Category Archives: Prayer
Recently I was reading a discussion on face book with pros and cons about miracles of healing. Many vehemently rejected that a loving God would heal some and not others. I remembered my wonderful friend Bobbie. In her early forties she began to have trouble breathing, finally ending up in intensive care on a ventilator. After several specialists told her she was in the last stages of Idiopathic Pulmonary Fibrosis and would never be able to come off of the ventilator, she asked her family to agree to her stopping treatment, because she didn’t want to spend what little time she might have left in ICU on this machine. Her family didn’t want to do this. That night while Bobbie was in total despair, a woman she hadn’t seen before stopped to talk to her in ICU. She told Bobbie that God loved her and had a plan for her life. To accept God’s love expressed in Jesus and trust God and put her life totally in His hands. She went away and Bobbie never found out who she was, but Bobbie did what the woman said and experienced a love so great that she was able to put her life in God’s hands. Three days later she was home breathing perfectly on her own. She sought a church to try to learn more, since she hadn’t ever belonged to a church, She joined a small Episcopal church of mostly intellectuals. Bobbie was a loving person with great competence in practical things, but had married at 15 and never finished high school. Though she expressed frustration with the complex vocabulary of her fellow Episcopalians, Bobbie became the heart of that little church. She started a clothing give away for the poor. She planted a lovely meditation garden of flowers. She had the whole church over for cookouts. Then, she attended a Cursillo weekend retreat that helped her articulate the love she had experienced and she spent many hours helping with these weekend retreats and others at a near by retreat house. After almost a decade, Bobbie had a heart attack and spent a month in a distant military hospital healing from a by-pass operation that involved removing a large blood vessel from her thigh. Unfortunately, Bobbie’s leg became infected. So, she had to spend six more weeks in a hospital in a hyperbaric oxygen chamber daily, Though far from family through all this, Bobbie’s bright eyes and loving heart made many friends and helped others find hope each day. Some months after coming home healed and regaining her strength, Bobbie and her husband drove to Florida to visit their son. Bobbi began to have pain in her leg on the trip and when she returned had to have surgery for blood clots and a clogged artery in her leg. She ended up with her leg amputated above the knee. She struggled to get a good fit with a prosthetic leg. Once after attending the theater at our Renaissance Center, she asked me to carry the leg for her while she wheeled herself out, because of the pain. So, I carried her prosthetic leg over my shoulder like a gun and followed her to the car. Bobby had an incredible ability to laugh at herself and roll with the punches life gave her. She constantly amazed us with her joy in the midst of incredible challenges. But Bobbie had wounds from childhood that had left her with hard places in her heart. Bobbie had three older sisters and two older brothers. Her father was both an alcoholic and an abuser in every sense of the word. Bobby had survived by often hiding in a sun flower patch at the back of the yard. She hated her father and was glad he died in a fire. Bobbie loved being in her kitchen cooking for others. It was a bright room decorated with sunflowers. It was her safe place. Bobbie liked polishing the brass candles and cleaning the sanctuary at her church as she prayed and meditated. One day while doing this, she felt called to pray for grace to forgive her father. And suddenly, her heart softened and she was able to forgive her emotionally crippled father and even pray for him. She experienced other insights and emotional healing. Bobbie spent two months the next Christmas in the Hospital with multiple health issues and in a great deal of pain. I and other friends took turns spending the night with her, because she had fallen once and often it took so long to get her pain meds, that even never complaining Bobbie was in tears. So, one night when I stayed, I took her a small tape player with ear buds and spiritual music on it to help her get through the times of pain. Bobby had a kind of raspy voice and was not really vocally gifted at all. But in the middle of the night, I heard a lovely soprano voice singing songs of praise. It wasn’t the tapes, it was Bobbie singing along with them.
Bobby never gave up. With a little help she was even able to take up casting pots on a wheel. Her faith and her humor got her through many challenges. But as time passed, it was difficult to drive on her own and handle the wheel chair for the places a lot of walking would be needed. So she was shopping for a handicapped accessible van when she had a heart attack and died on the way to the hospital. Bobbie’s miraculous healing, conversion, years of helping others both concretely and spiritually, her own emotional and spiritual healing, and the ongoing physical illness and challenges she kept her faith and joy through are an incredible witness to the reality that both miracles and suffering are part of life and that with the love of God that is grace, faith and love can grow through it all.
