I Am Not You

The first thing you should know about me is that I am not you. A lot more will make sense after that. (Melissa Skidmore)

A scripture that has echoed through my mind over the years is the one about getting the log out of our own eyes, instead of judging others. The problem with that is that the log in our eyes keeps us from seeing ourselves. We ALL have blind spots when it comes to seeing our whole selves.

Years ago I began to work with a personality indicator called the Myers/Briggs Type Indicator ( MBTI.)  It was spooky to take it and then read the description of my way of being in the world. How could anyone know those things!!

The MBTI helped me become more aware not only that we come into the world with very different ways of being, seeing, understanding, valuing and responding, but that the world needs all of these diverse ways of being.  It also needs us to become aware not only of our gifts, but of our blind spots. That’s the only way every ones’ gifts can be valued and work together for good.

The MBTI years ago when I studied and taught it, focused on affirming our gifts. So kind of naturally many of us just focused with relief on our own gifts, not realizing the importance of “gifts differing.” And not using the knowledge to rid ourselves of our blind spots.  Belatedly, I recognized that there’s a built in pattern of growth in us where we become more receptive to the gifts we did not have and usually did not value equally to our own natural ones.

There’s a catch to this. To develop in the area opposite to our strongest gift or way of being in the world requires dying temporarily to our own way of being and seeing.  It’s a dying to self. Technically, the MBTI doesn’t make any religious claims or statements. But let me tell you, this dying to our most valued gift is a real part of becoming whole, of becoming the best person we have the potential to be.

Unfortunately, dying to our “selves” is never easy or comfortable. By my age, I have seen creative people bog down in misery when their gifts seem to have dried up. I have myself panicked during a time that the Scriptures no longer spoke to me. I have heard others panic when ritual or their life long way of praying no longer works for them. But, I have also seen accountants become “creative” in good ways, artists learn to keep accounts, and engineers open their eyes and hearts to the mystical.

What I have witnessed and experienced convinces me that the universe is designed for opportunities and challenges to come our way at a time in our life when we are called to die to our strongest gift and become not only more balanced and whole, but more humble, and thus more understanding of those “others” that we have judged harshly most of our life.

What I found through sixty years of living with a man who was totally different in every area of being from me, is that only by becoming free to understand and value opposite ways of seeing and being in the world do we become free to truly and humbly love.

Recently I discovered that in the twenty years since I worked with it, the MBTI has been further developed in ways that help this process. It begins by helping us become aware of and accepting of our way of being in the world.  Then, it can also help us accept that our way is a gift to the world, but it isn’t enough.  We then begin to see how this dying to self can free us to become whole or “holy” and better able to understand and truly value BOTH ourselves and those who are very different from us.  It isn’t either/or.  And no way is better, because no way is whole without the others.

Many years ago I was taking a turn preaching to a sizable group of Directors of Religious Education from very diverse denominations at a training week for DRE’s. I was going to use Paul’s scriptures on the Body of Christ and how all of the parts were equally important. As I was reflecting on this scripture, suddenly in my mind’s eye I saw a figure coming toward me.  It was coming very slowly and jerkily, because the legs were clumsily, tripping over each other and the arms were flying in different directions and the head twisting back and forth.  My immediate response was horror. “This is what we have done to the Body of Christ!”  And I cried out, “Lord, what can I do?” And into my mind, clear as a warning bell I heard, “Admit what you can’t do.”   As I have grappled with many aspects of this challenge over the years, two things have become clear to me,  One: The world needs all of us, different political thinking, different religious understandings, different cultures’ values, gender traits, racial strengths, talents, skills, on and on and on.  And  Two:  Only the grace of each of us truly knowing ourselves and knowing with heart and mind that we are loved as we are by God, can we become humble enough to love those very different others, just as we are loved.  And that is the only way we can ever live in peace. We need all of us.

The MBTI isn’t gospel.  But it can be an amazingly helpful tool for knowing ourselves better, and coming to value ourselves in a way that allows us to equally value others who seem completely different from us.

There’s a site on line called “16personalities.com that offers greater understanding of “going with the flow” of our developing selves until the day we die. I am finding it both challenging and helpful in learning to go with the flow of scary changes becoming opportunities for my new life at eighty-one as a widow.

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Sixty Years

 

Julian (Tuffy) and Eileen

Tuffy
Young, tender, vulnerable.
Funny and fun loving.
A crooked boyish smile.
Blue eyes with a Christmas morning sparkle.
Slow dancing, holding me gently, like I was fragile and precious.                                                                                                                                                                                                                    Love poems before we ever even kissed.                                                                                                                                                                                                                                                Dozens of roses and one time a black orchid.
Cutting in at dances when I went with someone else.
Dancing, I only come up to his chin.
I often ask: “Are you still up there?”
And every time he answers: “Always.”
And he meant it.

