A Halloween Riot

I taught first and second grade in a four room Catholic School in a small country town. On Fridays the parish priest came after lunch to teach religion to my class.
Halloween was on Friday my first year there and since we were having a party after the religion class, I conspired with him for me to come bursting in dressed and made up as a witch, screeching scarily. I didn’t think to warn anyone else.
It seems I am a very scary witch. When I slammed open the door doing my witch thing, it set off a panic. Some children dived under their desks, others knocked over desks trying to get into our fully stuffed supply closet, and one or two even climbed up on the windowsills. Every child was screaming at the top of their lungs.
Their older brothers and sisters immediately fought their way out of the other class rooms to rescue their screaming younger siblings. They totally filled the central hall blocking the other teachers (and the principal) in their classrooms.
For a few moments it was total chaos!
Then order was restored, no one was hurt, the children were calmed and consoled. And my class forgave me, because all the teachers called it quits on classes for the day, and we had an extra-long Halloween party.
I wonder if now that they are grown, do the children remember and laugh? Or do they still have nightmares of their teacher turning into a witch?

The Church of Devout Cowardice

Early in life I became a member of the Church of Devout Cowardice. Physical pain and I were not friends. This devotion was reinforced in my late twenties when a friend, who tried unsuccessfully to shame me into joining her group on a ski trip, actually broke her leg getting off the lift on her first trip up the mountain. This definitely confirmed for me that “Avoid all risks” should be the first commandment of all true believers of the Church of Devout Cowardice.
In my late fifties, a painful problem with my feet put me in a wheelchair. In spite of this challenge, I could not resist taking advantage of free air transportation to travel with my husband and the son working for an airline that flew to Europe.
Even though I could walk short distances, castles and palaces and forts were generally not handicapped accessible. My son suggested checking out catapults, but I demurred.
While we were on an innocuous Sound of Music day tour in Austria, the bus stopped to allow the foolhardy to ride down the side of a mountain on a sled with wheels in a long shallow metal track. My son, obviously having inherited none of my antipathy to pain genes, decided to try it out. I sat in my wheel chair on the loading dock as he got into a sled built for two.
Suddenly, a wild thought occurred to me. “I’m already in pain and a wheelchair, what have I got to lose?”
Before my Wus self could talk me out of it, I stood up and said, “Wait! I’m coming with you.” And clambered on as the worker started the sled down the metal track.
I was in front where the hand brake was and as we began to hurtle down the mountain, my instinct for survival kicked in and I tugged desperately on the brake handle causing it to slow. But, at this point, a nine or ten-year-old boy coming behind us began to tailgate and my son took charge of the brake. I scrunched my eyes tightly shut as we seemed to become airborne. As much as I wanted to scream in terror, I couldn’t risk it, since either my heart or my lunch was in my throat.
I offered God my first-born son (not the one with airline privileges), if He would save me from certain excruciating pain. When we came around the last curve and began slowing down, I peeked out with one eye. There was my husband looking as terror stricken as I felt. As he helped me out and into my wheelchair, he asked anxiously, “Are you all right? How was it?”
“Piece of cake,” I replied through gritted teeth. I never told him that I meant my dessert from lunch

The Hundred Acre Weed and Rock Sanctuary

My husband and I both grew up in the city, so our move to our own hundred acre paradise was a lot like the old TV series, Green Acres. Dreamer that I am, I had a vision of a bountiful garden, horses, chickens, maybe a cow or two.
My husband did not share this vision.
The kids bought into the animals, but not the garden part. But, by using the art of friendly persuasion, bribes, I got them all to pitch in and with the help of neighbors with a tractor and plow, we put in a half acre garden that first spring living in the wilds.
It turned out that all those delightful forest animals the children enjoyed finding and watching, are not a gardener’s friends. We began to learn the fine art of warring with nature. Reading magazines on being earth friendly, I fought the potato slugs with jar lids filled with beer. Humans are not the only creatures led to their downfall by alcohol. Evil though it may seem, since the beer actually dissolves the slugs, I convinced myself that they died happy.
Unfortunately, since we had an early drought and our garden was not near a water source, the only vegetables to survive were the potatoes. Go figure, my maiden name was O’Leary. We had mashed potatoes, fried potatoes, baked potatoes, boiled potatoes, hash-brown potatoes, and eventually smelly rotten potatoes. So the next spring we put in a garden about half that size , closer to a water source.
We did not plant potatoes.
This time we lost most of the lettuce and carrots to rabbits, but when the drought came, my visiting apartment bred brother got into the back to nature spirit and hauled buckets of water to save the tomatoes. The deer greatly appreciated his efforts.
The third year, I planted a tiny garden right outside our master bedroom’s sliding glass doors next to a hose bib. I added shiny tin pie plates and wind chimes to discourage nature’s predators lurking in the surrounding woods. I figured that I could stand in my bedroom door in my robe holding a hose to water the cucumbers, tomatoes, and carrots. Still reading my nature friendly magazines, I used their recipe for a free safe fertilizer called manure tea, which I made by steeping fresh horse manure in buckets of water.
Unfortunately, I didn’t think about our house having huge attic fans and walls of sliding glass doors instead of air conditioning. Fermented manure tea spread all around outside our bedroom quickly made rotting potatoes seem like perfume.
Though our tiny garden produced gigantic cucumbers and tomatoes and enough of everything for us, our neighbors, city friends, and all the deer and rabbits within miles, a week of sleeping in midsummer heat with all the windows and doors closed, also fermented a rebellion among my family. My husband and five children took a vote. Their unaminous decision was that it wasn’t going to be our hundred acre farm. It was going to be our hundred acre weed and rock sanctuary.
I gave in graciously, since I had finally figured out that when all our farmer neighbors got tired of canning and freezing, they were exceptionally generous with their surplus.