I grew up living in apartments in large cities. From eight years of age until thirteen, I actually lived on the seventh floor of a ten story apartment building near downtown St. Louis. After I met and married a Tennessee boy at Rice University in Houston, Texas, we moved to Nashville where his parents had both a downtown apartment and a large weekend country house in a neighboring rural county.
As our own family grew, we spent more and more weekends at Birdsong, their hundred year old log house that now had all the modern conveniences, but still radiated the warmth and charm of a by-gone era. It was on a two hundred acre rural setting of both woods and fields with a river sized creek complete with waterfall and swimming hole. It also had fields of peonies, horses and barns, a pond, a replica of Fort Nashborough built for the grandchildren to play in and a historic ruin of a real civil war powder mill.
At first I followed my mother-in-law on excursions into the woods to look for Jack-in-the Pulpit and tiny delicate wild Iris with a city dweller’s fear and trepidation. “Snakes and ticks and poison ivy, oh my!” But after a new and deeper awakening to the reality of God, I began to fall in love with His creation from its obvious glories to its fascinating hidden world of tiny treasures.
When I was expecting my fifth child by Caesarian section along with a scheduled hysterectomy, my in-laws decided to sell Birdsong. They offered to trade us the main house, barn, the tenant house, pond and the thirty- five acres of creek front woods and fields in exchange for whatever we could make from selling our house. Not only did I covet Birdsong, but this was an incredibly good financial trade for us. Our house was a pleasant traditional two story, four bedroom house in walking distance of an excellent public school, but Birdsong was twice its size, historic, beautiful and uniqueThere was even a tenant house that we had been remodeling. After prayer and discussion, my husband and I decided this was the chance of a lifetime and we put our house on the market a month before Thanksgiving when our baby was due.
While I was in the hospital recuperating from my C-section and hysterectomy, our house sold with the agreement that the buyer could have possession by January 1st. To say the least, the move was a daunting prospect at Christmas time in my post-operative condition with a new baby and four other children under ten. But, it seemed like a miracle to sell so quickly for the price we were asking. Besides, I wanted Birdsong more than I had ever wanted anything. To top it off, my husband’s oldest brother had hired a baby nurse to stay with us for the first two weeks I was home. This was a perfect baby gift that would help us with the move considerably. The move just seemed meant to be.
Unfortunately, shortly after we got home from the hospital, we discovered that our baby, who was miserably unhappy both night and day, needed surgery for a painful strangulated hernia. Our wonderful baby nurse and I prayed together for healing for him. But instead, at the hospital the night before his surgery, an intern discovered that our baby also had a heart valve defect. It was obviously his first examination of a baby boy, since he didn’t think to protect his new Christmas tie from a tiny fountain of pee. Shaken by his discovery, but hoping his lack of experience had allowed him to be misled, I called my pediatrician, who managed to get there in fifteen minutes. After emergency tests, the surgeon and our pediatrician agreed that the heart defect didn’t appear life threatening and since it was the type that sometimes closed naturally, they went ahead with just the hernia surgery. It was a scary, stressful time of tears and exhaustion, but with many people joined in prayer for Tommy. After the unscheduled surgery there was only room for us in a four patient room. The spoiled princess part of me was distressed over having to be in a room with three other mothers and their crying babies, all of us sleeping on cots literally under our babies in their high metal cribs. But, I had hardly had any sleep since my surgeries, so when Tommy awoke hungry the first time in the wee hours after his surgery, I didn’t even wake up when he cried. The kindness of strangers touched me deeply, when I finally woke and discovered that the other mothers had fed him his bottle and rocked him tosleep, so I could sleep. It was a humbling glimpse of how false my priorities were.
The day we brought him home from his surgery, my in-laws came to visit and announced apologetically that they had accepted an offer for Birdsong, including the whole two hundred acres and all the smaller buildings . I was devastated. My heart felt literally broken and I recognized that coveting really is different from just wishing for something. Eventually, I accepted that God was trying to set me free.
