My husband’s surgery for lung cancer was scheduled for next Wednesday. His thoracic surgeon ran lots of tests and conferred with a team of heart and lung specialists to try to make sure the surgery would not make his Idiopathic Pulmonary Fibrosis worse. They all agreed the tests showed that his heart is working well and his Fibrosis isn’t nearly as bad as they had feared. So the consensus was to do surgery since the cancer appears to not have spread. They can just remove one lobe of the three lobes of the right lung.. The surgery was scheduled for May 17th with him stopping his blood thinner today, the 11th. However, the Cardiologist that did his stents and the doctor that put in his pacemaker needed to sign off on this plan. They both feel they should see him and do a stress test also. This doesn’t happen until Monday and he can’t go off his blood thinners until they give the go ahead. It will likely be at least another week from then before they can do surgery. Every day has seemed like a month since his diagnosis. But this morning when seeking peace about the delays, I remembered when our youngest son went through a similar series of delays getting a cardiac catheterization at the age of four. Reflecting on two stories of memories about that experience has freed me to let go and trust God.
Daffodils, a Sign of Hope: An Easter Story
My heart sank and I felt a wave of nausea as I read the thermometer. One hundred and four degrees.
“Oh, God. Not again please,” I whispered, as I coaxed medicine into my feverish son. While I was fixing him juice, the telephone rang insistently until I finally answered it.
“Eileen,” a neighbor said, “you need to get over there to my granny’s old home place and get yourself some of those daffodils. They’re just coming up. If you plant them now, they might go on and bloom for you next month.”
“I can’t take Tommy out today, Mae. He’s running fever again. Besides are you sure it’s not stealing??
“Naw. There are thousands of them now, all from the ones my granny planted years ago. They need thinning out, so they’ll keep blooming. I’ll come over and watch Tommy for you.”
“Well……Okay,” I answered hesitantly. “I’m just putting him down for a nap. Come in about twenty minutes.”
I sighed as I hung up. I didn’t really feel like going out in the cold January weather, but I couldn’t think of any more excuses. I picked up my three year old son and began to rock him to sleep. His face was flushed and his thin little body felt hot against mine. Poor Tommy. I hope this isn’t going to be another long siege, I thought silently.
“I love you, little one,” I said softly.
“Love you,” he whispered hoarsely, patting my face gently as his eyes began to close.
As I carefully put Tommy in his bed, I heard my neighbor come quietly in the front door.
“Hi, Mae. Thanks for coming. He’s restless, but I think he’ll sleep,” I greeted her. “But I don’t have anything to put dirt in. How will I carry the daffodils?”
“They don’t need dirt. Just put some newspapers down in the back of your station wagon. Get yourself a lot. They’ll look great along your driveway and out front of the house.”
A few minutes later I gasped and shivered when the cold wind hit me, as I got out of the car. I wished fervently that I hadn’t agreed to do this. I started digging as quickly as I could, eyes tearing from the wind. I dug for several minutes, then thought about giving up and going home. Each time I’d begin to straighten up, I’d see another thick clump just barely pushing through the frozen ground, seeming to beckon to me. I kept going until I had almost filled the back of my stationwagon with hundreds of bare bulbs.
When I finally got back and sent my neighbor home with thanks, I went to check on Tommy. He tossed restlessly in his sleep and when I touched his forehead, it almost scalded my hand. Tommy had taken a turn for the worse, so I forgot all about the daffodil bulbs, as I spent the next two weeks caring for him and making trips to the specialist fifty miles away.
With trembling voice, I finally admitted to the doctor how frightened I was, when Tommy’s fever ran off the thermometer and there was no way to know how high it was.
“Don’t try to bring it down below 104 degrees,” he advised me. “If you do, it will shoot back up fast and that can cause a seizure. He catches everything because the hole in his heart valve lets blood circulate without being purified by the lungs. We’ll try another antibiotic. If he has a virus, it won’t help, but we can’t risk this going into pneumonia. We’ll consider surgery when he’s four, but we need to get him stronger first. Bring him back in two days, if he’s not better.”
I drove us home through a flood of tears. Tommy whimpered listlessly, his eyes too bright and his skin too pale under the flush of fever. My spirits matched the bleak January landscape.
I spent the next two days and nights struggling to keep his fever down. Sometimes he lay in my arms limply. Other times when the fever shot beyond the measure of the thermometer, he would chatter brightly, using words far more complex than his normal vocabulary, reminding me of the possibility of brain damage.