Through Memories
I look at you through memories
of running in the rain,
of funny children’s stories
and haunted Halloweens.
Of how you learned to hold me
and simply let me cry,
listening to my fears
to heal me of my fright.

 

 

 

 

 

Of you overcoming phobias,
so I wouldn’t be alone
while camping in the woods
or giving talks on Type.
Of nightmare trips in broken cars
and cabins full of scouts,
houses filled with strangers
and jeep rides in the night.
Letters shared in parking lots
and rooms full of  golden flowers,
the kaleidoscope of memories
that fill my heart with love.

 

 

 

Psalm of Fifty-eight Years

All these years of tenderness and love,                                                                                                                                                                                                                                                            of fears and frustration and laughter
there has been you.
Your love has always been my strength                                                                                                                                                                                                                                                            because I knew you would be with me,                                                                                                                                                                                                                                                            any where I went.                                                                                                                                                                                                                                                                                            Now, in this new heartbreaking time                                                                                                                                                                                                                                                              of fearing the ocean of loneliness that lies ahead.                                                                                                                                                                                                                                            I struggle to let go, to set you free,                                                                                                                                                                                                                                                                to not make it harder to accept whatever comes.                                                                                                                                                                                                                                          Grace comes at night when I turn to God ,                                                                                                                                                                                                                                                        who has been with us always in both the pain and joy.                                                                                                                                                                                                                                    Then I know we’ll be together once more                                                                                                                                                                                                                                                        with tenderness, and laughter, and love                                                                                                                                                                                                                                                            at home with God.

 

 

I Miss You
In the silent nighttime loneliness,
even in the sunshine’s warmth
and cheerful chatter of the birds,
there’s still an emptiness.
I miss you.
I even miss your morning frown
from reading that day’s news,
when I would try to get a smile
by showing you the comic strips.
I miss your laugh.
In the busyness of daily chores
I often turn toward your door
to ask you someone’s number,
then catch myself, suddenly in tears
from missing you.
You always were so softly quiet,
I’d wonder if you’d gone out.
Yet silence now is so profound,
it has the very solemn sound
of sorrow.
On Fridays, our party night,
I fix our usual picnic supper
and find my favorite TV show,
but you’re not here to snuggle.
I miss your snore.
Even church is not the same.
I keep waiting for you to come
and fill the empty spot beside me.
Then my tears begin to blind me,
because I miss you.
I remember that I complained
about how little we just talked.
Now, it would seem enough
If I could just hold your hand.
I miss you so.
I ‘m truly happy you now have joy.
I trust there’s a reason I’m still here
and that grace will get me through
until we’re together once more.
But I still miss you.

 

 

The Prayers of Our Lives

It is a prayer of faith when someone struggling with depression continues to face each painful day by clinging to God even in their desert night.
The act of hope of parents who lose children and risk loving again is prayer given flesh.
The breadwinner who quietly quits their job rather than go along with corruption is a light on the path to the Kingdom of God.
Couples that struggle to forgive and rebuild relationships that have crumbled under human failure are living prayers of love.
The many sitting vigils at the foot of a suffering loved one write bright prayers across a winter sky of faith that does not have to see.
And when a rough hewn, weary farmer speaks softly of a moment when twilight mists in freshly mown fields fill his heart with awe, I see that, for that moment, creation and creator have become as one.
Perhaps the purest prayer of all is when an autumn breeze swirls golden leaves like sudden showers and a tiny toddler spontaneously and joyfully applauds. Then the praise of angels has touched us here on earth.
Prayers have flesh and bone and walk among us every day. There are myriad ways to pray.