But ending up two weeks before Christmas having no where to go after the following week was pretty much of a shock. At that day and time there were no condos or apartments in our neighborhood. Checking the papers and calling local realtors turned up nothing to rent while we tried to figure out what we wanted to do. I didn’t want the children to change schools mid-year, in case we decided to make the change to living in the country somewhere else than Birdsong. Available houses were as scarce in our school zone as apartments. After I had called the last realtor, I sat on the couch with tears flowing down my cheeks. The kind baby nurse, an older African American woman with seven grown children, sat down beside me and put her arm around my shoulders.
“What do you need exactly?” she asked.
I thought about not being able to drive or climb stairs for over four more weeks and answered, “A five bedroom, one story house in walking distance to our school to rent for nine months. That will give us time to decide where we want to live without our children having to change schools.”
She responded immediately with a smile, “All right, we’ll pray for exactly that and a can of oil.”
“A c-c-can of oil?” I stuttered.
“Yes,” she said, “We have to take the baby back to the doctor’s tomorrow, and I’m not comfortable driving your car and mine needs a can of oil.”
I tried not to look incredulous, as she began to pray very specifically. When she finished and we said, “Amen” together, she smiled cheerfully and went to get me a cup of coffee. As I sat there stunned, the doorbell rang. It was Sarah, a woman that I knew from the school’s Parent Association.
“Eileen,” she said,” I’m sorry to bother you. I hope I didn’t wake up the baby, but my car gets eccentric sometimes and it has stopped at the end of your driveway. Can I use your phone to get my mechanic to come?”
“Sure,” I replied, “If you’ll ask him to bring a can of oil.” After making her phone call, she joined me for coffee while we waited for the mechanic and the can of oil.
“I hear you’ve sold your house and are moving to the country,” she said.
“Well, yes and no. The move to the country fell through and I’m in something of a panic. I don’t want the children to have to change schools until we figure out where we want to live. And right now there is nothing available to rent around here.”
Sarah’s eyes lit up as she asked, “Do you know about the Keck’s house?”
“No, where is that?” I responded.
“It’s one street over and two houses down from you. You can see the back yard from here. They are going to the Philippines as missionaries for nine months. They are supposed to leave the first of January, if they can find a renter. They aren’t advertising, because they will be leaving their furniture and possessions and don’t want to rent to complete strangers.”
Breathless with my heart racing, I asked, “What is the house like?”
“It’s a one story with four bedrooms and a study, and a large den. It also has a wonderful yard and patio.”
I actually gasped in disbelief. “That would work perfectly for us and we have a large basement storage area at our office where we could easily store their things. That would probably be safer for their belongings and happier for our kids.”
It turned out that we had many mutual friends with the Kecks, so they were happy to rent to us. Dr. Keck taught theology at Vanderbilt and had a library of books that I read hungrily in the months we lived there.
So, three weeks later we moved a block away and after several months of looking for land in the country, we bought our own ‘hundred acre wood’ with a creek and hundreds of tiny wild Iris all along the banks. That fall, we moved into a marvelous house my husband had designed very specifically for us and in a county with a much better school system than where Birdsong was. Eventually, my husband moved his own business here to Dickson county
One of the best parts of this memory is the woman who prayed with me. She had raised seven children in serious poverty and mostly by herself, due to her husband’s dependence on alcohol. To her, I must have seemed like a spoiled affluent weakling, yet she cared about my problems and believed God would help me just as He had her when she needed it.
An important addendum to this story is about forgiving. I was grateful for my in laws’ original very generous offer, but they seemed oblivious to the challenges their change of plans presented for us and I was not feeling very kindly toward them. I still couldn’t drive, and our baby and I were both still recuperating. Christmas expenses and moving were draining our resources and as temperatures dropped along with my size, I needed a winter coat. As I was wondering how to solve this, my mother-in-law appeared at our door. She came in obviously in a hurry handing me a shopping bag, saying, “I was in Dillard’s buying underwear and saw this coat. You may not like it or need it, so you don’t have to keep it, but something just told me to buy this for you.” And there was the most beautiful coat I had ever seen. It was a perfect fit. She brushed away my thanks and hurried on to an appointment.
As I prayed for grace to forgive, I thought, If she can hear God in this, maybe God has a reason for all of it. And I was able to shift perspective, let go of coveting and start looking forward again, seeking God’s will without assuming I knew what His plan for us was. Time has made it clear that we were meant to start a totally different life . A few years later, another crisis of circumstances led to starting an architecture firm in our new area which has been once again a challenging, but grace filled, serendipity.