Finding the Gold in the Golden Years

Whatever time is left

Use it up

Wear it down

Regardless how thin

The fabric becomes

It is rich with the sounds

Of laughter

Salty with tears and

Friends.

(From the poem Time on the blog: poetry, photos, and musings, oh my – by lea)

Six years ago, my ninety-one year old friend Barbara, who was on a walker from a painful hip surgery, expressed her despair from feeling useless. But as we shared lattes with a friend in her mid sixties, who had slow growing cancer, we laughingly imagined walkers for us like baby walkers with crinoline skirts to hide them, and small secret Porta-Potties built in. Then, in the parking lot as we attempted to help Barbara into the van, somehow she got stuck bent over half way in. We tried to gently boost her backside without hurting her hip, until the giggles overtook us. Frozen in place, the three of us laughed helplessly, humor overcoming even our fears of age weakened bladders. When I called Barbara the next morning to make sure she hadn’t been hurt, she started laughing all over again, insisting she had been laughing all morning just thinking about it, and even wished we had a photograph.

The next day, I visited my friend with dementia in a nursing home in Nashville. She had once again dreamed of her parents’ death as a present day event and had awakened overwhelmed by loss and frantic about funeral arrangements. Each time she grieved anew, I could only hold her hand and ache for her endless losses. But later, seeing the wonder in her eyes, when she listened to me telling one of the caregivers about her courage and faith and her kindness to so many in her life, I recognized a moment of grace even in the now worn fabric of our lives.

The following day, my alarm went off three hours too early and I had the coffee made before I finally noticed the actual time. Later, I realized on my first stop of the day, that I had my coat on inside out. That night at a my sister-in-law’s eightieth birthday celebration in an upscale restaurant, I somehow managed on my second trip to the bathroom, to go into the men’s room. Then when leaving, I couldn’t find my coat check number in my tiny purse. Since I don’t drink, I couldn’t even blame it on something temporary. At least it’s fodder for a blog post.

The Gold in the Golden Years are our friendships and shared memories, but perhaps most of all, the freedom to laugh at ourselves. Laughter is carbonated grace.

Wishing all of you a joyous Christmas season filled with laughter. Eileen

God and the Whiners

An imaginary story of God’s conversations with his best bud, Adam, and then more of God hanging out with various generations of Adam’s descendants through the ages. Adam is sitting around with God admiring God’s handiwork. Adam: Wow, God, this is a nice job you’ve done. Particularly this sex thing. That’s great. Thanks for thinking of it! God: Well, there’s another side to it. Sex creates new life, so you can fill the earth with people who will be my partners in creation Adam: Gosh, that will take a lot of women to do that. I better find me some more wives. God: And you better collect a lot more goats and sheep to feed all those wives and children. Generations later: Descendant: God, we’ve got a problem, we can’t keep dragging all these wives and children around with droughts everywhere. God: From now on just choose one wife, find water, and till the land. A later Descendant: God, we’ve got a problem. We’re getting a lot of cast off older wives who are starving. God: In this day, men must take responsibility for women and children. You must no longer cast off wives for new wives. Choose carefully, because you are stuck with the first one. Another Generation whiners : God, we are running out of good arable land and it’s causing constant wars. God: Okay, you can slow down on the procreating. Whiner: But, God, we men must work hard all day and come home to whining wives and children. Surely, you aren’t telling us to give up our one delight? God: I gave you a brain. Figure it out. And start taking one day in seven just for being thankful. I’m also tired of all the whining. New Descendant: God, women are getting pushy. When we go to war, they have to take over at home. When we come home they complain about the way we run things. Some even think they could run things better. Like maybe sitting around crying would solve the world’s problems! God: Well, it might cut down on wars. New Descendant: But, it won’t put food on the table or send the kids to college. God: I’ve given women the luxury of developing the gift of relationships. Technology has freed humanity from the heavy lifting. Women are now needed in the workplace to bring their gifts of nurturing into the larger world. It’s time for nurture to be valued as much as achieving. It is time for power over to become power for others, for ALL others. I am doing a new thing. Modern Man: God, these days it’s hard to tell women and men apart. And men are loving men and women are loving women. What’s with that? God: I know you are not going to like this, but life just isn’t about differences. In My world there is no male or female, no slave or master, no favored people, no favored religion, no favored nation. Life is about learning to love. The most advanced school for that is marriage, a monogamous intimate committed relationship. Haven’t you caught on why I still make sex so enjoyable, even when I don’t need you to keep procreating to fill the earth? Sex has the power to draw people into a stable relationship that can free them to risk being vulnerable in loving. It’s the appetizer, not the main course. Modern Man: God, this Women working thing is really a bummer. Now they expect us to take care of the kids ad do chores at home. God: Shared responsibility for both survival and nurture can bring balance to relationships and society. Dependency and need are not love. Neither is control. I created human beings with the capacity to love one another as I love you. My love is the healing, nurturing, challenging, life changing, sacrificial love that does not have limits or borders. I fleshed it out for you in Jesus. Modern Man: Well, Jesus wasn’t married. God: It is time for humanity to grow up. You keep missing the point. The greed that is destroying the world will lose its power when humanity recognizes that my love is for all. No exceptions. And that you are called to be the channels of my love for the world. God: Hear my plea! I am asking you to accept my love and let it fill you until the joy of being loved overflows to all those you encounter without being blocked by judgement or fear.