The Variety of Grief

I once heard a very kind priest friend say of a well-known priest author, “That man has never had a thought he didn’t feel he had to express.” I was a momentarily taken aback, because my friend was a very kind man who never said anything negative about anyone. I realized then that he was expressing the same mystification most introverts must feel about extroverts. Of course, extroverts frequently misinterpret introverts’ silence and need for privacy as dislike or disinterest or even distrust.
After years of studying and working with the Myers/Briggs Type Indicator, I have admitted that I don’t really know what I think about something until I manage to express it in words. And verbal dialogue is also intrinsic to my sense of relationship. I’ve learned that this is not only problematic for introverts that live or work with me, but often downright irritating.
Luckily, I have lived long enough to experience the wonderful outlet of the internet. I can express and hear myself in print at any hour of the day or night. And no one has to listen unless they want to and only when it’s convenient for them and only as long as they wish. And the introverts don ‘t have to say anything unless they feel like it and even then, all they have to do is hit one key to make a response.
Recently, I’ve been experiencing life changing challenges and I really do need to explore my feelings and insights by expressing them. Also, I think it’s possible that my describing what I’m feeling and learning may be some help to someone else out there. And happily, if not, they don’t need to waste their time reading what I write.
One of the challenges I am still facing is that we really do differ in our ways of dealing with grief. No matter how many stages are described as general, we don’t experience or work through them all the same. Partly because of differences in personality, but also because of many different factors about the way a loved one died, the timing for them and us, and past experiences with our own grief and others’ ways of grieving.
My husband was like a cat with nine lives. When I read back over his medical history, he came through so many close calls with death, I lose count. And in the last few years he fought valiantly with cardiac issues with stents and a pacemaker, AFIB, Idiopathic Pulmonary Fibrosis, successful surgery for a malignant tumor in his lung, a return of lung cancer that was inoperable and that spread beyond the lungs as stage 4 cancer, stage 3 Kidney disease…..all of which weakened him too much to risk chemo therapy. He was in and out of ER’s, hospitalizations of various lengths up to two weeks several times, and finally five months in a nursing home, first attempting through therapy to get strong enough for chemo, then failing that, for nursing care and hospice.
We have five grown children who have been simply awesome in their active care giving and support through all of this. And each of them is grieving in their own way now. And I have realized that not all of them are finding my way easy to understand.
To begin with, I generally live in the future of possibilities, both negative and positive ones. In other words, I worry way ahead of things, but I also like to explore new ways of being happy or productive or creative or loving.
When my husband was diagnosed with IPF over two years ago and I learned it was incurable, fatal, and a horrible way to die, I began to worry and pray that he would be spared that death. Of course, heart failure seemed a much better way to die, but with a pacemaker, less likely. My husband’s strongest trait was perseverance. When he grew weaker and no longer able to work effectively at what he loved, he became stressed and began to have some memory issues.
Finally he had to admit that he could no longer continue working. Now he was suffering anxiety attacks, frequent pneumonia and bronchial infections, then surgery to remove a tumor in his right lung, and then cellulitis contracted during a hospitalization, and finally kidney issues and depression. The physical and emotional stress affected him in many ways and by the time he entered the nursing home with stage 4 cancer, he simply wasn’t the strong silent gentle man that I had lived with for almost sixty years.
I did not love him less. I loved him more. And I gladly learned how to take care of many of his medical needs. But long before he could accept that he was dying, I began to work through my fears, experience loneliness, take over unfamiliar tasks, and try in many ways to prepare for having to survive on my own.
The wonderful physical, financial, and emotional support our five children gave us helped me to do this. And my faith and the amazing love and faith of caregivers at the nursing home lifted me out of my darkest moments. And the nurses and support staff of Hospice were able to help me anticipate and understand the rapid changes that were happening toward the end. The dying need very different things than those who are able to try to get well.
Some of the influences on my way of dealing with the loss of my husband were my tendency to anticipate and plan ahead, my deepest fear of his having to suffer terribly fighting to breathe, my having seen my very strong mother simply close down when my father died totally unexpectedly at fifty-two, watching her die by inches with Alzheimer’s for fourteen years, but particularly my many experiences of grace and glimpses of meaning in my own and sometimes others’ suffering over my eighty-one years.
I have usually dealt with short crises fairly well. It’s been the long haul attrition kind of things that could defeat me. So, over the two and a half years of constant crises, I have learned to watch for beauty, kindness, love, tiny joys like sunshine and flowers and birds and small kindnesses and laughter. I see these as grace, as the gentle touches of God. They are all around us every day if we watch for them. They seem small in the face of death of one we love, but they are myriad.
I am a weak person, easily overwhelmed by too many practical details and emotionally vulnerable to the unexpected blow. Having a large caring family help me deal with details has been an incredible blessing. Having time and medical personnel who have been down this road before me to help me understand each phase softened each blow. The blessing of the final gentle pain free death from his heart stopping before his having to fight to breathe has kept me from despair.
At times the reality that he will never be with me again in this life feels heart breaking and overwhelms me. But so far, at least, it has not robbed me of gratitude for my caring family, of healing laughter, hope for creativity in my life, the energy to try to keep reasonably functional, or my many memories of the love and joy my husband gave me.