Sometimes, it seems to me, there are values that we accept when we tell the creative force behind all things that we want to be aligned with its highest purpose, then we become part of the flow with complex circumstances uniting to accomplish this in our lives. And the pattern is like a tapestry that we are part of, seeing only the crisscrossing mish-mosh of threads from our perspective, while a glorious work of art is emerging from a universal, eternal perspective.
(I do admit however, on a feeling level, it often feels like being grapes in a wine press! And God has very large feet. )
Four ways of being: Thinking,feeling, doing, creating.
Thinking usually involves questioning and problem solving.
Feeling, whether positive or negative, is usually in relationship to someone or something.
Doing often involves care taking of things or care giving of people.
Creating is about possibilities and may involve any or all of the other three.
Life involves all of these and though none of us does all of them equally well, I’ve noticed that through the stages of our lives we seem to eventually be challenged by life to develop in the areas we don’t have natural gifts for. This applies to our spiritual lives also.
At different times in my life I have found grace through very different resources. In my twenties I began to question my religious upbringing and for a few years I made the world and its pleasures my focus, but my questions finally took me on a journey of studying various religions in a search for meaning. Then in my thirties, a friend helped me begin to relate to Jesus, not only as a Savior and Lord, but as a best friend, and prayer became a conversation with him. Starting to read the scriptures to get to know him better brought them alive for me and I began to see their connections to even small things in my daily life. Gradually, they opened my eyes to the struggles of people around me and I began to recognize ways I could help them. Then to my consternation, the Scriptures ceased to speak to me and health issues kept me from helping others, but then rote prayer suddenly became my way to inner peace and a sense of the presence of God. Taking up art as a hobby continued to bring me the freedom to live in the present moment creatively. Somehow, all of these ways of being came together and I felt a hunger to share my sense of the love of God expressed in Jesus, the presence of God in all things, and our oneness with God and each other. That led me to worship where I could give what I call my sermons from the molehill at Sunday worship services. We are all on a Spiritual journey whether we know it of not. But it does not go in the same order or timing or tidy little stages for us. We are all different, so our journeys will be different. And the places best for us to grow and learn spiritually will be different. But I’ve become convinced that over our lives we will experience growth in all of these ways of being. And eventually we become able to recognize God in everything and each other. This is very oversimplified, but is the essence of what I’ve experienced in my spiritual journey.
It is a prayer of faith when someone struggling with depression continues to face each painful day by clinging to God even in their desert night.
The act of hope of parents who lose children and risk loving again is prayer given flesh.
The breadwinner who quietly quits their job rather than go along with corruption is a light on the path to the Kingdom of God.
Couples that struggle to forgive and rebuild relationships that have crumbled under human failure are living prayers of love.
The many sitting vigils at the foot of a suffering loved one write bright prayers across a winter sky of faith that does not have to see.
And when a rough hewn, weary farmer speaks softly of a moment when twilight mists in freshly mown fields fill his heart with awe, I see that, for that moment, creation and creator have become as one.
Perhaps the purest prayer of all is when an autumn breeze swirls golden leaves like sudden showers and a tiny toddler spontaneously and joyfully applauds. Then the praise of angels has touched us here on earth.
Prayers have flesh and bone and walk among us every day. There are myriad ways to pray.
“You can’t fill a cup that is already full. That means you can’t approach a new situation, relationship, or job with what you think you know will happen. When you do that, you’re not leaving room for the unexpected, the delightful, and even the miraculous. Try starting from a place of ‘Maybe I don’t know.’ It allows you to be open to something or someone being different from what you experienced in the past. When you approach life in this open way, you also allow the universe to conspire on your behalf. So be empty of expectations. The universe will always dream bigger than you will. Abundance comes when you realize that you can receive what you need-every day.” by Eden-Clark and John Germain Leto
This quote so speaks to my condition right now. One of the hardest things for me is to allow those I care about to hurt. I want to help them find joy even in times of suffering, both for themselves and partly for myself. But suffering is part of the fabric of life and brings opportunities for grace and each of us has our own way and timing for experiencing it and learning from it. And part of loving another person is allowing them to be themselves, even if we are totally convinced we know “better” ways to be. Not being able to help my husband accept the losses that come with his illness or to help him trust that death is only a doorway, not the end, is very painful. And feelings of inadequacy and failure easily become less painful when disguised as frustration and impatience. The quote at the beginning of this showed up as a memory on my face book page today reminding me that my way may not be the best way for someone else and to trust God who loves my husband more than I ever could.