Another Truth I Didn’t Want to Hear

Though I’ve lived long enough to have had to face what a flawed human being I am,
I have still clung to the thought that I have a few traits that I’ve always considered virtues,                                                                                                                                                                          forgetting that everything has a flip side.

One is that I don’t tend to gossip.

Another is that I outgrew getting laughs at others’ expense
fairly early in life and turned my need to be humorous onto myself.

On face book the other day, someone had put one of those truisms people like to collect.

This one made me cringe.

” There’s a plus side to egocentric people.
Since they only talk about themselves, they don’t
tend to gossip about others.”

Ouch!

Does God Heal?

Recently I was reading a discussion on face book with pros and cons about miracles of healing. Many vehemently rejected that a loving God would heal some and not others. I remembered my wonderful friend Bobbie. In her early forties she began to have trouble breathing, finally ending up in intensive care on a ventilator. After several specialists told her she was in the last stages of Idiopathic Pulmonary Fibrosis and would never be able to come off of the ventilator, she asked her family to agree to her stopping treatment, because she didn’t want to spend what little time she might have left in ICU on this machine. Her family didn’t want to do this. That night while Bobbie was in total despair, a woman she hadn’t seen before stopped to talk to her in ICU. She told Bobbie that God loved her and had a plan for her life. To accept God’s love expressed in Jesus and trust God and put her life totally in His hands. She went away and Bobbie never found out who she was, but Bobbie did what the woman said and experienced a love so great that she was able to put her life in God’s hands. Three days later she was home breathing perfectly on her own. She sought a church to try to learn more, since she hadn’t ever belonged to a church, She joined a small Episcopal church of mostly intellectuals. Bobbie was a loving person with great competence in practical things, but had married at 15 and never finished high school. Though she expressed frustration with the complex vocabulary of her fellow Episcopalians, Bobbie became the heart of that little church. She started a clothing give away for the poor. She planted a lovely meditation garden of flowers. She had the whole church over for cookouts. Then, she attended a Cursillo weekend retreat that helped her articulate the love she had experienced and she spent many hours helping with these weekend retreats and others at a near by retreat house. After almost a decade, Bobbie had a heart attack and spent a month in a distant military hospital healing from a by-pass operation that involved removing a large blood vessel from her thigh. Unfortunately, Bobbie’s leg became infected. So, she had to spend six more weeks in a hospital in a hyperbaric oxygen chamber daily, Though far from family through all this, Bobbie’s bright eyes and loving heart made many friends and helped others find hope each day. Some months after coming home healed and regaining her strength, Bobbie and her husband drove to Florida to visit their son. Bobbi began to have pain in her leg on the trip and when she returned had to have surgery for blood clots and a clogged artery in her leg. She ended up with her leg amputated above the knee. She struggled to get a good fit with a prosthetic leg. Once after attending the theater at our Renaissance Center, she asked me to carry the leg for her while she wheeled herself out, because of the pain. So, I carried her prosthetic leg over my shoulder like a gun and followed her to the car. Bobby had an incredible ability to laugh at herself and roll with the punches life gave her. She constantly amazed us with her joy in the midst of incredible challenges. But Bobbie had wounds from childhood that had left her with hard places in her heart. Bobbie had three older sisters and two older brothers. Her father was both an alcoholic and an abuser in every sense of the word. Bobby had survived by often hiding in a sun flower patch at the back of the yard. She hated her father and was glad he died in a fire. Bobbie loved being in her kitchen cooking for others. It was a bright room decorated with sunflowers. It was her safe place. Bobbie liked polishing the brass candles and cleaning the sanctuary at her church as she prayed and meditated. One day while doing this, she felt called to pray for grace to forgive her father. And suddenly, her heart softened and she was able to forgive her emotionally crippled father and even pray for him. She experienced other insights and emotional healing. Bobbie spent two months the next Christmas in the Hospital with multiple health issues and in a great deal of pain. I and other friends took turns spending the night with her, because she had fallen once and often it took so long to get her pain meds, that even never complaining Bobbie was in tears. So, one night when I stayed, I took her a small tape player with ear buds and spiritual music on it to help her get through the times of pain. Bobby had a kind of raspy voice and was not really vocally gifted at all. But in the middle of the night, I heard a lovely soprano voice singing songs of praise. It wasn’t the tapes, it was Bobbie singing along with them.
Bobby never gave up. With a little help she was even able to take up casting pots on a wheel. Her faith and her humor got her through many challenges. But as time passed, it was difficult to drive on her own and handle the wheel chair for the places a lot of walking would be needed. So she was shopping for a handicapped accessible van when she had a heart attack and died on the way to the hospital. Bobbie’s miraculous healing, conversion, years of helping others both concretely and spiritually, her own emotional and spiritual healing, and the ongoing physical illness and challenges she kept her faith and joy through are an incredible witness to the reality that both miracles and suffering are part of life and that with the love of God that is grace, faith and love can grow through it all.