Heartbreak with A Rainbow of Memories

November 6, 2018 A sad morning, but much gratitude that Julian, my husband of almost sixty years, did not have physical pain. I was able to hold his hand and tell him I love him as we listened to the lovely song he wrote at The Meadows. Then he quietly quit breathing as his heart stopped. Tonight children, grandchildren, and a great-grandson gathered to chose photos of joyful times with him to celebrate his life and love. There was much shared laughter at wonderful and funny memories punctuated by moments of tearful awareness of our loss. As hard as this year has been, my worst fears never happened and there were moments of beauty, joy, and love sprinkled generously through it all. I am very blessed.

“It’s hard to be green!”

Sometimes I get a glimpse of a tiny pattern that reinforces my belief that life has a pattern of purpose.

As an extrovert I don’t necessarily think well, but I think fast. And I used to walk fast, talk fast, and respond quickly to stimuli that I was interested in. My husband Julian as an introvert drove me crazy by having to mull over the smallest decisions and by being so fastidious and careful with what I thought of as unimportant detail, so causing me to always be waiting impatiently on him.

Well, I’ve never focused on physical details. How my babies survived is a witness to the reality of guardian angels. Now, here I am.  Me, as Julian’s caregiver, bandaging very painful wounds with complicated modern layers of bandages that do different things. Cutting off bandages near wounds. Wrapping tape around gauze to keep bandages on without putting tape directly on very fragile skin.  Getting it tight enough to stay on without putting pressure on the tender places. Not always remembering to place layers and tools strategically so when holding something in place on the wound, I can reach them. Then realizing from the deep sighs that my klutzy slowness is driving him crazy!

Everything I am needing to do right now from filling out government forms with dates and numbers and long forgotten details about health issues is something Julian has always done, because I am so bad at them. And even when he doesn’t sigh or visibly shake his head, I can tell watching him try to explain something some hospital or government agency thinks is important, but makes no sense to me, makes him want to scream.

Now, I’m convinced that part of life really is having to walk in the other guy’s shoes, particularly the one completely different from you, that you mentally judged over and over.

There have certainly been times where I have felt or been inadequate, but I was always pretty good at avoiding situations where it was hard being me. The easiest way was to simply not value those things in life.

Lot’s of luck, guys. Life catches up with you!

2017: Armageddon or There’s Got to be a Pony in it Somewhere?

One of my favorite stories is about psychologists doing a study of pessimists and optimists. They put a young pessimist in a room with every imaginable toy. At first he happily tried out each toy, but soon he sat down crying. When they asked him, didn’t he like the toys, he sniffled “Yes.” But when asked why he was crying, he said, “They are very nice, but I know they will break. Toys usually do. I don’t want to enjoy them and then lose them.”
In the meantime the young optimist was in a room with just horse manure. To their surprise he was happily digging through the pile of manure. When asked why he was so happy, he answered enthusiastically, “With this much manure, there’s got to be a pony in here somewhere!”

I started 2017 with Lumbar Fusion Surgery followed by months of physical therapy, but still ending up in pain when bending and getting in and out of bed. All the bottom cabinets in our apartment are now pretty much unreachable for me. Since I’m short, the upper cabinets have always been out of reach, but now anything unbreakable is accessible with my new reacher. Though I’ve gotten fairly good at tilting things out with the reacher and catching them with my left hand, sometimes I start a chain reaction and all sorts of containers rain down on my head, the counter and the floor. As long as none break open, I just laugh and start over. However, the grits opening mid-air, provoked a different reaction. I’ll just leave it at that.

Shortly after surgery I awoke in the night unable to move my arms. I panicked thinking my arms were paralyzed, until I realized that the Velcro on my wrist braces for my carpal tunnel problem had locked onto the Velcro on my back brace. For a few minutes I thought I was going to have to wake Julian to help me, but I finally managed to get free. I think I did wake him with my laughter. Major blessings in the first several weeks of limited mobility and pain were Julian’s and all our family’s support and help and friends also brightening those days with tasty gifts of food. I felt very loved. And gained five pounds.

Some good news in April was that our Pulmonologist announced that my husband Julian’s Idiopathic Pulmonary Fibrosis had not progressed. But then, he informed us that the scans had shown a tumor in his right lung. The biopsy showed cancer cells, so surgery was scheduled. It was a very scary time. Thankfully, it only took minimally invasive surgery to get all the cancer. So far, in each three month checkup, he is still cancer free. Another blessing in this was his surgeon, who is one of the most intelligent, funny, honest, humble, caring people we have ever met. I told her once that we admired her greatly, particularly because she didn’t think she was God. She laughed and said that she had figured that out pretty early in her life.