I do relate this experience to Mary’s vigil at the foot of her son’s cross. She had tried to convince him to come home when she realized he was putting himself in danger. She must have struggled with anger when he wouldn’t listen, also with guilt that she had somehow failed him, and with unimaginable heartbreak as she watched him suffer.
In the quote at the beginning of this, I translate “Universe” as God. And however anyone understands salvation, I truly believe that Jesus showed us that this life is not all there is and that suffering has the potential to be redeeming.
And the most counter-intuitive truth he showed us about life was when he prayed from the cross, “Father, forgive them. They know not what they do.” He showed us that forgiveness is the ultimate requirement for love, so that we too can experience forgiveness. Because forgiving others and accepting and experiencing forgiveness are inseparable.
Forgiving others frees us to forgive ourselves, particularly when we have not been able to consciously admit we need forgiveness. We all have the self-righteous belief that our way is the totally right way. And that blinds us to the harm we do. Forgiving others for their blindness both frees and heals us.
Forgiving others is at the core of the command Jesus gave us, “Love one another as I have loved you,” because forgiveness is the very essence of Good Friday.
My prayer for all of us this Holy Week is that we will find the grace to admit the limits of both our own understanding and of everyone’s human blindness, freeing us to both forgive and accept forgiveness. So then, on Easter, we can celebrate the love of God expressed in Jesus and truly rejoice and be glad in it.
One of my favorite stories is about psychologists doing a study of pessimists and optimists. They put a young pessimist in a room with every imaginable toy. At first he happily tried out each toy, but soon he sat down crying. When they asked him, didn’t he like the toys, he sniffled “Yes.” But when asked why he was crying, he said, “They are very nice, but I know they will break. Toys usually do. I don’t want to enjoy them and then lose them.”
In the meantime the young optimist was in a room with just horse manure. To their surprise he was happily digging through the pile of manure. When asked why he was so happy, he answered enthusiastically, “With this much manure, there’s got to be a pony in here somewhere!”
I started 2017 with Lumbar Fusion Surgery followed by months of physical therapy, but still ending up in pain when bending and getting in and out of bed. All the bottom cabinets in our apartment are now pretty much unreachable for me. Since I’m short, the upper cabinets have always been out of reach, but now anything unbreakable is accessible with my new reacher. Though I’ve gotten fairly good at tilting things out with the reacher and catching them with my left hand, sometimes I start a chain reaction and all sorts of containers rain down on my head, the counter and the floor. As long as none break open, I just laugh and start over. However, the grits opening mid-air, provoked a different reaction. I’ll just leave it at that.
Shortly after surgery I awoke in the night unable to move my arms. I panicked thinking my arms were paralyzed, until I realized that the Velcro on my wrist braces for my carpal tunnel problem had locked onto the Velcro on my back brace. For a few minutes I thought I was going to have to wake Julian to help me, but I finally managed to get free. I think I did wake him with my laughter. Major blessings in the first several weeks of limited mobility and pain were Julian’s and all our family’s support and help and friends also brightening those days with tasty gifts of food. I felt very loved. And gained five pounds.
Some good news in April was that our Pulmonologist announced that my husband Julian’s Idiopathic Pulmonary Fibrosis had not progressed. But then, he informed us that the scans had shown a tumor in his right lung. The biopsy showed cancer cells, so surgery was scheduled. It was a very scary time. Thankfully, it only took minimally invasive surgery to get all the cancer. So far, in each three month checkup, he is still cancer free. Another blessing in this was his surgeon, who is one of the most intelligent, funny, honest, humble, caring people we have ever met. I told her once that we admired her greatly, particularly because she didn’t think she was God. She laughed and said that she had figured that out pretty early in her life.