Two days passed and his fever was still shooting back up off the thermometer. Trying yet again to bring it down slowly, I put him in a tepid bath, that seemed to hurt his hot skin and make him shake with chills. He looked like pictures I had seen of war orphans with their ribs showing and their sunken eyes pleading. He looked at me like he was asking mutely, “Why are you doing this? Why are you hurting me? Don’t you love me?”
As I wrapped him in wet sheets and sat rocking him, both of us were sobbing. I even yelled out loud, “Where are you, God? I pray and pray and you do nothing. This is an innocent child. Why do you let him suffer? What kind of God are you? A cruel God? An impotent God? Where is the loving God of Jesus? Have you abandoned us?”
As, I exhausted my anger, memories of God’s many gifts of grace in my life flooded my mind and I began to pray again, “You are my God, the only God I have. I have seen Your awesome glory in the beauty of Your creation and I have felt the depth of Your love through Your son, Jesus. So, I, like Paul, will try to praise you at all times, in joy and in sorrow. Right now, I can’t feel it, but with my will I praise you. I thank you for the many times you have blessed me and for the grace you have poured into my heart even in my darkest moments. But, please God, help me know you are with us in this. I feel abandoned.”
Then I began to dress Tommy for another trip to Nashville. As I carried him to the car, I was stopped in my tracks by an incredible sight.
Hundreds of bright yellow daffodils in full bloom completely filled the back of my car. It looked like Easter morning! I felt like God had put His arms around us and whispered, “See, I am with you always. Don’t despair.”
I drove to the doctor’s singing hymns of praise.
The next post: God is in the Timing continues the story of the journey of Tommy’s heart defect.
The last couple of weeks have been full of tests of faith. I always fail tests of faith. Luckily, God seems to grade on the curve and I am not alone in being in his “slow to get it” class.
At seventy-seven my husband is still working six, nine-hour days a week. But since he now spends quite a few minutes a day looking for his glasses, the phone book, and his computer passwords, it seems like an uphill battle against the law of diminishing returns.
Being self-employed has meant that our retirement is what our investments have managed to accumulate over a career that spanned a couple of serious recessions and raising five children. Unfortunately our timing for retiring hits before those investments have had time to recover from the most recent recession.
We finally decided that the only way he could at least cut back on his work days was if we sold our house and office and moved to an apartment with an extra bedroom as an office. Week before last we met with a realtor to set this in motion. However, after three days of going through fifty years of architectural drawings stored in the office basement, my husband’s allergies to dust and mold sent him to the hospital fighting for breath and too shaky to walk on his own. Eight days in hospitals on steroids and antibiotics, after having numerous tests, have finally brought him home breathing, but still weak and wobbly. I considered just covering him with a spread while he lies on the couch, and warning potential buyers to not sit there, but I finally took pity and postponed showing the house.
I confess that I too am exhausted from staying overnight at the hospital, overwhelmed by the challenges we are facing, and am very nervous about a biopsy I have scheduled for next Monday.
This morning I wearily crawled out of bed, got some coffee, and went on-line to one of my favorite blogs, Unshakeable Hope.
This blog is written by a husband and father with ALS or Lou Gehrig’s Disease. He has had this for over seventeen years, since his children were young. He is now paralyzed and only able to write on the computer with his eyes.
His blog is honest and real, not at all pollyanna like, but his faith always overcomes his doubts and fears. Today’s post was Prioritizing Our Hopes and spoke perfectly to my situation. What a blessing. I was both humbled and strengthened.
Another blog that has touched and changed my life is everyday gurus which was the launching pad for B4Peace, a blogging group writing about peace. This challenged me to start with myself and has brought about significant forgiveness and reconciliation in some important broken relationships.
Another is Yogaleigh’s Not Just Sassy on the Inside, which has added a call to other bloggers to pray or chant for peace each Sunday evening, including praying for specific people that we find unloveable. See her post Collective Prayer Sundays. Attempting to be faithful in this has continued my process of healing and reconciliation that started with B4Peace.
This in turn has motivated me to support and participate in a Scripture based class in conflict resolution using the book Resolving Everyday Conflict by Ken Sande and Kevin Johnson.
And this book has introduced me to Peacemaker Ministries and their resources that are available through http://www.Peacemaker.net
Another blog, Raising 5 Kids with Disabilities and Remaining Sane has given me awesome insights and deep hope for one of my grandchildren who suffers from Autism.