However, at the age of eighty-one Julian was now terribly frustrated by how slow his recovery was. Just fourteen years ago he had bounced back pretty quickly from heart surgery. And just as he was finally getting back to work on several architectural jobs, his heart went out of rhythm. So, back to the hospital we went for a Cardiac Ablation. Unfortunately, though the ablation seemed successful, for unknown reasons he began to hemorrhage profusely. The two nurses with him began to take emergency measures to staunch the bleeding, but he was losing consciousness. So, while one lowered the head of the bed to get oxygen to his brain, the other nurse (a tall good looking blonde named Amy) climbed up on the bed to be able to put enough pressure on the incision in his groin to stop the bleeding until the emergency equipment got there. About that time Julian regained consciousness and asked in surprise, “Amy, are you getting in bed with me?” (Hope springs eternal…)

The pressure equipment slowed the bleeding, but a vascular surgeon was called in to do exploratory surgery to see if an artery had been perforated. None could be found even with extensive exploration. So, though the original ablation incision was small, the exploratory one was quite long. Julian now continued to bleed from both surgical sites in the groin area, with the bleeding only very slowly becoming less profuse. A one day stay in the hospital turned into eleven days and he was still leaking fluid with some blood from both sites when they sent us home. I, an eighty year old klutz, who had just had two cataract surgeries in the ten days before this, and had numb fingers and no grip because of carpal tunnel syndrome, would now be bandaging and cutting off bandages on the two adjoining surgical sites about three times a day. Purely through the grace of God, I managed not to do him any further damage and after about another ten days the two sites no longer needed bandages. Julian never admitted to trepidation, but his sigh of relief was quite audible when we finally got to stop playing doctor.

This was now late October. Once again age took its toll and recovery was even slower. Julian lost all appetite, began sleeping excessively, and being untypically sad and even somewhat surly. So, the doctor gave him “cheer up” meds. Lo and behold, he became amazingly energetic, funny and now smiling with a wonderful sparkle in his eyes. We were both delighted. (I considered asking for a prescription for myself.) Unfortunately, he then didn’t shut his eyes for five days and five nights, so the doctor had to switch the meds. With physical therapy he slowly regained some strength once more and began to work again on his much overdue architecture projects.

Suddenly, his legs and feet began to swell and turn bright red. The diagnosis was cellulitis, so now he was again on antibiotics, steroids and having to try to work on his computer with his feet propped up above his heart. I took a photo of this rather hazardous acrobatic endeavor, but wasn’t quite mean enough to post it on face book or my blog. Well….not yet.

The next day he had a meeting to attend on one of his projects. By now, he couldn’t even get his well worn moccasin house shoes on, so I drove him to Walmart to buy some larger backless black house shoes. Since it was raining, he wore socks with plastic grocery bags over them. He put the new shoes on at the checkout counter, but since one foot was swollen less than the other, to keep that shoe on when he walked, he had to sort of shuffle his way out to the car. Well, at least they matched the color of his suit.

Then just as he was beginning to get back to a somewhat diminished “normal,” he developed a horrendous cough and began to have to fight to breathe. We feared the fibrosis had flared up, but it appeared to be an inflammation, possibly because of drastic weather changes and a cold. Back on steroids and antibiotics again. Exhausted by fighting to breathe, he ended up bedridden for several weeks and once more with swollen feet. An unexpected blessing was a recently bought new sofa that was perfect for sleeping with elevated feet on wedges our Steve ordered. He slept there day and night with the remote to control the TV and a view of a flock of cardinals that hang out at the birdfeeders outside the French doors.

Slowly he began once more getting some strength back. But, suddenly while working quietly in his office in our apartment, he was almost paralyzed by extreme pain in his chest that radiated up into his jaw. I got him to the hospital in four minutes. It would have taken the ambulance that long to get to us. Eventually, as they were running tests, the pain subsided and the tests looked okay, but they kept him over night for an echo cardiogram. While waiting for a room, we did our usual survival by humor routine and one of the nurses asked, “You do realize this is an emergency?” We just laughed and said, “We’ve had so many medical emergencies in the last couple of years, we’ve decided that humor is the best survival medicine.”

His heart didn’t show any damage, so he got to go home the next day, but barely in time to change clothes to attend the Developmental Services Banquet. This is our community organization for those with mental handicaps. Julian designed several of their group homes and was a very active member on their board for seven years. For about twenty years he also gave them the monthly stipend he got for being on the City Zoning Appeals Board. Last year we were invited, but he ended up in the hospital so we didn’t make it. This year they gave me a heads up that he was supposed to be given the award he’d missed last year. I think we got there two minutes before it started. So in his suit and tie, wearing his very dilapidated, but fortuitously stretched from wear, moccasin house shoes, he received an award and a lot of affirmation. Many of the award winners were clients with disabilities who work as helpers in the group homes. I was touched by the wholehearted applause and cheering of the other clients. The award presentations were interspersed with Christmas music like, O Holy Night, and the elderly client sitting behind me knew the words to all of them perfectly, but not the tunes. But the sheer joy in her voice brought tears to my eyes as I realized that this too was an answer to my Advent Prayer, “Come, Lord Jesus.”  I think Jesus is more visible in the handicapped than in the rest of us.