However, at the age of eighty-one Julian was now terribly frustrated by how slow his recovery was. Just fourteen years ago he had bounced back pretty quickly from heart surgery. And just as he was finally getting back to work on several architectural jobs, his heart went out of rhythm. So, back to the hospital we went for a Cardiac Ablation. Unfortunately, though the ablation seemed successful, for unknown reasons he began to hemorrhage profusely. The two nurses with him began to take emergency measures to staunch the bleeding, but he was losing consciousness. So, while one lowered the head of the bed to get oxygen to his brain, the other nurse (a tall good looking blonde named Amy) climbed up on the bed to be able to put enough pressure on the incision in his groin to stop the bleeding until the emergency equipment got there. About that time Julian regained consciousness and asked in surprise, “Amy, are you getting in bed with me?” (Hope springs eternal…)
The pressure equipment slowed the bleeding, but a vascular surgeon was called in to do exploratory surgery to see if an artery had been perforated. None could be found even with extensive exploration. So, though the original ablation incision was small, the exploratory one was quite long. Julian now continued to bleed from both surgical sites in the groin area, with the bleeding only very slowly becoming less profuse. A one day stay in the hospital turned into eleven days and he was still leaking fluid with some blood from both sites when they sent us home. I, an eighty year old klutz, who had just had two cataract surgeries in the ten days before this, and had numb fingers and no grip because of carpal tunnel syndrome, would now be bandaging and cutting off bandages on the two adjoining surgical sites about three times a day. Purely through the grace of God, I managed not to do him any further damage and after about another ten days the two sites no longer needed bandages. Julian never admitted to trepidation, but his sigh of relief was quite audible when we finally got to stop playing doctor.
This was now late October. Once again age took its toll and recovery was even slower. Julian lost all appetite, began sleeping excessively, and being untypically sad and even somewhat surly. So, the doctor gave him “cheer up” meds. Lo and behold, he became amazingly energetic, funny and now smiling with a wonderful sparkle in his eyes. We were both delighted. (I considered asking for a prescription for myself.) Unfortunately, he then didn’t shut his eyes for five days and five nights, so the doctor had to switch the meds. With physical therapy he slowly regained some strength once more and began to work again on his much overdue architecture projects.
Suddenly, his legs and feet began to swell and turn bright red. The diagnosis was cellulitis, so now he was again on antibiotics, steroids and having to try to work on his computer with his feet propped up above his heart. I took a photo of this rather hazardous acrobatic endeavor, but wasn’t quite mean enough to post it on face book or my blog. Well….not yet.
The next day he had a meeting to attend on one of his projects. By now, he couldn’t even get his well worn moccasin house shoes on, so I drove him to Walmart to buy some larger backless black house shoes. Since it was raining, he wore socks with plastic grocery bags over them. He put the new shoes on at the checkout counter, but since one foot was swollen less than the other, to keep that shoe on when he walked, he had to sort of shuffle his way out to the car. Well, at least they matched the color of his suit.
Then just as he was beginning to get back to a somewhat diminished “normal,” he developed a horrendous cough and began to have to fight to breathe. We feared the fibrosis had flared up, but it appeared to be an inflammation, possibly because of drastic weather changes and a cold. Back on steroids and antibiotics again. Exhausted by fighting to breathe, he ended up bedridden for several weeks and once more with swollen feet. An unexpected blessing was a recently bought new sofa that was perfect for sleeping with elevated feet on wedges our Steve ordered. He slept there day and night with the remote to control the TV and a view of a flock of cardinals that hang out at the birdfeeders outside the French doors.
Slowly he began once more getting some strength back. But, suddenly while working quietly in his office in our apartment, he was almost paralyzed by extreme pain in his chest that radiated up into his jaw. I got him to the hospital in four minutes. It would have taken the ambulance that long to get to us. Eventually, as they were running tests, the pain subsided and the tests looked okay, but they kept him over night for an echo cardiogram. While waiting for a room, we did our usual survival by humor routine and one of the nurses asked, “You do realize this is an emergency?” We just laughed and said, “We’ve had so many medical emergencies in the last couple of years, we’ve decided that humor is the best survival medicine.”
