Julian’s lung surgery is scheduled for Tuesday, May 23rd. He has to be there at 6 am, but not sure of the actual surgery time. Heart and lung doctors and consultants all say his heart is fine and his pulmonary fibrosis has not progressed in the last year and so far it looks like the cancer cells are limited to one spot in his right lung. All prayers for my husband, Julian, greatly appreciated.
My husband’s surgery for lung cancer was scheduled for next Wednesday. His thoracic surgeon ran lots of tests and conferred with a team of heart and lung specialists to try to make sure the surgery would not make his Idiopathic Pulmonary Fibrosis worse. They all agreed the tests showed that his heart is working well and his Fibrosis isn’t nearly as bad as they had feared. So the consensus was to do surgery since the cancer appears to not have spread. They can just remove one lobe of the three lobes of the right lung.. The surgery was scheduled for May 17th with him stopping his blood thinner today, the 11th. However, the Cardiologist that did his stents and the doctor that put in his pacemaker needed to sign off on this plan. They both feel they should see him and do a stress test also. This doesn’t happen until Monday and he can’t go off his blood thinners until they give the go ahead. It will likely be at least another week from then before they can do surgery. Every day has seemed like a month since his diagnosis. But this morning when seeking peace about the delays, I remembered when our youngest son went through a similar series of delays getting a cardiac catheterization at the age of four. Reflecting on two stories of memories about that experience has freed me to let go and trust God.
Daffodils, a Sign of Hope: An Easter Story
My heart sank and I felt a wave of nausea as I read the thermometer. One hundred and four degrees.
“Oh, God. Not again please,” I whispered, as I coaxed medicine into my feverish son. While I was fixing him juice, the telephone rang insistently until I finally answered it.
“Eileen,” a neighbor said, “you need to get over there to my granny’s old home place and get yourself some of those daffodils. They’re just coming up. If you plant them now, they might go on and bloom for you next month.”
“I can’t take Tommy out today, Mae. He’s running fever again. Besides are you sure it’s not stealing??
“Naw. There are thousands of them now, all from the ones my granny planted years ago. They need thinning out, so they’ll keep blooming. I’ll come over and watch Tommy for you.”
“Well……Okay,” I answered hesitantly. “I’m just putting him down for a nap. Come in about twenty minutes.”
I sighed as I hung up. I didn’t really feel like going out in the cold January weather, but I couldn’t think of any more excuses. I picked up my three year old son and began to rock him to sleep. His face was flushed and his thin little body felt hot against mine. Poor Tommy. I hope this isn’t going to be another long siege, I thought silently.
“I love you, little one,” I said softly.
“Love you,” he whispered hoarsely, patting my face gently as his eyes began to close.
As I carefully put Tommy in his bed, I heard my neighbor come quietly in the front door.
“Hi, Mae. Thanks for coming. He’s restless, but I think he’ll sleep,” I greeted her. “But I don’t have anything to put dirt in. How will I carry the daffodils?”
“They don’t need dirt. Just put some newspapers down in the back of your station wagon. Get yourself a lot. They’ll look great along your driveway and out front of the house.”
A few minutes later I gasped and shivered when the cold wind hit me, as I got out of the car. I wished fervently that I hadn’t agreed to do this. I started digging as quickly as I could, eyes tearing from the wind. I dug for several minutes, then thought about giving up and going home. Each time I’d begin to straighten up, I’d see another thick clump just barely pushing through the frozen ground, seeming to beckon to me. I kept going until I had almost filled the back of my stationwagon with hundreds of bare bulbs.
When I finally got back and sent my neighbor home with thanks, I went to check on Tommy. He tossed restlessly in his sleep and when I touched his forehead, it almost scalded my hand. Tommy had taken a turn for the worse, so I forgot all about the daffodil bulbs, as I spent the next two weeks caring for him and making trips to the specialist fifty miles away.
With trembling voice, I finally admitted to the doctor how frightened I was, when Tommy’s fever ran off the thermometer and there was no way to know how high it was.
“Don’t try to bring it down below 104 degrees,” he advised me. “If you do, it will shoot back up fast and that can cause a seizure. He catches everything because the hole in his heart valve lets blood circulate without being purified by the lungs. We’ll try another antibiotic. If he has a virus, it won’t help, but we can’t risk this going into pneumonia. We’ll consider surgery when he’s four, but we need to get him stronger first. Bring him back in two days, if he’s not better.”
I drove us home through a flood of tears. Tommy whimpered listlessly, his eyes too bright and his skin too pale under the flush of fever. My spirits matched the bleak January landscape.