Our primary care doctor now scheduled Julian for an endoscopy to check for other possible causes for the pain that took us to the ER.

Meanwhile, our son Steve came from Atlanta to spend the weekend creating a wonderland with our collection of Dickens Village buildings, people in many different vignettes, animals, and trees and landmarks of London.

 

Julian directed this from the couch and it ended up with five levels of hills and valleys with bridges over chasms, a cave, and even a crime scene complete with crime scene tape that our son Tommy made and sneaked into the village a couple of years ago! Well after all, they had a lot of crime in Dickens day too. All the houses, churches, pubs and businesses have lights inside and the sheets of cotton snow cover the few empty patches outside. I think some zoning issues entered into the city planning also.
It really is both beautiful and interesting. And since it has grown to cover the whole end of the living room and now even continues around one corner, there’s no room inside for a Christmas tree. But outside one of the French doors, we have a small lighted one that looms large over the village. If you have to be sick, this is a lot better view than in the hospital. (Well, other than Amy the blonde nurse anyway.)

The next weekend our son Tommy and delightful Whitney with the awesomely beautiful voice brought our four granddaughters and they helped decorate the rest of the house. Then it was fun watching our talented artist granddaughters draw and getting to enjoy Whitney singing with Tommy accompanying her on the guitar. Another truly lovely Christmas experience.

Finally, Julian got to have his endoscopy which showed a pill had become lodged in his esophagus and caused an ulcer. A biopsy done to check for infection was negative. But now the challenge was to avoid the many delicious foods that irritate an ulcer.

A week before Christmas, nineteen of our family arrived for our annual Christmas gathering in a cabin at near-by Montgomery Bell State Park. Our grown children and grandchildren did most of the preparations and helped us organize and pack up our now downsized contributions. The cabin with its large stone fireplace and its wooded setting on a lake is a perfect place for a holiday gathering. The first day, Julian mostly rested, wrapped warmly in a comfortable recliner with everyone taking turns spending time with him and getting him things.

Granddaughter Sophie sharing her hopes and dreams with Julian

By the second day he felt well enough to be beaten at poker by both the grandchildren and great-grandchildren! It was a very happy day with even our grandson who teaches in Bolivia making it back in time. And we got to face-time our son Michael and his spouse Patrick in Cambodia, where they teach at an orphanage for children born HIV positive. I love that I have lived long enough to experience talking with and seeing our loved ones all the way across the world. In spite of all our challenges, it was a wonderful family Christmas celebration.

Christmas week, Julian’s blood pressure started vacillating wildly and he began to have severe chest pain from the ulcer in spite of taking nineteen different medicines each day! Unfortunately, all our doctors were out for a week of Christmas vacation. Adding to his misery, one of his new medicines made Julian very dizzy. He was walking to the bedroom and started to fall as he was almost to the king size bed. I was behind him and began to try to help him get to the bed. He started shouting, “Where’s the bed? Where’s the bed?” Because a week before he had had a sudden drastic loss of hearing, I thought he’d now gone blind! I managed to get him safely onto the bed and asked him if he could see it now and he snapped back, “Of course!” When I asked him why he couldn’t see it a moment before, he replied, “Because I had my eyes closed.” I had a sudden strong desire to strangle him, but fortunately my hands aren’t strong enough.

Now the sparkling lights of the village and the twinkling little tree outside and the bright red cardinals flaming around the feeders were still cheerfully visible over the rather large air purifier, the humidifier, and the walker. They could even be seen between the CPAP and Blood Pressure machine and various breathing aids on the rolling cart that we pulled next to the couch with its pyramid of wedges for elevating feet above the heart. The Christmas angels and burgundy candles around the tray with Julian’s nineteen medicines looked festive on the dining room table. I tried to convince Julian that a wreath of holly would keep his head warmer and add to the Christmassy atmosphere, but he wasn’t in the mood. I was tempted to dig out the left over “happy” pills and slip just a half of one in his milk, but it being the Holy Days, for once I resisted evil.