His heart didn’t show any damage, so he got to go home the next day, but barely in time to change clothes to attend the Developmental Services Banquet. This is our community organization for those with mental handicaps. Julian designed several of their group homes and was a very active member on their board for seven years. For about twenty years he also gave them the monthly stipend he got for being on the City Zoning Appeals Board. Last year we were invited, but he ended up in the hospital so we didn’t make it. This year they gave me a heads up that he was supposed to be given the award he’d missed last year. I think we got there two minutes before it started. So in his suit and tie, wearing his very dilapidated, but fortuitously stretched from wear, moccasin house shoes, he received an award and a lot of affirmation. Many of the award winners were clients with disabilities who work as helpers in the group homes. I was touched by the wholehearted applause and cheering of the other clients. The award presentations were interspersed with Christmas music like, O Holy Night, and the elderly client sitting behind me knew the words to all of them perfectly, but not the tunes. But the sheer joy in her voice brought tears to my eyes as I realized that this too was an answer to my Advent Prayer, “Come, Lord Jesus.” I think Jesus is more visible in the handicapped than in the rest of us.
Our primary care doctor now scheduled Julian for an endoscopy to check for other possible causes for the pain that took us to the ER.
Meanwhile, our son Steve came from Atlanta to spend the weekend creating a wonderland with our collection of Dickens Village buildings, people in many different vignettes, animals, and trees and landmarks of London.
Julian directed this from the couch and it ended up with five levels of hills and valleys with bridges over chasms, a cave, and even a crime scene complete with crime scene tape that our son Tommy made and sneaked into the village a couple of years ago! Well after all, they had a lot of crime in Dickens day too. All the houses, churches, pubs and businesses have lights inside and the sheets of cotton snow cover the few empty patches outside. I think some zoning issues entered into the city planning also.
It really is both beautiful and interesting. And since it has grown to cover the whole end of the living room and now even continues around one corner, there’s no room inside for a Christmas tree. But outside one of the French doors, we have a small lighted one that looms large over the village. If you have to be sick, this is a lot better view than in the hospital. (Well, other than Amy the blonde nurse anyway.)
The next weekend our son Tommy and delightful Whitney with the awesomely beautiful voice brought our four granddaughters and they helped decorate the rest of the house. Then it was fun watching our talented artist granddaughters draw and getting to enjoy Whitney singing with Tommy accompanying her on the guitar. Another truly lovely Christmas experience.
Finally, Julian got to have his endoscopy which showed a pill had become lodged in his esophagus and caused an ulcer. A biopsy done to check for infection was negative. But now the challenge was to avoid the many delicious foods that irritate an ulcer.
A week before Christmas, nineteen of our family arrived for our annual Christmas gathering in a cabin at near-by Montgomery Bell State Park. Our grown children and grandchildren did most of the preparations and helped us organize and pack up our now downsized contributions. The cabin with its large stone fireplace and its wooded setting on a lake is a perfect place for a holiday gathering. The first day, Julian mostly rested, wrapped warmly in a comfortable recliner with everyone taking turns spending time with him and getting him things.
By the second day he felt well enough to be beaten at poker by both the grandchildren and great-grandchildren! It was a very happy day with even our grandson who teaches in Bolivia making it back in time. And we got to face-time our son Michael and his spouse Patrick in Cambodia, where they teach at an orphanage for children born HIV positive. I love that I have lived long enough to experience talking with and seeing our loved ones all the way across the world. In spite of all our challenges, it was a wonderful family Christmas celebration.
Christmas week, Julian’s blood pressure started vacillating wildly and he began to have severe chest pain from the ulcer in spite of taking nineteen different medicines each day! Unfortunately, all our doctors were out for a week of Christmas vacation. Adding to his misery, one of his new medicines made Julian very dizzy. He was walking to the bedroom and started to fall as he was almost to the king size bed. I was behind him and began to try to help him get to the bed. He started shouting, “Where’s the bed? Where’s the bed?” Because a week before he had had a sudden drastic loss of hearing, I thought he’d now gone blind! I managed to get him safely onto the bed and asked him if he could see it now and he snapped back, “Of course!” When I asked him why he couldn’t see it a moment before, he replied, “Because I had my eyes closed.” I had a sudden strong desire to strangle him, but fortunately my hands aren’t strong enough.