There are many other blogs, such as Make Believe Boutique that have touched, challenged, and taught me in amazingly diverse areas and ways over the last fourteen months. Blogging continues to enrich, inform, bless, and even transform my life at seventy-six.
Blogging is like reading favorite books exactly when you most need them and being able to talk with the author at the same time.
That evening after the doctor’s appointment, Tommy’s fever broke. His eyes sparkled and he was his funny independent little self again.
“Everybody start looking for pots and vases,” I said cheerfully, as I organized the older children and my husband into a treasure hunt for containers for the daffodils. We found dozens in diverse sizes and appearance and brought all the beautiful golden blooms inside the house. Everywhere you looked, it was Easter. Everywhere you looked there was the love of God and hope for the future.
The year continued with Tommy still succumbing to frequent illnesses, but I clung to my sign of hope, believing that God would heal him without surgery. Tommy turned four in November and a week before Christmas I took him to the heart specialist for his yearly tests. I had been told in the beginning, that sometimes these heart valve defects closed on their own, but that it was almost always by the time they were two years old. Still, I fully expected to be told that his heart had improved.
After hours of going from labs to X-rays to offices all over Vanderbilt Hospital, Tommy and I waited wearily, but hopefully, to hear the results from the heart specialist. By the time our name was called, Tommy was asleep in my lap, his head on my shoulder. He didn’t even wake up when I carried him into the office.
“I’m sorry, Mrs. Norman,” the doctor began. My heart broke at the words and I fought back tears. “The hole hasn’t gotten any smaller. We need to do a heart catheterization in preparation for surgery right away.” Looking at his calendar, he continued, “You have several other children, don’t you?”
“Well, we’ll schedule it in the week after Christmas then. December 27th is clear for me. Does that work for you?”
Speechless, I nodded my head. I drove home too shocked to cry or even pray.
That night, when everyone else was settled down to sleep, I sat at the kitchen counter with my Bible and a cup of hot chocolate. Praying, “Lord, help me. I do believe; help my unbelief,” I just opened the bible randomly and began to read.
My heart almost stopped, when I realized that I had opened to the story of Abraham taking Isaac up on the mountain to sacrifice him to God. I wept, thinking like Abraham, that God was asking me to let go of my child. Finally, I reached a point of deciding that God knew what Tommy’s future might be, and if He wanted to take Tommy now, He had His reasons.
I prayed and struggled until I could say, “Everything in me is screaming in protest, God. I can’t control my feelings, but with my will, I choose to trust you and to place my son and my heart in your hands. Your will, not mine.”
An amazing peace came over me and I recognized that letting go is part of everything in our journey. And that once Abraham had let go, God did not take Isaac. I knew that part of the story, but remembered only the letting go part, until I had done that myself.
The next few days, I called every person of praying faith, that I knew of any denomination, and asked for prayers for Tommy.
Christmas came and went, and we prepared to take Tommy to the hospital. I clung to my faith that God was with Tommy. The morning he was scheduled, the doctor’s office called and postponed the procedure, because the doctor had an emergency surgery. She rescheduled him for the following week. Then the day before the appointment, Tommy began to run fever, so we asked to reschedule for two weeks later, hoping he would be well enough then. But the next week, they called to say that the doctor was going to be out of town, so we made it for two weeks later again. I called everyone on my prayer list each time we rescheduled. By the time we finally managed to get Tommy to the hospital, I was a basket case.
I was numb as they rolled him away, but a very kind young intern went with him, keeping him smiling by pretending Tommy’s sock monkey was saying funny things. A gift from God.
I don’t remember much of anything from the waiting. But the bright smile on the Doctor’s face when he came out, was enough to make me begin thanking God right then.
The hole in Tommy’s heart had closed enough to be so tiny, that surgery was not necessary. The only difference it would make in his future life was, if he had any other surgeries, he would have to make sure he was put on antibiotics before them.
But even more amazing to me was that, literally overnight, he became a normal healthy child, no longer catching every germ that came by. In fact, he was often healthier than his siblings.
Remembering the frustration of the delays in Tommy’s journey to health is helping accept these now in my husband’s time of testing.
And again, I thank all of you who are praying in your own way for us. Prayer is caring. And caring is compassion. And compassion makes us brothers and sisters in both suffering and blessings.