 

Village for a Hospital Room

Julian now needed to not lie flat because of the ulcer and he still needed to keep his feet above the level of his heart. I suggested getting a hammock since our middles are our heaviest body area, both head and feet would then be high. But it’s already getting difficult to walk around the apartment, so Julian solved the problem by varying which end he raises with the wedges over the day and night. The other challenge is a diet healthy for his heart, esophagus, and feet. Low salt, low fat, low fiber, no spices, no tomato products, no dairy for two hours before and after a pill he takes twice a day, no caffeine, carbonation, citrus or anything acidic or alcoholic. And the steroids are making his sugar count so high that the frequent tears in his very thin skin won’t heal. So, low sugar also. I spent about three hours grocery shopping during the busiest shopping season of the year reading the contents of everything. But it’s a saving grace to have our son Chris living nearby and willing to come stay while I have to be gone. He and Julian share many interests and it seems to not only be a bright spot in those days for Julian, but to be bringing them much closer to one another. And the many kindnesses of our family and friends have touched Julian’s heart, helping him see how loved he is.

Our newest great-grandson, Raphael, who had a difficult birth on November 15th, didn’t breathe until they resuscitated him. He stayed in the hospital for ten days on a ventilator and needing medicines for seizures. But the neurologist said he could not believe the second brain scans taken at five days old were of the same child as the ones they took the first day. The neurologist actually called it a miracle. Raphael is a beautiful baby and now at two months has a marvelous wide smile. Though we may not know the extent of possible damage for some time, he has many many people praying for him even on the other side of the world. And he is already tenderly loved by all of us. They live in North Carolina, but we get to see photos and videos of him almost daily on face book. And they drove from North Carolina to Tennessee just for four days so his grands and great- grands could get to meet him. So, as 2018 began, I got to hold him and kiss his tiny feet and see him smile and hear his laughter. What a wonderful beginning for a new year.

A beneficial side effect for me of helping Julian through all this has been my regaining stamina and managing a lot of physical activity with very little pain. And in spite of relieving some of the stress by standing at the kitchen counter in the middle of the night eating half a peach pie and another time six jelly doughnuts mysteriously disappearing in two days, I haven’t gained weight.

When someone is in pain, whether physical or emotional, they are focused on the pain, and the small things that keep relationships pleasant are no longer a priority. Through most of our marriage, I have been high maintenance and Julian has been very low maintenance. There have been rough moments for both of us in adjusting to such an extreme change in that now. He doesn’t like to need help and I have always wanted a lot of it. He’s never been comfortable expressing unpleasant feelings. And I don’t really know how to help him, because I worked hard over the years to learn how to deal with my emotions without garbage dumping them on him. So, in spite of being married over half a century, we are still awkward in areas of our relationship. Sometimes, I feel like at eighty years of age, I’m still an amateur person.

Humor has been our glue and in many ways it is still our saving grace. But in this stage of our life, the challenge is to learn how to love across our differences in ways that help us relate heart to heart.

Last week, the doctor explained that a lot of the ongoing illnesses are side effects of some of the medicines that so far are keeping him able to breathe. So Julian is beginning to deal with the reality that his life is not going to get better. In fact, it will be a constant challenge to keep it from getting worse.

It’s a scary and sad time for both of us. Sometimes when he is sleeping, I feel like my heart is breaking and when I let myself cry, I’m afraid I will never be able to stop. Our family and our friends at church have been incredibly loving and supportive. And I find grace by reliving joyful memories of our fifty-nine years together. Julian suddenly lost a lot more of his hearing around Christmas.  His expensive hearing aids made his ears itch so he never wore them.  But now communication is much more difficult. A friend with similar problems has found something that has helped him and he is bringing it for Julian to try, so I am hopeful that soon we will be able to enjoy reliving those memories together.

Some Memories

Mike Julian Eileen in Los Angeles

Eileen and Julian in the South West of France 2015

Julian at Tommy’s

Bella and Julian at Hospital

One of the blessings of old age is a treasury of wonderful memories.

A warped sense of humor is also a great help.