The Variety of Grief

I once heard a very kind priest friend say of a well-known priest author, “That man has never had a thought he didn’t feel he had to express.” I was a momentarily taken aback, because my friend was a very kind man who never said anything negative about anyone. I realized then that he was expressing the same mystification most introverts must feel about extroverts. Of course, extroverts frequently misinterpret introverts’ silence and need for privacy as dislike or disinterest or even distrust.
After years of studying and working with the Myers/Briggs Type Indicator, I have admitted that I don’t really know what I think about something until I manage to express it in words. And verbal dialogue is also intrinsic to my sense of relationship. I’ve learned that this is not only problematic for introverts that live or work with me, but often downright irritating.
Luckily, I have lived long enough to experience the wonderful outlet of the internet. I can express and hear myself in print at any hour of the day or night. And no one has to listen unless they want to and only when it’s convenient for them and only as long as they wish. And the introverts don ‘t have to say anything unless they feel like it and even then, all they have to do is hit one key to make a response.
Recently, I’ve been experiencing life changing challenges and I really do need to explore my feelings and insights by expressing them. Also, I think it’s possible that my describing what I’m feeling and learning may be some help to someone else out there. And happily, if not, they don’t need to waste their time reading what I write.
One of the challenges I am still facing is that we really do differ in our ways of dealing with grief. No matter how many stages are described as general, we don’t experience or work through them all the same. Partly because of differences in personality, but also because of many different factors about the way a loved one died, the timing for them and us, and past experiences with our own grief and others’ ways of grieving.
My husband was like a cat with nine lives. When I read back over his medical history, he came through so many close calls with death, I lose count. And in the last few years he fought valiantly with cardiac issues with stents and a pacemaker, AFIB, Idiopathic Pulmonary Fibrosis, successful surgery for a malignant tumor in his lung, a return of lung cancer that was inoperable and that spread beyond the lungs as stage 4 cancer, stage 3 Kidney disease…..all of which weakened him too much to risk chemo therapy. He was in and out of ER’s, hospitalizations of various lengths up to two weeks several times, and finally five months in a nursing home, first attempting through therapy to get strong enough for chemo, then failing that, for nursing care and hospice.
We have five grown children who have been simply awesome in their active care giving and support through all of this. And each of them is grieving in their own way now. And I have realized that not all of them are finding my way easy to understand.
To begin with, I generally live in the future of possibilities, both negative and positive ones. In other words, I worry way ahead of things, but I also like to explore new ways of being happy or productive or creative or loving.
When my husband was diagnosed with IPF over two years ago and I learned it was incurable, fatal, and a horrible way to die, I began to worry and pray that he would be spared that death. Of course, heart failure seemed a much better way to die, but with a pacemaker, less likely. My husband’s strongest trait was perseverance. When he grew weaker and no longer able to work effectively at what he loved, he became stressed and began to have some memory issues.
Finally he had to admit that he could no longer continue working. Now he was suffering anxiety attacks, frequent pneumonia and bronchial infections, then surgery to remove a tumor in his right lung, and then cellulitis contracted during a hospitalization, and finally kidney issues and depression. The physical and emotional stress affected him in many ways and by the time he entered the nursing home with stage 4 cancer, he simply wasn’t the strong silent gentle man that I had lived with for almost sixty years.
I did not love him less. I loved him more. And I gladly learned how to take care of many of his medical needs. But long before he could accept that he was dying, I began to work through my fears, experience loneliness, take over unfamiliar tasks, and try in many ways to prepare for having to survive on my own.
The wonderful physical, financial, and emotional support our five children gave us helped me to do this. And my faith and the amazing love and faith of caregivers at the nursing home lifted me out of my darkest moments. And the nurses and support staff of Hospice were able to help me anticipate and understand the rapid changes that were happening toward the end. The dying need very different things than those who are able to try to get well.
Some of the influences on my way of dealing with the loss of my husband were my tendency to anticipate and plan ahead, my deepest fear of his having to suffer terribly fighting to breathe, my having seen my very strong mother simply close down when my father died totally unexpectedly at fifty-two, watching her die by inches with Alzheimer’s for fourteen years, but particularly my many experiences of grace and glimpses of meaning in my own and sometimes others’ suffering over my eighty-one years.
I have usually dealt with short crises fairly well. It’s been the long haul attrition kind of things that could defeat me. So, over the two and a half years of constant crises, I have learned to watch for beauty, kindness, love, tiny joys like sunshine and flowers and birds and small kindnesses and laughter. I see these as grace, as the gentle touches of God. They are all around us every day if we watch for them. They seem small in the face of death of one we love, but they are myriad.
I am a weak person, easily overwhelmed by too many practical details and emotionally vulnerable to the unexpected blow. Having a large caring family help me deal with details has been an incredible blessing. Having time and medical personnel who have been down this road before me to help me understand each phase softened each blow. The blessing of the final gentle pain free death from his heart stopping before his having to fight to breathe has kept me from despair.
At times the reality that he will never be with me again in this life feels heart breaking and overwhelms me. But so far, at least, it has not robbed me of gratitude for my caring family, of healing laughter, hope for creativity in my life, the energy to try to keep reasonably functional, or my many memories of the love and joy my husband gave me.

