for we are blessed by the Spirit of God, resting on us. And after we have suffered a little while, the God of all grace will himself restore, support, strengthen, and establish us.
Letting go of fear of suffering is a challenge that I often don’t manage until I’m overwhelmed. But, when I do, I have found that I can let go of my fear by praising and thanking God for all He has done for me. It is much better when I don’t wait for times of obvious blessings to praise and thank God. When I actually praise God in the hard times, I realize that then suffering can bring me closer to him. That praise particularly connects me to God. God doesn’t need praise, we need to praise God. It changes our focus and gives us a new perspective that opens our eyes to the blessings all around us.
Here are some generic possibilities for praise and thanksgiving in hard times that I included in my reflection and prayers for Sunday worship.
God, our father, we praise your glory. You are perfect beauty far beyond what I have ever seen. You are truth that transforms my faith and fills me with your Spirit. You are the life changing power of grace that gives me inner strength. You are perfect love that can heal my heart, mind, body, and spirit.
Thank you for the reflections of your glory that I see in the beauty of nature. Thank you for your Spirit increasing my faith by opening my mind when I seek your truth in the Scriptures. Thank you for grace that strengthens me when I pray in times of suffering. And thank you most of all for your perfect love expressed in Jesus that heals and opens my heart to You.
Since I am a devout coward and a congenital worrier, I often miss God’s call to praise and thanksgiving and have to become almost bedridden with the pain of Fibromyalgia before I remember to cast my cares on the God who loves me tenderly and unconditionally. But when I not only praise in such general things, but move on to specific large and small blessings, such as our children who give us such wonderful support, the plethora of bright red cardinals outside my window, songs of praise coming from within that lift my heart and mind to God, even strangers in doctors’ waiting rooms and people who connect with me across the world through blogs, that pray for us and I for them, and perhaps most of all, the powerful surges of the sometimes forgotten tenderness I feel for my husband, then the grace of joy bubbles up from deep inside me and my heart joins my mind in giving praise to God.
Julian’s lung surgery is scheduled for Tuesday, May 23rd. He has to be there at 6 am, but not sure of the actual surgery time. Heart and lung doctors and consultants all say his heart is fine and his pulmonary fibrosis has not progressed in the last year and so far it looks like the cancer cells are limited to one spot in his right lung. All prayers for my husband, Julian, greatly appreciated.
Wow. Sometimes I feel like one of those plastic blow up clowns with sand in the bottom….you can knock it down over and over, but it comes back up for more.
A year ago, shortly after I had a reverse shoulder replacement when I fell and broke my shoulder in three places, my husband was diagnosed with Idiopathic Pulmonary Fibrosis. The idiopathic means they don’t know what causes it, so they don’t know how to cure it. It is progressive and the longest survival is usually five years from onset. We were pretty sure he had it for several years before diagnosis. Well, last year when he was hospitalized fighting to breathe for two weeks and growing extremely weak quickly, they sent him home worse than when he went in. He could hardly stand, couldn’t get out of a chair by himself and couldn’t walk any distance at all. All the muscle tone was gone from his legs. They were skeletal and weak. He started physical therapy and continues still. He can walk reasonable distances , stand, bend, and do the bicycle in therapy now. After his diagnosis last Spring, in the Fall he had another bout of a combination of allergies, sinus, asthma, with terrible coughing, but fast and aggressive treatment with antibiotics and steroids got him back on his feet and breathing in a few days. He works on a computer from home as an architect, often working six or even seven days a week. Our work comes in bunches, then stalls, but often deadlines come close together for a one man office. Now a year after our disastrous Spring, I had to have spinal lumbar fusion surgery. I am still recovering from it. About three weeks ago, my husband once again started coughing and wheezing and fighting for breath, but the quick medical treatment again got him almost completely over it in a little over two weeks. Through all of these challenges, we have been supported in prayer by people of many faiths. The morning before he came down with the respiratory problems, he had his yearly lung check up with CT Scans and breathing tests. The doctor came back with miraculous good news: the idiopathic pulmonary fibrosis has not progressed any, since this time last year. But, then came the bad news: a spot on his lungs that was biopsied two years ago and declared benign has grown. So, he had another lung biopsy last Friday and it showed a tumor with some cancer cells. He gets PET Scans this week, hoping they will not show any cancer having spread, so they can just remove the tumor without radiation therapy.
I am convinced that gathering prayer from many praying people of diverse spiritualities has made a difference in the progress of the fibrosis. I don’t understand prayer, but I have witnessed miracles, and do believe that in some way we are partners with the power that created everything. My husband has become much more spiritual as he has gotten older and more aware of his own limits, and he has become much more involved in helping those in need.
Of course selfishly, I want him to live longer and have a good quality of life, but I also really believe that God isn’t finished helping him become the person he created him to be and is still wanting to use him for the good of others.
I also believe we are all connected….somehow we are one. So, whatever we do for or against anyone has an effect on all. And when we join together in faith and caring, miracles can happen.
So, internet friends, if you are a person of prayer, please pray for my husband to become the person he was created to be and to be able to help others as he truly longs to do. And for me to be able to be a support for him in this.
And for all of us to realize that however small our faith is, when we join it together in caring for others, miracles can happen.
Thank you. Eileen