 

 

 

 

 

 

Two Things Only Are Permanent: Change and the Love of God

I spent the morning remembering the excitement of our many past Christmases with five children, then even more grandchildren and great-grandchildren.
This Christmas morning Julian, trying to recover some strength after a debilitating week, was still asleep at 11:30 AM, so I went on line and saw photos of our son Tommy’s four daughters sitting around still half asleep, so looking less than thrilled, while Tommy worked hard to make a happy Christmas for them. He even thought to call and get them to chorus, “Merry Christmas” to me.
Life changes big time doesn’t it?
Then after Julian woke up and I fixed brunch, I began to try to be thankful. I found more things than I could write.
Our Tommy has matured into a loving person and wonderful father even for sleepy teen-aged daughters.
Julian’s blood pressure isn’t scary high today.
His breathing is much better than two days ago.
His cancer has not returned. His pulmonary fibrosis hasn’t progressed in the last six months.
Obviously at least some of his 19 medicines, that are sitting next to the Christmas decorations on the dinner table, are working.
I have a lot more stamina and energy than I’ve had in a long long time.
The couch we bought last year turned out to be good for sleeping with the wedges that keep Julian’s swollen feet elevated.
I can see the cheerful lights of our charming Dickens Village, which our son Steve constructed under the direction of his architect father, displayed now on five levels across the far end of the living room. They are still pretty through the crowded mix of humidifier and air purifier, across the rolling tray table with CPAP machine and blood pressure machine, past the stacked wedge leg supports on the couch, and even over the chair with pillows I piled against the wedges to keep him from pushing them off in his sleep 🙂
I got to have a rare visit with Carmen, our dearly loved first grandchild, last week.
Our newborn great-grandson, Raphael, who had a scary difficult time at birth, is flourishing.
There is a beautiful cardinal at the feeder on the porch.
Our son Chris is bringing a delicious dinner that our daughter-in-law Molly fixed to us tonight.
Julian felt well enough on last week’s family Christmas Weekend to play card games with the grands and great-grands.
Our daughter Julie and all our family and in-laws did everything, so we could have our family Christmas gathering again this year. They came from Memphis and Atlanta and Nashville, and one grandchild, Jordan, made it in on Saturday night from Bolivia. And we got to face time our sons in Cambodia.
Our children and in-laws, grands and great-grands are simply awesome.
Thanks be for all our family and for our many blessings.
Things change, but we keep on learning how to love. And that really is the point of Christmas.

Julian

Acapulco Honeymoon Fifty-Nine Years Ago

“Tuffy”
Young, tender, vulnerable.
Funny and fun loving.
A crooked boyish smile.
Blue eyes with a Christmas morning sparkle.
Slow dancing, holding me gently, like I was fragile and precious.
Love poems before we ever even kissed.
Dozens of roses and one time a black orchid.
Cutting in at dances when I went with someone else.
Dancing, I only come up to his chin. I often ask: “Are you still up there?”
And every time he answers: “Always.”
And he meant it.

 

It May Be Easier to Die for Someone, than Live for Them

What a week! My husband’s supposedly simple medical procedure with a one night stay ended up in a panic, two operations, and six days in the hospital so far.

I had an interesting, but guilty, thought today after spending 24 hours around the clock for five days in one room with my husband of almost 59 years.

……It may be easier to die for someone, than to live for them…………..

Nurse Norman, I am not. Quiet, I am not. Inclined to wait for introverts to answer Doctors and nurses’ questions, I am not. Able to wiggle and struggle up from a low couch and a deep sleep quickly and cheerfully, I am not. Used to impatient orders, no longer disguised as polite requests, I am not. Patient and acquiescent when very tired and told to do things I consider silly, I am not. Anyway, you get the picture. Thanking God that our children have come to the rescue of a reasonably happy marriage under serious stress!

I really do understand the why of my husband’s side of this, since I have been on the other side of this equation. But understanding and dealing graciously with someone you love’s responses to stress at the same time as trying to deal with your own, is a new challenge for us. Somehow in the past, it seemed to work out so that we got to take turns. Now simultaneous health issues of old age are becoming more frequent and that’s a whole new ball game. We’ve done so well in the past at keeping our sense of humor, that during one ER visit, the nurse said, “You do realize this is an emergency?” We laughed and said, “Yes, but we do this so often now, we’ve learned to use humor to get us through our crises.”

Five days of coming through a totally new life threatening experience and still not understanding why it happened, plus realizing the doctors didn’t know either, is not only frustrating, it’s scary. And one doctor wanting to send us home having to cope with unfamiliar and unappealing procedures that don’t seem important to him, because they are no longer life threatening, doesn’t really make the stress less.

Happily, Julian is on the mend. Our children living in the area were with us when this experience became traumatic and now the out of state ones have come in town for the weekend. So, I am home unpacking, running wash, thawing a roast, freezing some of the vegetable soup I made the day before we left for the surgery, organizing, and venting on face book, while our children take turns being there at the hospital with their exhausted and frustrated dad. Hopefully he will be coming home tomorrow and I will be able to welcome him with a peaceful spirit, a cheerful heart, and a rested body.

Years ago, there were times when I seriously questioned the wisdom of an impractical klutz like me having five children. But boy, am I celebrating it now.