Zip Codes in Heaven?

I had a fun blessing this morning.

The other day when exhausted, I attempted to close my husband Julian’s RX account with the Medicare medicine insurance. I didn’t have the correct number in reach and the recorded voice kept saying “I can’t understand your answer and kept asking for the same thing over and over, even after I kept answering, “He died.” Finally, I shouted, “Go to hell!” and hung up. Needless to say, the recording was unimpressed. Today, I started over, with the attitude that I was too tired to do anything else, so sitting down arguing with recordings was as good a way as any to spend this day.  I at least had one of the magical thirteen digit numbers, so I finally got to speak to a person. After explaining that I wanted to close my husband’s account because he had died and thanking the woman for her condolences, she asked, “What is his zip code?” Of course, I couldn’t resist that. When I replied, “I don’t think they have zip codes in heaven,” there was a profound silence, followed by a smothered giggle.  I rescued her by apologizing and admitting that I just could not resist that.
After that we quickly developed a rapport, so she apologized profusely each of the six times she put me on hold and I cheerfully told her it was fine, their music was lovely and I didn’t want to do anything today anyway. \And actually the music was lovely and soothing and during one protracted wait, I found myself kind of floating around in my head thinking about the oneness of all things and that the Spirit is in each of us and we are all in the spirit, and everything is one whether in this life or elsewhere and I actually felt close to Julian and comforted. Who knew? Attitude is everything.
Anyway, when she came back to tell me she needed to transfer me to someone with Medicare, I was very mellow and thought that was great, because I needed to call them anyway.
The transfer presented challenges however and at one point she and I both thought we had been disconnected. But what once was lost, now was found and we parted friends forever and I got a new person and new music. We played the “on hold” game for a while and then she announced cheerfully that she was going to transfer me to a live person. That made me wonder about her for a moment, but in the spirit of cooperation, I assured her that I definitely had a preference for alive people.

2017: Armageddon or There’s Got to be a Pony in it Somewhere?

One of my favorite stories is about psychologists doing a study of pessimists and optimists. They put a young pessimist in a room with every imaginable toy. At first he happily tried out each toy, but soon he sat down crying. When they asked him, didn’t he like the toys, he sniffled “Yes.” But when asked why he was crying, he said, “They are very nice, but I know they will break. Toys usually do. I don’t want to enjoy them and then lose them.”
In the meantime the young optimist was in a room with just horse manure. To their surprise he was happily digging through the pile of manure. When asked why he was so happy, he answered enthusiastically, “With this much manure, there’s got to be a pony in here somewhere!”

I started 2017 with Lumbar Fusion Surgery followed by months of physical therapy, but still ending up in pain when bending and getting in and out of bed. All the bottom cabinets in our apartment are now pretty much unreachable for me. Since I’m short, the upper cabinets have always been out of reach, but now anything unbreakable is accessible with my new reacher. Though I’ve gotten fairly good at tilting things out with the reacher and catching them with my left hand, sometimes I start a chain reaction and all sorts of containers rain down on my head, the counter and the floor. As long as none break open, I just laugh and start over. However, the grits opening mid-air, provoked a different reaction. I’ll just leave it at that.