I spent the next two days and nights struggling to keep his fever down. Sometimes he lay in my arms limply. Other times when the fever shot beyond the measure of the thermometer, he would chatter brightly, using words far more complex than his normal vocabulary, reminding me of the possibility of brain damage.
Two days passed and his fever was still shooting back up off the thermometer. Trying yet again to bring it down slowly, I put him in a tepid bath, that seemed to hurt his hot skin and make him shake with chills. He looked like pictures I had seen of war orphans with their ribs showing and their sunken eyes pleading. He looked at me like he was asking mutely, “Why are you doing this? Why are you hurting me? Don’t you love me?”
As I wrapped him in wet sheets and sat rocking him, both of us were sobbing. I even yelled out loud, “Where are you, God? I pray and pray and you do nothing. This is an innocent child. Why do you let him suffer? What kind of God are you? A cruel God? An impotent God? Where is the loving God of Jesus? Have you abandoned us?”
As, I exhausted my anger, memories of God’s many gifts of grace in my life flooded my mind and I began to pray again, “You are my God, the only God I have. I have seen Your awesome glory in the beauty of Your creation and I have felt the depth of Your love through Your son, Jesus. So, I, like Paul, will try to praise you at all times, in joy and in sorrow. Right now, I can’t feel it, but with my will I praise you. I thank you for the many times you have blessed me and for the grace you have poured into my heart even in my darkest moments. But, please God, help me know you are with us in this. I feel abandoned.”
Then I began to dress Tommy for another trip to Nashville. As I carried him to the car, I was stopped in my tracks by an incredible sight.
Hundreds of bright yellow daffodils in full bloom completely filled the back of my car. It looked like Easter morning! I felt like God had put His arms around us and whispered, “See, I am with you always. Don’t despair.”
I drove to the doctor’s singing hymns of praise.
The next post: God is in the Timing continues the story of the journey of Tommy’s heart defect.
Wow. Sometimes I feel like one of those plastic blow up clowns with sand in the bottom….you can knock it down over and over, but it comes back up for more.
A year ago, shortly after I had a reverse shoulder replacement when I fell and broke my shoulder in three places, my husband was diagnosed with Idiopathic Pulmonary Fibrosis. The idiopathic means they don’t know what causes it, so they don’t know how to cure it. It is progressive and the longest survival is usually five years from onset. We were pretty sure he had it for several years before diagnosis. Well, last year when he was hospitalized fighting to breathe for two weeks and growing extremely weak quickly, they sent him home worse than when he went in. He could hardly stand, couldn’t get out of a chair by himself and couldn’t walk any distance at all. All the muscle tone was gone from his legs. They were skeletal and weak. He started physical therapy and continues still. He can walk reasonable distances , stand, bend, and do the bicycle in therapy now. After his diagnosis last Spring, in the Fall he had another bout of a combination of allergies, sinus, asthma, with terrible coughing, but fast and aggressive treatment with antibiotics and steroids got him back on his feet and breathing in a few days. He works on a computer from home as an architect, often working six or even seven days a week. Our work comes in bunches, then stalls, but often deadlines come close together for a one man office. Now a year after our disastrous Spring, I had to have spinal lumbar fusion surgery. I am still recovering from it. About three weeks ago, my husband once again started coughing and wheezing and fighting for breath, but the quick medical treatment again got him almost completely over it in a little over two weeks. Through all of these challenges, we have been supported in prayer by people of many faiths. The morning before he came down with the respiratory problems, he had his yearly lung check up with CT Scans and breathing tests. The doctor came back with miraculous good news: the idiopathic pulmonary fibrosis has not progressed any, since this time last year. But, then came the bad news: a spot on his lungs that was biopsied two years ago and declared benign has grown. So, he had another lung biopsy last Friday and it showed a tumor with some cancer cells. He gets PET Scans this week, hoping they will not show any cancer having spread, so they can just remove the tumor without radiation therapy.
I am convinced that gathering prayer from many praying people of diverse spiritualities has made a difference in the progress of the fibrosis. I don’t understand prayer, but I have witnessed miracles, and do believe that in some way we are partners with the power that created everything. My husband has become much more spiritual as he has gotten older and more aware of his own limits, and he has become much more involved in helping those in need.
Of course selfishly, I want him to live longer and have a good quality of life, but I also really believe that God isn’t finished helping him become the person he created him to be and is still wanting to use him for the good of others.
I also believe we are all connected….somehow we are one. So, whatever we do for or against anyone has an effect on all. And when we join together in faith and caring, miracles can happen.
So, internet friends, if you are a person of prayer, please pray for my husband to become the person he was created to be and to be able to help others as he truly longs to do. And for me to be able to be a support for him in this.
And for all of us to realize that however small our faith is, when we join it together in caring for others, miracles can happen.
Thank you. Eileen