Now the sparkling lights of the village and the twinkling little tree outside and the bright red cardinals flaming around the feeders were still cheerfully visible over the rather large air purifier, the humidifier, and the walker. They could even be seen between the CPAP and Blood Pressure machine and various breathing aids on the rolling cart that we pulled next to the couch with its pyramid of wedges for elevating feet above the heart. The Christmas angels and burgundy candles around the tray with Julian’s nineteen medicines looked festive on the dining room table. I tried to convince Julian that a wreath of holly would keep his head warmer and add to the Christmassy atmosphere, but he wasn’t in the mood. I was tempted to dig out the left over “happy” pills and slip just a half of one in his milk, but it being the Holy Days, for once I resisted evil.
Julian now needed to not lie flat because of the ulcer and he still needed to keep his feet above the level of his heart. I suggested getting a hammock since our middles are our heaviest body area, both head and feet would then be high. But it’s already getting difficult to walk around the apartment, so Julian solved the problem by varying which end he raises with the wedges over the day and night. The other challenge is a diet healthy for his heart, esophagus, and feet. Low salt, low fat, low fiber, no spices, no tomato products, no dairy for two hours before and after a pill he takes twice a day, no caffeine, carbonation, citrus or anything acidic or alcoholic. And the steroids are making his sugar count so high that the frequent tears in his very thin skin won’t heal. So, low sugar also. I spent about three hours grocery shopping during the busiest shopping season of the year reading the contents of everything. But it’s a saving grace to have our son Chris living nearby and willing to come stay while I have to be gone. He and Julian share many interests and it seems to not only be a bright spot in those days for Julian, but to be bringing them much closer to one another. And the many kindnesses of our family and friends have touched Julian’s heart, helping him see how loved he is.
Our newest great-grandson, Raphael, who had a difficult birth on November 15th, didn’t breathe until they resuscitated him. He stayed in the hospital for ten days on a ventilator and needing medicines for seizures. But the neurologist said he could not believe the second brain scans taken at five days old were of the same child as the ones they took the first day. The neurologist actually called it a miracle. Raphael is a beautiful baby and now at two months has a marvelous wide smile. Though we may not know the extent of possible damage for some time, he has many many people praying for him even on the other side of the world. And he is already tenderly loved by all of us. They live in North Carolina, but we get to see photos and videos of him almost daily on face book. And they drove from North Carolina to Tennessee just for four days so his grands and great- grands could get to meet him. So, as 2018 began, I got to hold him and kiss his tiny feet and see him smile and hear his laughter. What a wonderful beginning for a new year.
A beneficial side effect for me of helping Julian through all this has been my regaining stamina and managing a lot of physical activity with very little pain. And in spite of relieving some of the stress by standing at the kitchen counter in the middle of the night eating half a peach pie and another time six jelly doughnuts mysteriously disappearing in two days, I haven’t gained weight.
When someone is in pain, whether physical or emotional, they are focused on the pain, and the small things that keep relationships pleasant are no longer a priority. Through most of our marriage, I have been high maintenance and Julian has been very low maintenance. There have been rough moments for both of us in adjusting to such an extreme change in that now. He doesn’t like to need help and I have always wanted a lot of it. He’s never been comfortable expressing unpleasant feelings. And I don’t really know how to help him, because I worked hard over the years to learn how to deal with my emotions without garbage dumping them on him. So, in spite of being married over half a century, we are still awkward in areas of our relationship. Sometimes, I feel like at eighty years of age, I’m still an amateur person.
Humor has been our glue and in many ways it is still our saving grace. But in this stage of our life, the challenge is to learn how to love across our differences in ways that help us relate heart to heart.
Last week, the doctor explained that a lot of the ongoing illnesses are side effects of some of the medicines that so far are keeping him able to breathe. So Julian is beginning to deal with the reality that his life is not going to get better. In fact, it will be a constant challenge to keep it from getting worse.
It’s a scary and sad time for both of us. Sometimes when he is sleeping, I feel like my heart is breaking and when I let myself cry, I’m afraid I will never be able to stop. Our family and our friends at church have been incredibly loving and supportive. And I find grace by reliving joyful memories of our fifty-nine years together. Julian suddenly lost a lot more of his hearing around Christmas. His expensive hearing aids made his ears itch so he never wore them. But now communication is much more difficult. A friend with similar problems has found something that has helped him and he is bringing it for Julian to try, so I am hopeful that soon we will be able to enjoy reliving those memories together.
Eileen and Julian in the South West of France 2015
One of the blessings of old age is a treasury of wonderful memories.
A warped sense of humor is also a great help.