Shortly after surgery I awoke in the night unable to move my arms. I panicked thinking my arms were paralyzed, until I realized that the Velcro on my wrist braces for my carpal tunnel problem had locked onto the Velcro on my back brace. For a few minutes I thought I was going to have to wake Julian to help me, but I finally managed to get free. I think I did wake him with my laughter. Major blessings in the first several weeks of limited mobility and pain were Julian’s and all our family’s support and help and friends also brightening those days with tasty gifts of food. I felt very loved. And gained five pounds.

Some good news in April was that our Pulmonologist announced that my husband Julian’s Idiopathic Pulmonary Fibrosis had not progressed. But then, he informed us that the scans had shown a tumor in his right lung. The biopsy showed cancer cells, so surgery was scheduled. It was a very scary time. Thankfully, it only took minimally invasive surgery to get all the cancer. So far, in each three month checkup, he is still cancer free. Another blessing in this was his surgeon, who is one of the most intelligent, funny, honest, humble, caring people we have ever met. I told her once that we admired her greatly, particularly because she didn’t think she was God. She laughed and said that she had figured that out pretty early in her life.

However, at the age of eighty-one Julian was now terribly frustrated by how slow his recovery was. Just fourteen years ago he had bounced back pretty quickly from heart surgery. And just as he was finally getting back to work on several architectural jobs, his heart went out of rhythm. So, back to the hospital we went for a Cardiac Ablation. Unfortunately, though the ablation seemed successful, for unknown reasons he began to hemorrhage profusely. The two nurses with him began to take emergency measures to staunch the bleeding, but he was losing consciousness. So, while one lowered the head of the bed to get oxygen to his brain, the other nurse (a tall good looking blonde named Amy) climbed up on the bed to be able to put enough pressure on the incision in his groin to stop the bleeding until the emergency equipment got there. About that time Julian regained consciousness and asked in surprise, “Amy, are you getting in bed with me?” (Hope springs eternal…)

The pressure equipment slowed the bleeding, but a vascular surgeon was called in to do exploratory surgery to see if an artery had been perforated. None could be found even with extensive exploration. So, though the original ablation incision was small, the exploratory one was quite long. Julian now continued to bleed from both surgical sites in the groin area, with the bleeding only very slowly becoming less profuse. A one day stay in the hospital turned into eleven days and he was still leaking fluid with some blood from both sites when they sent us home. I, an eighty year old klutz, who had just had two cataract surgeries in the ten days before this, and had numb fingers and no grip because of carpal tunnel syndrome, would now be bandaging and cutting off bandages on the two adjoining surgical sites about three times a day. Purely through the grace of God, I managed not to do him any further damage and after about another ten days the two sites no longer needed bandages. Julian never admitted to trepidation, but his sigh of relief was quite audible when we finally got to stop playing doctor.

This was now late October. Once again age took its toll and recovery was even slower. Julian lost all appetite, began sleeping excessively, and being untypically sad and even somewhat surly. So, the doctor gave him “cheer up” meds. Lo and behold, he became amazingly energetic, funny and now smiling with a wonderful sparkle in his eyes. We were both delighted. (I considered asking for a prescription for myself.) Unfortunately, he then didn’t shut his eyes for five days and five nights, so the doctor had to switch the meds. With physical therapy he slowly regained some strength once more and began to work again on his much overdue architecture projects.

Suddenly, his legs and feet began to swell and turn bright red. The diagnosis was cellulitis, so now he was again on antibiotics, steroids and having to try to work on his computer with his feet propped up above his heart. I took a photo of this rather hazardous acrobatic endeavor, but wasn’t quite mean enough to post it on face book or my blog. Well….not yet.

The next day he had a meeting to attend on one of his projects. By now, he couldn’t even get his well worn moccasin house shoes on, so I drove him to Walmart to buy some larger backless black house shoes. Since it was raining, he wore socks with plastic grocery bags over them. He put the new shoes on at the checkout counter, but since one foot was swollen less than the other, to keep that shoe on when he walked, he had to sort of shuffle his way out to the car. Well, at least they matched the color of his suit.

Then just as he was beginning to get back to a somewhat diminished “normal,” he developed a horrendous cough and began to have to fight to breathe. We feared the fibrosis had flared up, but it appeared to be an inflammation, possibly because of drastic weather changes and a cold. Back on steroids and antibiotics again. Exhausted by fighting to breathe, he ended up bedridden for several weeks and once more with swollen feet. An unexpected blessing was a recently bought new sofa that was perfect for sleeping with elevated feet on wedges our Steve ordered. He slept there day and night with the remote to control the TV and a view of a flock of cardinals that hang out at the birdfeeders outside the French doors.

Slowly he began once more getting some strength back. But, suddenly while working quietly in his office in our apartment, he was almost paralyzed by extreme pain in his chest that radiated up into his jaw. I got him to the hospital in four minutes. It would have taken the ambulance that long to get to us. Eventually, as they were running tests, the pain subsided and the tests looked okay, but they kept him over night for an echo cardiogram. While waiting for a room, we did our usual survival by humor routine and one of the nurses asked, “You do realize this is an emergency?” We just laughed and said, “We’ve had so many medical emergencies in the last couple of years, we’ve decided that humor is the best survival medicine.”

His heart didn’t show any damage, so he got to go home the next day, but barely in time to change clothes to attend the Developmental Services Banquet. This is our community organization for those with mental handicaps. Julian designed several of their group homes and was a very active member on their board for seven years. For about twenty years he also gave them the monthly stipend he got for being on the City Zoning Appeals Board. Last year we were invited, but he ended up in the hospital so we didn’t make it. This year they gave me a heads up that he was supposed to be given the award he’d missed last year. I think we got there two minutes before it started. So in his suit and tie, wearing his very dilapidated, but fortuitously stretched from wear, moccasin house shoes, he received an award and a lot of affirmation. Many of the award winners were clients with disabilities who work as helpers in the group homes. I was touched by the wholehearted applause and cheering of the other clients. The award presentations were interspersed with Christmas music like, O Holy Night, and the elderly client sitting behind me knew the words to all of them perfectly, but not the tunes. But the sheer joy in her voice brought tears to my eyes as I realized that this too was an answer to my Advent Prayer, “Come, Lord Jesus.”  I think Jesus is more visible in the handicapped than in the rest of us.

Our primary care doctor now scheduled Julian for an endoscopy to check for other possible causes for the pain that took us to the ER.

Meanwhile, our son Steve came from Atlanta to spend the weekend creating a wonderland with our collection of Dickens Village buildings, people in many different vignettes, animals, and trees and landmarks of London.

 

Julian directed this from the couch and it ended up with five levels of hills and valleys with bridges over chasms, a cave, and even a crime scene complete with crime scene tape that our son Tommy made and sneaked into the village a couple of years ago! Well after all, they had a lot of crime in Dickens day too. All the houses, churches, pubs and businesses have lights inside and the sheets of cotton snow cover the few empty patches outside. I think some zoning issues entered into the city planning also.
It really is both beautiful and interesting. And since it has grown to cover the whole end of the living room and now even continues around one corner, there’s no room inside for a Christmas tree. But outside one of the French doors, we have a small lighted one that looms large over the village. If you have to be sick, this is a lot better view than in the hospital. (Well, other than Amy the blonde nurse anyway.)

The next weekend our son Tommy and delightful Whitney with the awesomely beautiful voice brought our four granddaughters and they helped decorate the rest of the house. Then it was fun watching our talented artist granddaughters draw and getting to enjoy Whitney singing with Tommy accompanying her on the guitar. Another truly lovely Christmas experience.

Finally, Julian got to have his endoscopy which showed a pill had become lodged in his esophagus and caused an ulcer. A biopsy done to check for infection was negative. But now the challenge was to avoid the many delicious foods that irritate an ulcer.

A week before Christmas, nineteen of our family arrived for our annual Christmas gathering in a cabin at near-by Montgomery Bell State Park. Our grown children and grandchildren did most of the preparations and helped us organize and pack up our now downsized contributions. The cabin with its large stone fireplace and its wooded setting on a lake is a perfect place for a holiday gathering. The first day, Julian mostly rested, wrapped warmly in a comfortable recliner with everyone taking turns spending time with him and getting him things.

Granddaughter Sophie sharing her hopes and dreams with Julian

By the second day he felt well enough to be beaten at poker by both the grandchildren and great-grandchildren! It was a very happy day with even our grandson who teaches in Bolivia making it back in time. And we got to face-time our son Michael and his spouse Patrick in Cambodia, where they teach at an orphanage for children born HIV positive. I love that I have lived long enough to experience talking with and seeing our loved ones all the way across the world. In spite of all our challenges, it was a wonderful family Christmas celebration.

Christmas week, Julian’s blood pressure started vacillating wildly and he began to have severe chest pain from the ulcer in spite of taking nineteen different medicines each day! Unfortunately, all our doctors were out for a week of Christmas vacation. Adding to his misery, one of his new medicines made Julian very dizzy. He was walking to the bedroom and started to fall as he was almost to the king size bed. I was behind him and began to try to help him get to the bed. He started shouting, “Where’s the bed? Where’s the bed?” Because a week before he had had a sudden drastic loss of hearing, I thought he’d now gone blind! I managed to get him safely onto the bed and asked him if he could see it now and he snapped back, “Of course!” When I asked him why he couldn’t see it a moment before, he replied, “Because I had my eyes closed.” I had a sudden strong desire to strangle him, but fortunately my hands aren’t strong enough.

Now the sparkling lights of the village and the twinkling little tree outside and the bright red cardinals flaming around the feeders were still cheerfully visible over the rather large air purifier, the humidifier, and the walker. They could even be seen between the CPAP and Blood Pressure machine and various breathing aids on the rolling cart that we pulled next to the couch with its pyramid of wedges for elevating feet above the heart. The Christmas angels and burgundy candles around the tray with Julian’s nineteen medicines looked festive on the dining room table. I tried to convince Julian that a wreath of holly would keep his head warmer and add to the Christmassy atmosphere, but he wasn’t in the mood. I was tempted to dig out the left over “happy” pills and slip just a half of one in his milk, but it being the Holy Days, for once I resisted evil.

 

Village for a Hospital Room

Julian now needed to not lie flat because of the ulcer and he still needed to keep his feet above the level of his heart. I suggested getting a hammock since our middles are our heaviest body area, both head and feet would then be high. But it’s already getting difficult to walk around the apartment, so Julian solved the problem by varying which end he raises with the wedges over the day and night. The other challenge is a diet healthy for his heart, esophagus, and feet. Low salt, low fat, low fiber, no spices, no tomato products, no dairy for two hours before and after a pill he takes twice a day, no caffeine, carbonation, citrus or anything acidic or alcoholic. And the steroids are making his sugar count so high that the frequent tears in his very thin skin won’t heal. So, low sugar also. I spent about three hours grocery shopping during the busiest shopping season of the year reading the contents of everything. But it’s a saving grace to have our son Chris living nearby and willing to come stay while I have to be gone. He and Julian share many interests and it seems to not only be a bright spot in those days for Julian, but to be bringing them much closer to one another. And the many kindnesses of our family and friends have touched Julian’s heart, helping him see how loved he is.

Our newest great-grandson, Raphael, who had a difficult birth on November 15th, didn’t breathe until they resuscitated him. He stayed in the hospital for ten days on a ventilator and needing medicines for seizures. But the neurologist said he could not believe the second brain scans taken at five days old were of the same child as the ones they took the first day. The neurologist actually called it a miracle. Raphael is a beautiful baby and now at two months has a marvelous wide smile. Though we may not know the extent of possible damage for some time, he has many many people praying for him even on the other side of the world. And he is already tenderly loved by all of us. They live in North Carolina, but we get to see photos and videos of him almost daily on face book. And they drove from North Carolina to Tennessee just for four days so his grands and great- grands could get to meet him. So, as 2018 began, I got to hold him and kiss his tiny feet and see him smile and hear his laughter. What a wonderful beginning for a new year.

A beneficial side effect for me of helping Julian through all this has been my regaining stamina and managing a lot of physical activity with very little pain. And in spite of relieving some of the stress by standing at the kitchen counter in the middle of the night eating half a peach pie and another time six jelly doughnuts mysteriously disappearing in two days, I haven’t gained weight.

When someone is in pain, whether physical or emotional, they are focused on the pain, and the small things that keep relationships pleasant are no longer a priority. Through most of our marriage, I have been high maintenance and Julian has been very low maintenance. There have been rough moments for both of us in adjusting to such an extreme change in that now. He doesn’t like to need help and I have always wanted a lot of it. He’s never been comfortable expressing unpleasant feelings. And I don’t really know how to help him, because I worked hard over the years to learn how to deal with my emotions without garbage dumping them on him. So, in spite of being married over half a century, we are still awkward in areas of our relationship. Sometimes, I feel like at eighty years of age, I’m still an amateur person.

Humor has been our glue and in many ways it is still our saving grace. But in this stage of our life, the challenge is to learn how to love across our differences in ways that help us relate heart to heart.

Last week, the doctor explained that a lot of the ongoing illnesses are side effects of some of the medicines that so far are keeping him able to breathe. So Julian is beginning to deal with the reality that his life is not going to get better. In fact, it will be a constant challenge to keep it from getting worse.

It’s a scary and sad time for both of us. Sometimes when he is sleeping, I feel like my heart is breaking and when I let myself cry, I’m afraid I will never be able to stop. Our family and our friends at church have been incredibly loving and supportive. And I find grace by reliving joyful memories of our fifty-nine years together. Julian suddenly lost a lot more of his hearing around Christmas.  His expensive hearing aids made his ears itch so he never wore them.  But now communication is much more difficult. A friend with similar problems has found something that has helped him and he is bringing it for Julian to try, so I am hopeful that soon we will be able to enjoy reliving those memories together.

Some Memories

Mike Julian Eileen in Los Angeles

Eileen and Julian in the South West of France 2015

Julian at Tommy’s

Bella and Julian at Hospital

One of the blessings of old age is a treasury of wonderful memories.

A warped sense of humor is also a great help.